The Journal of Participatory Medicine has published a narrative by Kelly Young entitled “Present, Patient, and Accounted for: How and Why Patients Are Present at Scientific Meetings of the American College of Rheumatology.” Young describes how the Rheumatoid Patient Foundation evolved from her and other e-patients’ efforts to better understand their condition through online research and networking, and how the organization came to win recognition from the American College of Rheumatology as an authority on rheumatoid patient needs and patient care.
About our Blog
The e-Patients Blog is the longest running blog devoted to talking about the participatory medicine movement, since 2009.
- Patient/caregiver letter supporting proposed ONC rule on improving flow of our dataJanuary 26, 2020
- Why I Joined SPM: Brad PowerJanuary 11, 2020
- Apparently Only Doctors Can Help on Twitter?December 15, 2019
- “My Data and Me”: Brenda Denzler’s amazing story at #FHIRDevDaysNovember 24, 2019
- A Romanticised History of SPMNovember 23, 2019