Society for Participatory Medicine
e-patients.net blog
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Executive Minutes, News
Dec 29 Exec: working document on Seal Program
Here is our working document of the process we think we need to take to get from here to the launch of the Seal program, originated by Indu and revised several times. Some of these things have already been done in a preliminary way, but we are reviewing for the sake of organizing our thoughts [...]
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Dec 15th Exec Meeting
Sarah and Nancy Finn beginning interview process in January Review of people to target Board reconstitution List of nominees for new board members identified (invites going out soon) List of board members rotating off confirmed Board agenda (Alan) How to address past board members Member at large will be voted on by membership Seal program [...]
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Dec 1st Exec Meeting
In Attendance: Sarah K, Dave D., John G., Jon L., Sue W., Deb L. Dec 1st, Thurs, Noon – 1p EST Defining 4 pillars – a tool to help us better understand the existing activities to further define our strategy : (Sarah K) Research – establishing a research exchange and practice collaboration (perhaps developing a [...]
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Nov 17: Exec Meeting Minutes
Seal Web Program: Want to make the database something that can be queered with the potential of plug into other organizations physician search (that we could bring in as corp members) It’s going to live on spm.org / do we have a user experience designer / journal template Lygeia would like to go after Yelp, [...]
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Nov 14: Files Comments Supporting HIPAA and CLIA Changes Giving Patients Access to Lab Results
The federal government issued proposed regulations that would make all lab results subject to the basic rule that all patient records should be provided to the patient upon request. See the post on e-patients.net explaining the proposed rule on access to lab results and its background. Following discussion in the comments to the blog post [...]
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Nov 3: Exec Meeting Minutes
1. Boston salon Boston event. Planned efficiently by Ann Rosas. Site was well priced but otherwise not the best. Fantastic evening. Amazing chemistry in the room, like a dinner party. Great conversation. Tom del Banco (sp?) gave a great address. Filled to capacity. Danny thinks we have some orgs that are interested in joining SPM [...]
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Executive Committee Meeting Minutes Oct 6th 2011
Thursday, October 6, 2011 12:27 pm EST 1.Planning for next full board meeting (Alan) Alan to message board about new Board Meeting time 2. SF Dinner Salon Redux (Danny, Alan, Sarah) Emily Hackle and Nancy Finn being brought in to help us improve our value proposition Blue Shield expressed interest in using SPM seal to [...]
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Executive Committee Minutes Sept 23rd 2011
General announcements: Sarah reported that Klick Pharma is donating $1000 to SPM following a FitBit challenge. Emily Hackel from Edelman has accepted role heading corporate marketing. In the area of fundraising and possibly hiring an executive director, Sarah suggests considering a professional fundraiser, who keeps percentage of funds he raised. Danny concerned that their earnings [...]
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Public Policy Comment period is open for draft rule allowing patient access to lab results – Volunteer(s) needed
Last week, the federales published a draft rule that would remove the lab-result-specific ban on delivering results directly to the patient (this applies to freestanding labs only – hospital lab results, for example are already covered by HIPAA patient access requirements). See: Federal Register | CLIA Program and HIPAA Privacy Rule; Patients’ Access to Test [...]
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Public Policy Federal Health IT Strategic Plan Update
In recent days I’ve noticed some discussion on the listserv about whether and to what extent Health IT should be of concern to e-patients. I’d like to update the group on one initiative in that domain. In March, The Federal Health IT Strategic Plan was released in draft form – See: ONC Seeks Comment on [...]
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