JPM Editors & Advisors
Jessie Gruman, PhD. Founder and president of the Center for Advancing Health, an independent, non-profit Washington-based policy institute that has worked in collaboration with employers, government, health insurers, clinicians, the media and the scientific community to “build an America where everyone is prepared to live a healthy life and make effective choices about their health care.” She is the author of AfterShock: What to Do When the Doctor Gives You – or Someone You Love – a Devastating Diagnosis, and Behavior Matters: 15 Years of Health Behavior Advocacy.
Sarah Greene. Publishing and new media entrepreneur specializing in biology and medicine/health, with 25 years’ experience and three successful startups acquired by Wiley, Elsevier, and Thomson Healthcare. Greene also developed award-winning, world-class web sites with original content for the New York Academy of Sciences and The New York Times, and was most recently chief content officer at Keas.com, where she helped invent original tools, content and communities for patients and health care professionals.
EDITORIAL BOARD
Mohammad Al-Ubaydli, MD. CEO and founder of Patients Know Best, a UK-based PHR company. As Honorary Senior Research Associate in PHRs at University College London, he wrote seven books, most recently Streamlining Hospital-Patient Communication: Developing High Impact Patient Portals. Al-Ubaydli trained as a physician at the University of Cambridge and as a programmer at Anglia Ruskin University, and worked as a Staff Scientist at the National Institutes of Health. His specialty is combining medicine with computing, especially personal health records, mobile computing (PDAs and smartphones) and open source software.
Jack Barrette. Founder of WEGO Health, a community of vigorous advocates, avid connectors, daily contributors and social media opinion leaders who bring the expertise of having been there, survived that. Barrette is a former Yahoo! executive focused on lifestyles, health and medicine.
Mike Battaglia. Health care consultant; formerly Head of Healthcare Strategy at Intuit and Chief Consumer Officer at Humana. He has served in a variety of senior and consulting capacities at premier institutions, including executive positions at Harvard Medical School and Harvard Pilgrim Health Care. A recognized thought leader on forward-looking health care and consumer strategies, he is a frequent speaker on topics such as consumer engagement and health care consumerism.
Jeffrey Bland, PhD. Chief Science Officer of Metagenics, Inc. and cofounder of The Institute for Functional Medicine with his wife, Susan Bland. A nutritional biochemist, Bland has earned international acclaim as educator, research professor, leader in the natural products industry, expert in human nutrition and functional medicine, and visionary for the future of health.
Kate Christensen, MD. Medical Director of the Internet Services Group for Kaiser Permanente, with research and clinical interests in Internet health care and palliative care; member of the California Medical Association, American Association of Hospice and Palliative Care Medicine, URAC Accreditation Committee, and Fellow of the American College of Physicians.
Susan Edgman-Levitan, PA. Executive Director of the Stoeckle Center for Primary Care Innovation, Massachusetts General Hospital. She has published extensively on research and strategies to improve the patients’ experience of care and leads several national initiatives to improve ambulatory and inpatient care. Edgman-Levitan is the founding President of the Picker Institute, a Boston-based nonprofit survey, research and consulting firm that helped hundreds of health care institutions evaluate and implement patient and family-centered care.
Ted Eytan, MD, MPH. Medical Director for Delivery Systems Operations Improvement for the Permanente Federation, LLC. His experience is in working with large medical groups and technologists to bring health care consumers useful information and decision-making health tools, to ensure that patients have an active role in their own health care. Eytan is board certified in family practice, and most recently completed service as Medical Director, Health Informatics and Web Services for Group Health Cooperative of Washington State. He is also working with the California Healthcare Foundation to promote patient online access to health information among safety-net and employed populations. His clinical interests are preventive care and reducing disparities in health status among vulnerable populations.
Rushika Fernandopulle, MD, MPP. Founder of Renaissance Health, whose mission is to develop and implement radically new models of care delivery to improve experience, quality, and affordability. As first Executive Director of the Harvard Interfaculty Program for Health Systems Improvement, he led the effort to leverage top faculty from across Harvard University and senior leaders in health care organizations to tackle the largest, most difficult problems facing the health system.
