{"id":11472,"date":"2012-02-03T14:10:25","date_gmt":"2012-02-03T19:10:25","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=11472"},"modified":"2012-02-03T14:10:25","modified_gmt":"2012-02-03T19:10:25","slug":"what%e2%80%99s-your-health-care-dream","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2012\/02\/what%e2%80%99s-your-health-care-dream.html","title":{"rendered":"What\u2019s your health care dream?"},"content":{"rendered":"<p>&nbsp;<\/p>\n<div class=\"mceTemp mceIEcenter\" style=\"text-align: center;\">\n<dl id=\"attachment_11478\" class=\"wp-caption aligncenter\" style=\"width: 645px;\">\n<dt class=\"wp-caption-dt\"><a href=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2012\/02\/whatifhc.jpg\" data-rel=\"lightbox-image-0\" data-rl_title=\"\" data-rl_caption=\"\"><img loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-11478\" title=\"\" src=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2012\/02\/whatifhc.jpg\" alt=\"#whatifhc\" width=\"635\" height=\"85\" srcset=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2012\/02\/whatifhc.jpg 814w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2012\/02\/whatifhc-300x40.jpg 300w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2012\/02\/whatifhc-800x108.jpg 800w\" sizes=\"auto, (max-width: 635px) 100vw, 635px\" \/><\/a><\/dt>\n<dd class=\"wp-caption-dd\">#whatifhc in #TheWalkingGallery<\/dd>\n<\/dl>\n<\/div>\n<p>&nbsp;<\/p>\n<p><em>Note: This is two posts in one &#8212; scroll down to read Regina Holliday&#8217;s point of view.<\/em><\/p>\n<p><span style=\"text-decoration: underline;\"><strong>From <a href=\"http:\/\/www.pewinternet.org\/Experts\/Susannah-Fox.aspx\" target=\"_blank\">Susannah Fox<\/a>:<\/strong><\/span><\/p>\n<p>For me, Twitter is a free-wheeling space where people dance with ideas. Anyone is welcome to jump into the spotlight and take a twirl. That&#8217;s how I see hashtags \u2013 spotlights on circles of people, talking about certain ideas. Create a hashtag and you call the tune. Add a hashtag to your tweet and you join the circle.<\/p>\n<p>Over the last few days <a href=\"http:\/\/storify.com\/SusannahFox\/what-if-health-care\" target=\"_blank\">#whatifhc<\/a> (which stands for \u201cWhat if health care\u2026?\u201d) became a flashmob of dream-sharing, a pop-up forum for health care ideas, no matter how idealistic, grand, or granular.<\/p>\n<p>It started when I tweeted a quote from Peter Margolis of the <a href=\"http:\/\/c3nproject.org\/\" target=\"_blank\">C3N Project<\/a>:<\/p>\n<p style=\"padding-left: 30px;\">\u201cWhat if it was as easy to find out how to&#8230;find a medicine that\u2019s right for you as it is to order exactly the book you want?\u201d #c3n<\/p>\n<p>His colleague <a href=\"https:\/\/twitter.com\/#!\/michaelseid11\" target=\"_blank\">Michael Seid<\/a> tweeted back:<\/p>\n<p style=\"padding-left: 30px;\">\u201cnew hashtag? #whatifhc what if everyone had the means &amp; motivation to be part of the solution?\u201d<\/p>\n<p>I tweeted a few examples and the dancers began to whirl:<\/p>\n<p style=\"padding-left: 30px;\">@produceconsume: #Whatifhc was focused on health, not just on care?<!--more--><\/p>\n<p style=\"padding-left: 30px;\">@GoalsGamified: What if more Americans accepted that shopping at farmers market costs less than food courts in the long term. #preventionisthrift #whatifhc<\/p>\n<p style=\"padding-left: 30px;\">@cloudspark: what if we rewarded docs for choosing primary\/family\/internal medicine instead of specialties? #whatifhc<\/p>\n<p style=\"padding-left: 30px;\">@klimaz: #whatifhc people actually took the advice of public health: stop smoking, get outside, eat fresh food, reconnect with friends&#8230;<\/p>\n<p style=\"padding-left: 30px;\">@swertheimer: What if hospital bills showed actual costs? #whatifhc<\/p>\n<p style=\"padding-left: 30px;\">@meganhatch: What if looking at my medical information and records were as easy as checking my email? #whatifhc<\/p>\n<p>But a couple of people looked at #whatifhc and saw #wtfhc (\u201cWhat the f\u2026 health care?