Last month, the Connected Health Symposium at Harvard Medical School saw a first: a full-length case study in participatory medicine, described concurrently by both the patient and his physician. The physician was our own Danny Sands MD, and the patient was our e-Patient Dave. It was “a remarkable story,” as Matthew Holt said on The Health Care Blog:
… a great session in which e-Patient Dave (Dave deBronkart) and his physician, Danny Sands described his use of listservs, the Internet, email and BIMDC’s PatientSite and other tools in his (successful!) battle with renal cancer—after being told median survival was 24 weeks. I won’t tell the whole story as they’re trying to get it published in an authoritative journal—so that physicians will pay attention and promote this use of technology by patients.
The presentation was videotaped, and we present it here.
The audio is sharp and clear, but unfortunately the exposure was way off, so the original video was very dark. We’ve lightened it, so it’s somewhat better; we hope you’ll bear with us.
The talk was 55 minutes long. There are six clips, because YouTube’s limit is 10 minutes per clip. At bottom are the slides, to augment the video.Part 1: Reconnecting and Agenda Setting Part 2: Discovery and Diagnosis Part 3: How We Used e-Tools Part 4: Outcome and Insights Part 5: Audience Discussion Part 6: The e-Patient Perspective Here are the slides, with some annotations. At bottom right, click the slide-screen icon to enlarge to full screen; click it again to restore view.