Peter Frishauf. Founder of SCP Communications, Inc. and Medscape, past president of the Healthcare Marketing & Communications Council, Inc. and former director of the Association of Medical Publishers. He is the non-executive Chairman of the Board of Directors of Crossix Solutions, Inc.; a director of MedPage Today, a site that covers breaking medical news peer-reviewed by the University of Pennsylvania, and a director of the The Omnimedix Institute, a healthcare information technology consultancy. Frishauf is also an advisor to Markle Foundation’s Connecting for Health initiative.
Gilles Frydman. A pioneer of medical online communities and founder, in 1995, of the Association of Cancer Online Resources, the largest online social network for cancer patients. ACOR has served over 1/2 million cancer patients and caregivers.
Dan Hoch, MD. Neurologist at Massachusetts General Hospital and assistant professor at Harvard Medical School, with a clinical interest in the care of patients with epilepsy. He has been a pioneer in using computers and communication technologies to facilitate the care of his patients and is a founding member of Braintalk.org, a collection of over 200 separate online support groups for individuals with neurologic disease. He serves on a number of advocacy and advisory committees in support of patient centered computing. His most recent research is on the ways in which online virtual environments can be used to facilitate healthcare and is active in the American Academy of Neurology, the American Epilepsy Society, and the American Medical Informatics Association.
Greg Juhn, MTPW. Senior Vice President, A.D.A.M., Inc. With 14 years of experience in patient education and public health program development, he previously directed A.D.A.M.’s editorial department, creating the company’s editorial standards and processes. He co-authored the first edition of the A.D.A.M. Family Health Guide and developed their specifications for Health Risk Assessments and consumer-empowerment healthcare products. Earlier, he authored a consumer health book and co-authored numerous scientific articles in peer-reviewed publications.
Gary Kreps, PhD. Professor of Health Communication at George Mason Univ., where he holds the Eileen and Steve Mandell Endowed Chair in the Dept. of Communication. He directs the Center for Health & Risk Communication, works with the Center for Social Science Research, the National Center for Biodefense & Infectious Disease, the Center for Health Policy & Ethics, the Climate Change Communication Center, and the Center for Consciousness, Transformation, & Human Potential. Kreps was previously founding Chief of the Health Communication and Informatics Research Branch at the National Cancer Institute (NIH) and founding Dean of the School of Communication at Hofstra University. His research examines health communication/promotion, multicultural relations, social organization, and applied research methods and is the recipient of many awards including the the NCA/ICA Outstanding Health Communication Scholar Award, the Pfizer Professorship of Clear Health Communication, the Future of Health Technology Award, and the Distinguished Achievement Award for Outstanding Contributions in Consumer Health Informatics and Online Health.
Joe Kvedar, MD. Founder and Director of the Center for Connected Health, applying communications technology and online resources to increase access and improve the delivery of quality medical services and patient care. A division of Partners HealthCare, the Center for Connected Health works with Harvard Medical School-affiliated teaching hospitals, including Massachusetts General and Brigham and Women’s Hospitals. Kvedar is co-editor of the book, Home Telehealth: Connecting Care within the Community, the first book to report on the applications of technology to deliver quality healthcare in the home. He is a frequent lecturer and has authored over 60 publications on connected health. In 2003, he was honored by the New England Business and Technology Association for his leadership in the field. Kvedar is a past President and board member of the American Telemedicine Association (ATA), and is Immediate Past Chair of the American Academy of Dermatology (AAD) Task Force on Telemedicine.
David Lansky, PhD. President and Chief Executive Officer of the Pacific Business Group on Health, established in California to improve the affordability and accessibility of high quality health care. Previously, Lansky was Senior Director, Health Program and Executive Director, Personal Health Technology Initiative for the Markle Foundation. For more than twenty years, he has been a proponent of a more responsive health care system in which consumers are partners in their care and help shape the delivery of care. A nationally recognized expert in accountability and quality measurement, Lansky has served as a board member or advisor to numerous health care projects and programs, including President Bush’s 2002 Economic Forum.
