A Declaration of Participation
July 4, 2009
Thomas Jefferson had a radical notion: When the people are well-informed, they can be trusted to govern themselves. This powerful idea worked to end our rule by the King, but at the time it didn’t apply to slaves and it didn’t apply to women. It still doesn’t apply to patients. And it should.
Organized in 2009, the Society for Participatory Medicine will build on the work started last century by Tom Ferguson MD, creator of the e-Patients Scholars Working Group. “Doc Tom” saw that the internet would give us access to information and access to each other, and with that combination, we the people could be well-informed enough to become potent partners with our health professionals.
Today we declare a new era: the era of Participatory Medicine. Join us!
Our two founding core initiatives are the e-patients.net blog and the Journal of Participatory Medicine.
- Hugo Campos has major arrhythmia, goes to ER, wants his data even more now--e-Patient Dave
- Is “gimme my damn data” damning to patients?--Kathleen O'Malley
- @Ahier on the AHA’s “it’s too hard”: Planetree hospitals give access while still in-patient--e-Patient Dave
- Millenson on THCB: Will Regina Holliday Become Health Care’s Rosa Parks?--e-Patient Dave
- Medication Errors Result from Current Medication Reconciliation Practices: It’s Time to Adopt Participatory Reconciliation
- What Is the Heart of Health Care? Advocating for and Defining the Clinical Relationship in Patient-Centered Care
- Another Mental Health Professional Shares Her “Self-Care” Story
- Making Every Second Count – What We Can Do As Patients






