{"id":12191,"date":"2012-05-03T09:29:30","date_gmt":"2012-05-03T13:29:30","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=12191"},"modified":"2012-05-03T09:45:53","modified_gmt":"2012-05-03T13:45:53","slug":"important-oncnehc-webinar-noon-et-the-patients-role-in-ehr-data-quality-spm-speaking","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2012\/05\/important-oncnehc-webinar-noon-et-the-patients-role-in-ehr-data-quality-spm-speaking.html","title":{"rendered":"Important ONC\/NeHC Webinar, noon ET &#8211; the Patient&#8217;s Role in EHR Data Quality (SPM speaking)"},"content":{"rendered":"<p>I should have announced this long ago but I&#8217;ve just been too busy for my own good. <a href=\"http:\/\/links.govdelivery.com\/track?type=click&amp;enid=ZWFzPTEmbWFpbGluZ2lkPTIwMTIwNTAyLjcyNjczNTEmbWVzc2FnZWlkPU1EQi1QUkQtQlVMLTIwMTIwNTAyLjcyNjczNTEmZGF0YWJhc2VpZD0xMDAxJnNlcmlhbD0xNjk3NTAzMSZlbWFpbGlkPWRhdmVAZXBhdGllbnRkYXZlLmNvbSZ1c2VyaWQ9ZGF2ZUBlcGF0aWVudGRhdmUuY29tJmZsPSZleHRyYT1NdWx0aXZhcmlhdGVJZD0mJiY=&amp;&amp;&amp;102&amp;&amp;&amp;https:\/\/www4.gotomeeting.com\/register\/937944495\" target=\"_blank\">Go register now!<\/a> FREE! Attendance is limited to 1,000. (It&#8217;ll be archived online of course.) Or click the graphic to register:<\/p>\n<p><a href=\"http:\/\/links.govdelivery.com\/track?type=click&amp;enid=ZWFzPTEmbWFpbGluZ2lkPTIwMTIwNTAyLjcyNjczNTEmbWVzc2FnZWlkPU1EQi1QUkQtQlVMLTIwMTIwNTAyLjcyNjczNTEmZGF0YWJhc2VpZD0xMDAxJnNlcmlhbD0xNjk3NTAzMSZlbWFpbGlkPWRhdmVAZXBhdGllbnRkYXZlLmNvbSZ1c2VyaWQ9ZGF2ZUBlcGF0aWVudGRhdmUuY29tJmZsPSZleHRyYT1NdWx0aXZhcmlhdGVJZD0mJiY=&amp;&amp;&amp;101&amp;&amp;&amp;https:\/\/www4.gotomeeting.com\/register\/937944495\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12192 alignnone\" title=\"ONC webinar banner\" src=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2012\/05\/ONC-webinar-banner-5-3-12.jpg\" alt=\"Click to register\" width=\"540\" height=\"211\" srcset=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2012\/05\/ONC-webinar-banner-5-3-12.jpg 673w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2012\/05\/ONC-webinar-banner-5-3-12-300x117.jpg 300w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2012\/05\/ONC-webinar-banner-5-3-12-600x234.jpg 600w\" sizes=\"auto, (max-width: 540px) 100vw, 540px\" \/><\/a><\/p>\n<p><strong>Why this matters: Data quality is important, and it&#8217;s <em>not <\/em>guaranteed.<\/strong><\/p>\n<p>As long-time readers (and members of our Society) know, the quality of the data in your medical record is important, and it&#8217;s often <em>not <\/em>well managed at all: it&#8217;s quite common for family to discover errors or omissions. \u00a0In some cases the mistakes can be lethal. The case for Patient Engagement is clear: do you know what&#8217;s in <em>your <\/em>record? \u00a0Someday a health worker may look in the record, and if the wrong info is there, harm could result.<\/p>\n<p>You could say: the good news is, medicine is finally computerizing. The bad news is, there might be grit in the database. Time to get to work and clean it up!<\/p>\n<p>Wonderfully, our current administration&#8217;s health IT people (ONC) get it, and are publicizing the issue.<!--more--><\/p>\n<p>One step is today&#8217;s webinar, &#8220;Keeping EHRs Error Free: The Value of Patient Engagement.&#8221; (I&#8217;m not sure I agree that &#8220;keeping&#8221; is the right word, but politics is politics &#8211; <em>you <\/em>know what you need to do!) \u00a0There&#8217;s a great roster of speakers:<\/p>\n<p><strong>FEATURING<\/strong><\/p>\n<ul>\n<li><strong>Erin Poetter\u00a0<\/strong>&#8211; Consumer e-Health Policy Analyst, Office of the National Coordinator for Health IT (ONC)<\/li>\n<li><strong>e-Patient Dave deBronkart\u00a0<\/strong>&#8211; Patient Advocate, co-chair, Society for Participatory Medicine<\/li>\n<li><strong>Prashila Dbullah\u00a0<\/strong>&#8211; Project Lead,\u00a0<a