Jon Lebkowsky. Author and web strategist who went digital when he saw the social potential of connected computers in the late 1980s. Since then he’s been involved in online community and social network development, net.activism, web development, and web strategy. He is co-founder of Social Web Strategies, a consultancy based in Austin, Texas, and he regularly blogs at his site, Weblogsky.
Amy Dockser Marcus. Reporter for The Wall Street Journal who has written extensively about patient advocacy and the role advocates play in driving drug development and research, particularly in less common diseases. She was awarded the 2005 Pulitzer Prize for Beat Reporting for her coverage of the physical, monetary, and emotional costs of cancer. She received an Investigator Award in Health Policy Research from the Robert Wood Johnson Foundation for a project on improving the cancer experience for patients who get rare cancers.
Faith McLellan, PhD. Recently departed as North American Senior Editor, The Lancet, to join the World Health Organization in Geneva. She previously served as Managing Editor, Physicians Information and Education Resource (PIER) Project at American College of Physicians, and is past President of the Council of Biology Editors.
Carol Peckham. Publisher and editor with 25 years’ experience in medical publishing, currently Director of Editorial Development, Medscape. Peckham has previously served as publisher and vice president of Scientific American, Inc., and oversaw the launch of Scientific American Medicine (SAM; now ACP Medicine), as well as development of an electronic CME program and the launch of Care of the Surgical Patient (now ACS Surgery). She later established the startup Nidus Information Services, Inc. where she and her partner launched Well-Connected, a series of in-depth white papers for patients, and now owned by A.D.A.M., Inc.
Carlos Rizo, MD is Chief Imagineer of the Health Strategy Innovation Cell, based at Massey College, University of Toronto. He is a patient by accident, a physician by training and a life-long learner currently enrolled as a PhD candidate at the Department of Health Policy Management and Evaluation, University of Toronto, examining success’ and ‘failure of Health Information Systems. Carlos is a former fellow on eHealth and Innovation at the University Health Network’s Centre for Global eHealth Innovation, and on Consumer Health Informatics at the Patient Education Network, Princess Margaret Hospital. Carlos has written on medical peer-reviewed journals, blogs on disruptive innovations and patient advocacy and micro-blogs about participatory medicine, patient empowerment, healthcare innovation, randomness, and life on Twitter and Facebook.
David Rosenthal, MD. Resident at Brigham & Women’s Hospital; spent last year as Medical Programs Manager for Keas, Inc., a startup healthcare company developing tools, community and content for promoting wellness and disease prevention. Rosenthal is interested in the intersection of medicine, video technology, health IT, and the use of narrative storytelling in medicine. He has worked on several film projects, including “Witnessing Death: a grandson’s reflections,” about his family’s experience with Alzheimer’s disease.
Josh Seidman, PhD. President, Information Therapy. For 17 years, Seidman has been on a quest to improve health care quality-first by influencing health plans and provider behavior, then shifting to a grassroots approach by activating consumers. Before joining the IxCenter, he served as senior editor and director of quality initiatives for the Advisory Board Company’s consumer health initiative. In that capacity, he played a leading role in strategic planning and product development and provided leadership in the development of quality-of-care information for consumers. Seidman holds a PhD in health services research and a master of health science degree in health policy and management from the Johns Hopkins School of Public Health.
Andrew Schorr. Founder & Host, Patient Power® webcasts for patients via patientpower.info, many medical center web sites, msn.com search, Microsoft’s Healthvault.com, and many advocacy group web sites. A medical journalist, Schorr has been involved in patient education beginning in 1984. In 1996 he became a patient too, diagnosed with leukemia. He entered a clinical trial and today remains in deep remission as he continues his work hosting online programs for patients and in-person “town meetings.” Andrew has won numerous awards for his web site, www.patientpower.info, and recently received top media awards for his content from the American Society of Colorectal Surgeons and the Women’s Sexual Health Foundation. Andrew is currently writing a book tentatively titled “Rx 3.0: How to Use the Internet Wisely in Times of Personal Medical Crisis.”
