{"id":10534,"date":"2011-10-20T22:12:45","date_gmt":"2011-10-21T02:12:45","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=10534"},"modified":"2011-10-21T00:31:35","modified_gmt":"2011-10-21T04:31:35","slug":"is-gimme-my-damn-data-coming-to-radiology-at-last","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2011\/10\/is-gimme-my-damn-data-coming-to-radiology-at-last.html","title":{"rendered":"Is &#8220;Gimme my damn data&#8221; coming to radiology at last??"},"content":{"rendered":"<p>An essential aspect of participatory medicine &#8211; and Federal meaningful use criteria &#8211; is patients having a copy of their health data, so they can (a) understand it and (b) take it wherever they want. That includes radiology images.<\/p>\n<p>This is not a new issue here: three years ago our Jon Lebkowsky <a href=\"https:\/\/participatorymedicine.org\/epatients\/archives\/2008\/06\/doc-searls-patient-as-platform-and-point-of-integration.html\" target=\"_blank\">wrote here<\/a> about how internet visionary Doc Searls had a serious medical mishap, during which his ability to make a crucial decision was impaired because he couldn&#8217;t share his scans with another doctor.<\/p>\n<p>Now, the Radiology Society of North America (RSNA) has begun what appears to be a real consumer-based image sharing project. From the magazine <a href=\"http:\/\/www.diagnosticimaging.com\/practice-management\/content\/article\/113619\/1942700\" target=\"_blank\">Diagnostic Imaging<\/a>:<\/p>\n<blockquote><p>RSNA Image Share, the network designed to help patients take control of their medical images and reports, has enrolled its first patients,\u00a0Radiological Society of North America\u00a0officials said.<\/p>\n<p>The network was designed to facilitate access to imaging exams for patients and physicians, potentially reducing unnecessary examinations, minimizing patient radiation exposure, and enabling better informed medical decisions.<\/p><\/blockquote>\n<p>The full article lists the five hospitals that are participating in the project.<\/p>\n<p>Separate from this, I know of at least three systems that already\u00a0let you upload your images &#8211;<br \/>\n<!--more--><\/p>\n<ul>\n<li>iCloud <a href=\"http:\/\/icloudwebpacs.com\/\" target=\"_blank\">WebPACS<\/a><\/li>\n<li>HealthVault (<a href=\"https:\/\/www.youtube.com\/watch?v=84EgV27EaNM\" target=\"_blank\">3 minute YouTube<\/a> on how to do it)<\/li>\n<li>Merge Healthcare&#8217;s <a href=\"http:\/\/www.merge.com\/honeycomb.aspx\" target=\"_blank\">Project Honeycomb<\/a> (newly announced, not yet available)<\/li>\n<\/ul>\n<p>Anybody know of any others? Comment below. Any personal experiences?<\/p>\n<p><strong>A personal note: <\/strong><\/p>\n<p>My own hospital gives me &#8211; free &#8211; a CD of any radiology image I want. That&#8217;s awesome. BUT, it&#8217;s not the full resolution in their system, and the software they provide is pretty stinky: it looks like something developed in 1997 &#8211; hard to figure out, and clunky to use when you do figure it out.<\/p>\n<p>Why should the software be so out of date? Because we&#8217;ve never had the ability to (easily) use other software. I&#8217;ll predict that when we really can have our data &#8211; our families&#8217; scans &#8211; there will be a <em>ton <\/em>of new software, to help us see the data.<\/p>\n<p><strong>A guru&#8217;s view:<\/strong><\/p>\n<p>Fittingly, this brings us back to Doc Searls, who for years has been advocating VRM: Vendor Relationship Management, in which the <em>consumer<\/em> (you) is in control of relationships. It&#8217;s the opposite of CRM (customer relationship management), in which the vendor calls the shots. You can see why, after his encounter, he wrote about the <a href=\"http:\/\/www.diagnosticimaging.com\/practice-management\/content\/article\/113619\/1942700\" target=\"_blank\">patient as the point of integration<\/a> for the data.<\/p>\n<p><strong>A glimpse of the new ecosystem<\/strong><\/p>\n<p>Personally, I can almost taste it. It&#8217;s not here yet, but as a <em>lot <\/em>of\u00a0data starts to become free &#8211; when there are 100,000 consumers who <em>want <\/em>better software &#8211; developers will find a market for good software, and doctors will have a competitive reason to use it.\u00a0For the first time a real consumer-based ecosystem will start to arise, and the business of healthcare will veer toward the patient. And that&#8217;s a good thing.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>An essential aspect of participatory medicine &#8211; and Federal meaningful use criteria &#8211; is patients having a copy of their health data, so they can (a) understand it and (b) [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[21,367,2304],"tags":[],"coauthors":[],"class_list":["post-10534","post","type-post","status-publish","format-standard","hentry","category-e-ptsresources","category-medical-records","category-why-pm"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Is &quot;Gimme my damn data&quot; coming to radiology at last?? 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