Search all of the Society for Participatory Medicine website:Search
Susannah Fox: Tom’s legacy #DocTom10

Susannah Fox: Tom’s legacy #DocTom10

Next in our #DocTom10 series, which started here.  This is a blessing – the first post here in two years by Susannah Fox. More about this at the end of the post – for now, let’s get to the good stuff. She originally posted this as a comment on...

Susannah Fox is leaving Pew Research

I know many of our readers already saw this, but, from her personal blog: In one way, I’m sad to see that her work at Pew is over. In her 14 years there, time after time her work made clear what was actually happening as people use the internet in pursuing...

AI Gives SPM a New Opportunity to Lead

I recently posted an article entitled, “In Cancer, Patient-Empowering AI Begins to Change Care, Relationships,” that contained this declaration, “Good medicine needs to become participatory medicine, not least because involving the patient as a partner consistently...
A Citizen’s Response Corps for Digital Health

A Citizen’s Response Corps for Digital Health

Editor’s note: In his new book, The Long Haul – Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever, journalist and patient Ryan Prior depicts the courage of patients with Long COVID who were the first to name,...
Power of People. Pause and Trust. Lynne Becker

Power of People. Pause and Trust. Lynne Becker

Designing clinical trials for and with people with Traumatic Brain Injury. Lynne Becker looking forward over time, not backward. Building a business. Proem You know the old story of the researcher looking for their lost keys under the streetlight when they lost them...
A Romanticised History of SPM

A Romanticised History of SPM

As I was volunteering for SPM, it took years to learn its history and understand where we are, how the Society got created, and why it is what it is. This is not a historical well-documented history of SPM, it’s my imperfect interpretation of its history.  Doc Tom...

Donate