Amy Tenderich. Journalist, Health 2.0 advocate/speaker, consultant, blogger and co-author of the handbook, Know Your Numbers, Outlive Your Diabetes. Tenderich recently won the LillyforLife Achievement Award for Diabetes Journalism. DiabetesMine.com is the best-read diabetes blog in the country; it ranks in the Top 10 of the World’s Top Blogs in Health & Medicine on the HealthCare100 Index and has been featured in Newsweek, BusinessWeek, the Wall Street Journal, the UK Guardian, NPR’s Future Tense, TechCrunch, and a number of other influential blogs and publications. Tenderich is also Community Manager of a new social networking site for diabetics called DiabeticConnect.com. As Co-Founder of TnT Initiatives, LLC, she is a regular contributor to a number of leading diabetes publications, and provides consulting services to pharmaceutical companies and healthcare technology innovators.
Trisha Torrey. Writer, speaker, blogger, and founder of Every Patients Advocate and DiagKNOWsis, whose mission is to empower patients to advocate for themselves. Torrey also writes columns for publication, hosts a talk radio show called HealthLink on Air, teaches workshops and presents to large groups, is the internet medical information research expert at Allexperts.com and is working on a book. In 2007, she became the About.com expert in patient empowerment issues. Torrey began her quest to help others handle the debacle that has become the American healthcare system after being diagnosed with a very rare, life-threatening cancer in 2004. Her first book, You Bet Your Life! The 10 Mistakes Every Patient Makes will be published in Fall 2009.
Roni Zeiger, MD. Currently a Product Manager at Google where he has helped create and lead Google Health, and a blogger on consumerism in healthcare on the Huffington Post. He earned his MD at Stanford and completed his internal medicine residency at the University of California, San Francisco. He has written and edited several medical textbooks and has published articles on topics including continuing medical education, clinical decision support tools, and searching for health information on the web. Zeiger also created a tool called Diagnosaurus which helps clinicians remember the possible diagnoses for given symptoms — the smartphone version of this tool has been used by more than 100,000 medical students and physicians. He has worked as a primary care physician, an urgent care physician, and has served as a Clinical Instructor of Medicine at Stanford University School of Medicine. He was a fellow in medical informatics at Veterans Affairs in Palo Alto, California, and received a masters degree in biomedical informatics from Stanford University.
ADVISORY BOARD
Adam Bosworth. Founder, president, and CEO of Keas Inc., and a technology innovator who was instrumental in building numerous technology products, including Google Health, Microsoft Access, Microsoft Internet Explorer, and BEA WebLogic Integration and Workshop. Prior to starting Keas, Bosworth was instrumental in the development of Google Calendar and Spreadsheets. He then headed Google Health, a personal health information centralization service. Previously, he was senior vice president of engineering and chief software architect at BEA Systems. Prior to joining BEA, Adam co-founded Crossgain, a software development firm acquired by BEA in 2001. Known as one of the pioneers of XML technology, Adam also held various senior management positions at Microsoft where he was responsible for creating the Microsoft Access PC database and led the team that developed Internet Explorer 4.0’s HTML engine.
Esther Dyson. Board member and active investor in a variety of technology, healthcare and genetics start-ups including Flickr, del.icio.us, Eventful, Netbeans, Powerset, Systinet, ZEDO, CV-Online, Medscape, and Medstory. She is also involved in private aviation and commercial space startups and has invested in XCOR, Constellation Services, Zero-G, Icon Aircraft, and Space Adventures. Since 2005, she has hosted the Flight School conference in Aspen. Dyson is currently on the board of directors of 23andMe, and is one of the first ten volunteers in the Personal Genome Project.
