{"id":104,"date":"2008-03-27T09:34:39","date_gmt":"2008-03-27T14:34:39","guid":{"rendered":"http:\/\/72.9.147.40\/archives\/2008\/03\/social-dna-at-23andme-who-owns-your-genome.html"},"modified":"2008-03-27T09:34:39","modified_gmt":"2008-03-27T14:34:39","slug":"social-dna-at-23andme-who-owns-your-genome","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2008\/03\/social-dna-at-23andme-who-owns-your-genome.html","title":{"rendered":"Social DNA at 23andme: who owns your genome?"},"content":{"rendered":"<p><a href=\"https:\/\/www.23andme.com\/\">23andMe<\/a> is a new personal genomics system that will have social features. Once your DNA is analyzed, you&#8217;ll be able to compare it with others&#8217;.  People will be able to find each others by allele (genetic variation). Unfortunately, you have to shell out $999 for the kit and analysis, which looks at around 600,000 genetic variations. With a decent adoption rate, the company could have a robust genomic and phenotypic database, though it&#8217;s not clear from the article who would own the data and what costs and restrictions researchers might face if they wanted to dig into it.  An <a href=\"http:\/\/www.technologyreview.com\/Biotech\/20464\/\">article at Technology Review<\/a> focuses quite a bit on personal use of the DNA data, and the social aspect of this particular implementation, but also on the question of h ow the data will be used. The company says it &#8220;will not sell genetic data to pharmaceutical companies, but it may sell access to the company&#8217;s pool of willing research participants or other fruits of its database.&#8221; In fact, the data will be quite valuable, and the cost of aqcquiring it will be covered by the users who pay to have their DNA analyzed &#8211; but are presumably giving up ownership of their own data.<\/p>\n<p>According to the Technology Review article, the company also expects &#8220;a sort of grassroots research effort that mirrors the rising influence of patient-advocacy groups.&#8221; <\/p>\n<blockquote><p>If the trend attracts large enough numbers, people with particular diseases could come together to search their genomes for similarities. Or those who escaped a particular condition despite a high genetic risk could provide insight into lifestyle and other genetic factors that were protective.\n<\/p><\/blockquote>\n<p>We talked about just this sort of thing at a recent meeting of the <a href=\"https:\/\/participatorymedicine.org\/epatients\">e-Patients Working Group<\/a>.<\/p>\n<p>A cursory review of the 23andme web site didn&#8217;t reveal explicit information about how the company plans to use or monetize the data, or how the intellectual property question will be addressed. I would want to see much more about that before I would shell out $999 to pay for their analysis kit.<\/p>\n<p>(Cross-posted from <a href=\"http:\/\/weblogsky.com\">Weblogsky<\/a>)<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>23andMe is a new personal genomics system that will have social features. Once your DNA is analyzed, you&#8217;ll be able to compare it with others&#8217;. People will be able to [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[2],"tags":[],"coauthors":[8281],"class_list":["post-104","post","type-post","status-publish","format-standard","hentry","category-trendsprinciples"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Social DNA at 23andme: who owns your genome? - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2008\/03\/social-dna-at-23andme-who-owns-your-genome.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Social DNA at 23andme: who owns your genome? - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"23andMe is a new personal genomics system that will have social features. 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