{"id":110,"date":"2008-04-05T08:35:36","date_gmt":"2008-04-05T13:35:36","guid":{"rendered":"http:\/\/72.9.147.40\/archives\/2008\/04\/serial-referral-delays-are-harm.html"},"modified":"2008-04-05T08:35:36","modified_gmt":"2008-04-05T13:35:36","slug":"serial-referral-delays-are-harm","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2008\/04\/serial-referral-delays-are-harm.html","title":{"rendered":"Serial referral delays are harm"},"content":{"rendered":"<p>I want to introduce a term: &#8220;serial referral delays.&#8221;<\/p>\n<p>I assert that serial referral delays are harm, and they&#8217;re a metric we can track at any level from individual hospital to the entire nation or planet. First, a little discussion, then &#8220;how can we start?&#8221;:<\/p>\n<p><!--more--><br \/>\nAt Boston&#8217;s Beth Israel Deaconess, <a href=\"http:\/\/runningahospital.blogspot.com\/\">Paul Levy<\/a> is working diligently on instituting process changes that are already proven in industry to minimize errors and improve efficiency. <a href=\"http:\/\/runningahospital.blogspot.com\/2008\/04\/can-lord-darzi-get-it-done.html\">This morning<\/a> he notes that in the UK, surgeon Ara Darzi<\/a> has responsibility for reforming their health system, where costs have tripled in 11 years. (Chase the links there.)<\/p>\n<p>Perhaps because Lord Darzi has no government experience, he&#8217;s starting from the most fundamental questions, such as &#8220;Is the job getting done at all?&#8221;<\/p>\n<blockquote><p>\u201cIt is all obvious stuff, but we have never done it this way,\u201d admits Darzi. He says that the problem is that \u201cif you look at a journey of a patient, it&#8217;s fragmented. How do you integrate that care?\u201d He cites the example of a patient with kidney pain who is referred by a GP to a consultant and then sent for an X-ray on a different day, then back to the consultant for an initial assessment. \u201cIf you are shopping in Tesco you wouldn&#8217;t do that. You need to have access to competency at the time you need it.\u201d<\/p><\/blockquote>\n<p> Hooray for that!<\/p>\n<p>I rarely hear senior management talking about the anxiety caused by these delays, but patients sure do. And that&#8217;s not to mention the actual harm that can be caused by a condition progressing while waiting for care: harm.<\/p>\n<p>Managers like Paul are at work on reducing the delays, but there are a lot of mountains to be moved. Meanwhile, you and I are hung out to dry, unable to get care until the system gets around to it.<\/p>\n<p>Here&#8217;s the thing: <u>serial referral delays are a fundamental problem that arises in the model where healthcare is only accomplished by institutions whose time is scarce<\/u>. In the <strong>participatory model<\/strong>, patients don&#8217;t wait. Engaged with their peer communities, they can discuss symptoms, organize support, take steps, and even go somewhere else when they know they need something that their current provider can&#8217;t deliver.<\/p>\n<p>You can tell empowered, participatory patients because we don&#8217;t sit around being victims, we do something about it. <\/p>\n<ul>\n<li>First, we recognize &#8220;What&#8217;s going on here?? My care&#8217;s being delayed!&#8221;<\/li>\n<li>We say so, out loud, particularly looking for a feedback point at the care facility where we can say &#8220;This is not working. Unacceptable.&#8221;<\/li>\n<li>We mobilize ourselves and get support everywhere we can. We educate ourselves about our condition, including finding the latest news, particularly in peer communities such as ACOR (for cancer patients).<\/li>\n<li>When we deem it necessary, we simply go elsewhere when we can. Last fall a friend was told she needed a scan, but couldn&#8217;t get one for three weeks. She went elsewhere. Good thing she did, too &#8211; the scan revealed unexpected metastases, which were caught earlier.<\/li>\n<\/ul>\n<p>No kidding &#8211; referral delays are harm, especially serial delays.<\/p>\n<p>So now, medicos, how do we start?  What data exists that we could mine to establish the current state of things, and do you think we can track it easily going forward?<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>I want to introduce a term: &#8220;serial referral delays.&#8221; I assert that serial referral delays are harm, and they&#8217;re a metric we can track at any level from individual hospital [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[114],"tags":[],"coauthors":[8260],"class_list":["post-110","post","type-post","status-publish","format-standard","hentry","category-hcs-problem-list"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - 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