Eric von Hippel, PhD. Economist and Professor at the MIT Sloan School of Management, and Fellow, Berkman Center for Internet and Society, Harvard Law School, specializing in the nature and economics of distributed and open innovation. Author of two books, The Sources of Innovation (1988) and Democratizing Innovation (2005), von Hippel is best known for his work developing the concept of user innovation – that end-users, rather than manufacturers, are responsible for a large amount of new innovation. In order to describe this phenomenon, he introduced the term lead user and he has produced video tutorials on the theme.
Kevin Kelly. Founding Exectuive Editor and now Editor-at-Large of Wired Magazine: and former editor/publisher of the Whole Earth Catalog and co-founder with Stewart Brand of the Well. Kelly is an expert on digital culture and the author Out of Control: The New Biology of Machines, Social Systems, and the Economic World, which argues that intelligence is not organized in a centralized structure but much more like a bee-hive of small simple components, and he applies this view to bureaucratic organizations, intelligent computers as well as to the human brain. He currently has several blogs including The Technium, and is helping to to make a full inventory of all living species on earth, the Linnaean enterprise.
David Kibbe, MD, MBA. Senior Advisor, American Academy of Family Physicians, Principal at The Kibbe Group LLC, and Secretary, E31 Health Informatics Technical Committee at ASTM International. Kibbe is known internationally in the field of health information technology and has solid accomplishments in the business of e-health. He has practiced medicine in private and academic settings for more than 15 years, including teaching at the School of Public Health, University of North Carolina at Chapel Hill. Kibbe also founded two health information companies located in North Carolina and continues to serve as as medical director and board chairman of Canopy Systems, an innovative and award-winning software firm that provides Web-based case management software to many of the country’s largest academic health centers and the U.S. Navy hospital system.
Howard Rheingold. Critic and writer whose specialties are on the cultural, social and political implications of modern communication media such as the Internet, mobile technology and virtual communities (a term he is credited with inventing). In 1991, he wrote Virtual Reality: Exploring the Brave New Technologies of Artificial Experience and Interactive Worlds from Cyberspace to Teledildonics. Rheingold also edited the Whole Earth Review, served as editor in chief of the Millennium Whole Earth Catalog, and was founding executive editor of HotWired, one of the first commercial content web sites published in 1994 by Wired magazine. In 2002, Rheingold published Smart Mobs, exploring the potential for technology to augment collective intelligence. He currently teaches courses at U.C. Berkeley and Stanford University.
Clay Shirky. Adjunct Professor NYU’s graduate Interactive Telecommunications Program (ITP) and author of Here Comes Everybody: The Power of Organizing Without Organizations, about what happens when people are given the tools to do things together, without needing traditional organizational structures. Consultant, teacher and writer on the social and economic effects of Internet technologies, with a focus on how decentralized technologies such as peer-to-peer, web services, and wireless networks provide alternatives to the wired client/server infrastructure that characterizes the Web.
Peter Yellowlees, MMBS, MD, MRCPsych. Director of the Graduate Program in Health Informatics and Professor of Psychiatry at UC Davis. Yellowlees was earlier chair of the Department of Psychiatry at the University of Queensland, and Founding Director of the Center for Online Health, and moved to UC Davis in 2004 to continue his research in telemedicine and eHealth. He is presently working on projects involving robotic surgery, electronic record implementation, data mining and disease management protocols, Internet e-mail and video consultation services and the use of virtual reality for health education on the Internet. He has published four books; his latest “Your Health in the Information Age” (www.InformationAgeHealth.com) was published in 2008.
SOCIETY FOR PARTICIPATORY MEDICINE LIAISON (e-patients.net & JPM)
Dave deBronkart (e-Patient Dave). Diagnosed with advanced kidney cancer (median survival 24 weeks), deBronkart rapidly learned to use every aspect of empowerment, technology, and participatory medicine to beat the odds. A high-tech marketer for TimeTrade Appointment Systems, he’s now an outspoken patient blogger and is patient advisor to PCPCC. He is co-chairman of the Society of Participatory Medicine.
