by e-Patient Dave | Oct 31, 2019
In 2009, the Society for Participatory Medicine was created to continue the work of “Doc Tom” Ferguson (1943-2006), the founder of the e-patient movement and a true visionary who foresaw decades ago that “e-patients” (empowered, engaged, equipped, enabled)...
by e-Patient Dave | Apr 17, 2016
Next in our #DocTom10 series, which started here. This is a blessing – the first post here in two years by Susannah Fox. More about this at the end of the post – for now, let’s get to the good stuff. She originally posted this as a comment on...
by e-Patient Dave | Jan 18, 2016
Longtime readers of this blog know that for years Susannah Fox was its heart and soul. She was a devoted friend of “Doc Tom” Ferguson, creator of the e-patient concept in the 1990s, and for years at Pew Research she was the dependable guru of Pew’s...
by e-Patient Dave | May 28, 2015
A quick first post, copied from Facebook: “Hugest news EVER! Susannah Fox is the new Chief Technology Officer at U.S. Department of Health and Human Services. How amazing is that??” My comment on Susannah’s short post: “This wins my prize as...
by e-Patient Dave | Jul 18, 2014
I know many of our readers already saw this, but, from her personal blog: In one way, I’m sad to see that her work at Pew is over. In her 14 years there, time after time her work made clear what was actually happening as people use the internet in pursuing...
by e-Patient Dave | Nov 26, 2013
Susannah Fox of Pew Research had an important new study published today about the highest cost part of the healthcare budget: patients with one or more chronic conditions. If you care about the suffering of patients with never-ending conditions or the suffering of the...
by e-Patient Dave | Mar 1, 2012
Nancy has quite a publicist for her book “e-Patients Live Longer,” which is spreading the e-patient message… here’s an interview with FoxNews.com.
by e-Patient Dave | Mar 1, 2011
This is an unusual contribution in our series Why I Joined. As we’ve observed (August 2008, February 2009, February 2011) that language can be important in social movements, because as words change their meaning, messages can get crossed, and what a speaker...
by e-Patient Dave | Jul 19, 2010
Susannah Fox of the Pew Internet and American Life project was on BBC Radio’s “Americana,” with Megan McCarthy, editor of TechMeme. (You know she’s wicked cool because her Twitter ID is just @Megan.) Topic: mobile internet usage in America. The...
by John M. Grohol, Psy.D. | Dec 16, 2008
Our savvy e-patients over at NeuroTalk noticed the launch of a new service by the Michael J. Fox Foundation, one of the leading Parkinson’s disease advocacy and research organizations. The new service, called PD Online Research, is billed as a “new web...
by Jon Lebkowsky | Mar 6, 2008
Video of e-Patients group member Susanna Fox at Health 2.0. Susannah speaking: Interview:
by John M. Grohol, Psy.D. | Dec 4, 2007
Not sure how we missed this (bad blogger!), but our own Susannah Fox from the Pew Internet and American Life Project was interviewed for HealthDot a month ago. Check out the interview here.
by Eric Bersh | May 23, 2025
Editor’s Note: This post (in two parts) builds upon email correspondence the author sent to Robert F. Kennedy, Jr. and key members of his Make America Health Again (MAHA) team beginning in November 2024. It aims to illuminate alignment between three principles (and...
by Eric Bersh | Apr 6, 2023
I recently posted an article entitled, “In Cancer, Patient-Empowering AI Begins to Change Care, Relationships,” that contained this declaration, “Good medicine needs to become participatory medicine, not least because involving the patient as a partner consistently...
by Eric Bersh | Nov 15, 2022
Editor’s note: In his new book, The Long Haul – Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever, journalist and patient Ryan Prior depicts the courage of patients with Long COVID who were the first to name,...
by Danny van Leeuwen | Jan 12, 2021
Designing clinical trials for and with people with Traumatic Brain Injury. Lynne Becker looking forward over time, not backward. Building a business. Proem You know the old story of the researcher looking for their lost keys under the streetlight when they lost them...
by Danny van Leeuwen | Dec 21, 2020
How do regular people find evidence-informed guidance to help make decisions about safe living in a pandemic? Questions answered when needed in a useful manner? Part 2 in this Person-First approach. Join our journey. Proem A few weeks ago, on this podcast, I...
by Ileana Balcu | Nov 23, 2019
As I was volunteering for SPM, it took years to learn its history and understand where we are, how the Society got created, and why it is what it is. This is not a historical well-documented history of SPM, it’s my imperfect interpretation of its history. Doc Tom...
by e-Patient Dave | Nov 19, 2019
I’ve just discovered something I’ve long hoped to see: a training module to teach medical students about e-patients and how to interact with them! It’s a paper in the journal Medical Teacher: “But Dr Google said…” – Training medical students how to...
by e-Patient Dave | Apr 5, 2019
SPM member Jeanne Pinder has spent years crusading for price transparency with her startup ClearHealthCosts. She’s formed partnerships with WHYY in Philadelphia, been on CBS News, won awards for investigative journalism with NOLA.com and Fox 8’s...
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