\u201d) in the jumble of letters. They heard a darker drumbeat, from a nightmare, not a dream.<\/p>\n<p style=\"padding-left: 30px;\">@ReginaHolliday: What if your husband was dying and they would not let you see a medical record w\/out paying 73 cents per page? #wtfhc<\/p>\n<p>And the dance continued, spinning out in two directions now.<\/p>\n<p><span style=\"text-decoration: underline;\"><strong>From <a href=\"http:\/\/reginaholliday.blogspot.com\/\" target=\"_blank\">Regina Holliday<\/a>:<\/strong><\/span><\/p>\n<p style=\"padding-left: 30px;\">Looking back on the memory of<\/p>\n<p style=\"padding-left: 30px;\">The dance we shared beneath the stars above<\/p>\n<p style=\"padding-left: 30px;\">For a moment all the world was right<\/p>\n<p style=\"padding-left: 30px;\">How could I have known you&#8217;d ever say goodbye<\/p>\n<p style=\"padding-left: 30px;\">And now I&#8217;m glad I didn&#8217;t know<\/p>\n<p style=\"padding-left: 30px;\">The way it all would end the way it all would go<\/p>\n<p style=\"padding-left: 30px;\">Our lives are better left to chance I could have missed the pain<\/p>\n<p style=\"padding-left: 30px;\">But I&#8217;d of had to miss the dance.<\/p>\n<p style=\"padding-left: 30px;\"><em>-Garth Brooks, The Dance<\/em><\/p>\n<p>Susannah is right. Twitter is a dance. We often stay wallflowers surrounding the space until a new song is played. A hashtag catches our eye allowing us the chance to meet new partners or reunite with old ones. When I saw #Whatifhc, my dyslexic mind and injured soul saw #Wtfhc. I blushed to use this tag, as I am not one to curse. It made me uncomfortable.\u00a0 What would people think?<\/p>\n<p>I suppose a lot of things in health care are uncomfortable.<\/p>\n<p>It is uncomfortable to lie on bedsores, whist in constant pain.\u00a0 It is uncomfortable to have a catheter placed.\u00a0 It is uncomfortable to be woken in the middle of the night because staff members think that is the best time to check your vitals.<\/p>\n<p>It is uncomfortable to gasp for breath while fluid to fills your lungs as you lay dying.<\/p>\n<p>I might have lost a few followers when I tweeted with this tag.\u00a0 I seemed the angry patient.\u00a0 I made them uncomfortable.<\/p>\n<p>I paint about this discomfort frequently.\u00a0 When you look upon <a href=\"http:\/\/reginaholliday.blogspot.com\/2011\/04\/walking-gallery.html\" target=\"_blank\">The Walking Gallery<\/a> you will see a great deal of #Whatifhc jackets.\u00a0 <a href=\"http:\/\/reginaholliday.blogspot.com\/2011\/06\/data-mote-jacket-for-susannah-fox.html\" target=\"_blank\">Susannah\u2019s jacket<\/a> is mostly a #Whatifhc interpretation.\u00a0 They are beautiful and hopeful, but you will see #Wtfhc jackets too.<\/p>\n<p>Perhaps when I post a jacket, I shall use these tags.\u00a0 Labeling each jacket with darkness and light.<\/p>\n<p>What if a day came when I only had to use just one tag? #whatifhc<\/p>\n<p>* * *<\/p>\n<p>What&#8217;s your health care dream? What&#8217;s your nightmare? Please add it in the comments below or join the dance on Twitter.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>&nbsp; #whatifhc in #TheWalkingGallery &nbsp; Note: This is two posts in one &#8212; scroll down to read Regina Holliday&#8217;s point of view. 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