{"id":10016,"date":"2011-08-17T08:54:32","date_gmt":"2011-08-17T12:54:32","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=10016"},"modified":"2021-09-21T12:56:56","modified_gmt":"2021-09-21T16:56:56","slug":"health-literacy-missouri-clarity-is-power","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2011\/08\/health-literacy-missouri-clarity-is-power.html","title":{"rendered":"Health Literacy Missouri: Clarity is Power."},"content":{"rendered":"<p><a href=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2011\/08\/Health-Lit-Missouri-sign.jpg\" data-rel=\"lightbox-image-0\" data-rl_title=\"\" data-rl_caption=\"\"><img decoding=\"async\" class=\"alignleft size-full wp-image-10018\" title=\"\" src=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2011\/08\/Health-Lit-Missouri-sign.jpg\" alt=\"\" width=\"450\" srcset=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2011\/08\/Health-Lit-Missouri-sign.jpg 854w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2011\/08\/Health-Lit-Missouri-sign-300x168.jpg 300w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2011\/08\/Health-Lit-Missouri-sign-800x450.jpg 800w\" sizes=\"(max-width: 854px) 100vw, 854px\" \/><\/a>I&#8217;m visiting yesterday and today with some marvelous kindred spirits: <span style=\"text-decoration: underline\"><a href=\"http:\/\/healthliteracymissouri.org\" target=\"_blank\" rel=\"noopener\">Health Literacy Missouri<\/a><\/span>\u00a0(Twitter <a href=\"http:\/\/twitter.com\/healthlitmo\" target=\"_blank\" rel=\"noopener\">@HealthLitMo<\/a>, <span style=\"text-decoration: underline\"><a href=\"https:\/\/www.facebook.com\/healthliteracymissouri\" target=\"_blank\" rel=\"noopener\">Facebook<\/a><\/span>). Their thoughts are\u00a0<em>very\u00a0<\/em>aligned with participatory medicine. It&#8217;s like we&#8217;ve been ships in the night &#8211; not crossing in the night, but sailing in parallel. And now we meet.<\/p>\n<p>They&#8217;re a small non-profit in St. Louis, just 18 months old, and they&#8217;re doing rock&#8217;em sock&#8217;em great work at developing what I think is a key part of participatory medicine: patients&#8217; comprehension of relevant health information, and their competence at doing their part in a participatory relationship.<\/p>\n<p><!--more-->For instance, here&#8217;s a (poor cell phone) snapshot from a great training they did this morning to introduce the new &#8220;Straight Talk With Your Doc&#8221;<sup>\u00a9<\/sup> patient instructions they&#8217;re working on:<\/p>\n<p><a href=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2011\/08\/Health-Lit-Missouri-training.jpg\" data-rel=\"lightbox-image-1\" data-rl_title=\"\" data-rl_caption=\"\"><img decoding=\"async\" class=\"alignleft size-large wp-image-10017\" title=\"\" src=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2011\/08\/Health-Lit-Missouri-training-1024x575.jpg\" alt=\"\" height=\"220\" srcset=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2011\/08\/Health-Lit-Missouri-training-1024x575.jpg 1024w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2011\/08\/Health-Lit-Missouri-training-300x168.jpg 300w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/a>It was taken during a &#8220;train the trainer&#8221; role play &#8211; a doctor and patient in an appointment, with a small group huddled around, observing and discussing. The doc was speaking a bit rapidly and in ordinary doctor-speak &#8211; a bit over the head of many patients. The patient (without any training!) was responding, empowered: &#8220;Could you slow down? I want to understand.&#8221; &#8220;Will I be on this medication forever?&#8221; etc. The slide says &#8220;Empowering Patients: A Health Literacy Toolkit to Engage Community Groups.&#8221;<\/p>\n<p>I <em>love <\/em>what I&#8217;ve seen so far of &#8220;Straight Talk With Your Doc.&#8221; Even the brochure about it is extraordinarily clear in its writing. &#8220;Clear&#8221; doesn&#8217;t mean dumbed-down &#8211; it&#8217;s just plain <em>good writing<\/em>, good use of language, just plain competent.<\/p>\n<p>And clarity is essential if we want to put knowledge &#8211; power and responsibility &#8211; in the hands of patients and families.<\/p>\n<p><strong>Gaps and Overlaps:\u00a0Participatory Medicine and Health Literacy<\/strong><\/p>\n<p>One thing we&#8217;re exploring here is that our movements have a lot in common &#8211; empowering, enabling and educating patients so they can be engaged in their care. But they&#8217;re different: <span style=\"text-decoration: underline\"><a title=\" \" href=\"http:\/\/en.wikipedia.org\/wiki\/Health_literacy\" target=\"_blank\" rel=\"noopener\">their Wikipedia page<\/a><\/span> defines health literacy as &#8220;an individual&#8217;s ability to read, understand and use healthcare information&#8221; (that&#8217;s <em>my <\/em>idea of literacy), but continues\u00a0&#8220;&#8230; to make decisions and follow instructions for treatment.&#8221; Aha: they include shared decision making (about which <span style=\"text-decoration: underline\"><a href=\"https:\/\/participatorymedicine.org\/epatients\/archives\/category\/shared-decision-making\" target=\"_blank\" rel=\"noopener\">we&#8217;ve blogged<\/a><\/span>), but beyond that it&#8217;s about &#8220;compliance&#8221; &#8211; following instructions.<\/p>\n<p>In contrast, participatory medicine (<span style=\"text-decoration: underline\"><a href=\"http:\/\/en.wikipedia.org\/wiki\/participatory_medicine\" target=\"_blank\" rel=\"noopener\">Wikipedia<\/a><\/span>) emphasizes <em>networked <\/em>patients as <em>drivers<\/em>\u00a0\u00a0of their health. Clearly such patients need health literacy as part of their skills, so everything HLM is doing is relevant to participatory medicine; and, there are differences. Here&#8217;s hoping we do more together!<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>I&#8217;m visiting yesterday and today with some marvelous kindred spirits: Health Literacy Missouri\u00a0(Twitter @HealthLitMo, Facebook). Their thoughts are\u00a0very\u00a0aligned with participatory medicine. It&#8217;s like we&#8217;ve been ships in the night &#8211; [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":10018,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[21,2,2304],"tags":[],"coauthors":[8070],"class_list":["post-10016","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-e-ptsresources","category-trendsprinciples","category-why-pm"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Health Literacy Missouri: Clarity is Power. - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2011\/08\/health-literacy-missouri-clarity-is-power.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Health Literacy Missouri: Clarity is Power. - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"I&#8217;m visiting yesterday and today with some marvelous kindred spirits: Health Literacy Missouri\u00a0(Twitter @HealthLitMo, Facebook). 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