href=\"http:\/\/www.norc.org\/About\/Pages\/what-we-do.aspx\" target=\"_blank\">NORC<\/a>\u00a0at the University of Chicago (&#8220;social science research that supports informed decision making&#8221;)<\/li>\n<li><strong>Norman K. Sondheimer\u00a0<\/strong>&#8211; Co-Director of the Electronic Enterprise Institute (EEI), University of Massachusetts Amherst<\/li>\n<li><strong>Ethan Katsch*\u00a0<\/strong>&#8211; Professor of Legal Studies and Director, Center for Information Technology and Dispute Resolution (CITDR)<\/li>\n<li><strong>Kenneth Mandl\u00a0<\/strong>&#8211; Associate Professor at Harvard Medical School; Director of the Intelligent Health Laboratory at the Children&#8217;s Hospital Informatics Program<\/li>\n<\/ul>\n<p><em>*See footnote at bottom about &#8220;Katsch&#8221;<\/em><\/p>\n<p>I&#8217;m thrilled that ONC chose to <em>start <\/em>this webinar with the voice of SPM, to set the context for all that follows. Compare that to a few years ago, when the patient voice would be an afterthought if it appeared at all.<\/p>\n<p>Ethan&#8217;s a particularly interesting guy, to me. \u00a0I first met him in 2009, when the news broke about the mess I found in my insurance billing history, which ended up on the front page of the Boston <em>Globe<\/em>. Ethan was (is?) a patient at the same hospital, and, fascinatingly, he was also a world leader of the project &#8211; in <em>finance<\/em>\u00a0&#8211; to let consumers identify errors in their credit card statements.<\/p>\n<p>And get them fixed.<\/p>\n<p>So, if you look at online credit card statements, y&#8217;know the thing where it says &#8220;Inquire or dispute this item&#8221;? He led the work to define the global process for managing such inquiries: how you report them, how the data custodian has to respond, how it all gets resolved eventually.<\/p>\n<p>Well, now the same work is starting regarding our medical records. \u00a0Considering the many people who&#8217;ve told me they <em>can&#8217;t <\/em>get their errors fixed, this will be important work!<\/p>\n<p>During the prep for this I was also thrilled to learn that <strong>Children&#8217;s Hospital Boston (Ken Mandl)<\/strong> has been doing world-leading work to empower family feedback in maintaining the quality of the record. \u00a0For one thing, I didn&#8217;t know anyone was being this proactive about it. For another, I&#8217;ve been suspecting for more than a year that <em>parents of sick children <\/em>might be the most potent force for change in healthcare.<\/p>\n<p>So, listen in live, or view the archive. It&#8217;s important work, both technically and culturally, and of course for patient safety.<\/p>\n<p>&#8212; Oh, one more thing: unlike in finance, this is NOT just about the consumer&#8217;s rights to accurate data: this can seriously affect health workers, too. Have you ever had a situation in your job where somebody gave you wrong information, and something went wrong? Well, in healthcare that can cause a well trained person to cause harm, which is a horrible, horrible thing. <strong>Doctors and nurses deserve clean data, too.<\/strong><\/p>\n<p>Patients can help. Let patients help.<br \/>\n_______________<\/p>\n<p>* About Ethan Katsch &#8230; \u00a0make that <em>Katsh<\/em>, no c. \u00a0How perfect that the announcement of a data quality webinar would contain a typo&#8230;. and Ethan says he never got around to having them fix it, so I pasted it in here &#8211; <em>exactly <\/em>the way errors get perpetuated in our medical records.<\/p>\n<p>Ethan just learned again: fix it <em>now<\/em>, before someone passes it along to others. Bad data is an infectious disease.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>I should have announced this long ago but I&#8217;ve just been too busy for my own good. Go register now! FREE! Attendance is limited to 1,000. (It&#8217;ll be archived online [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[367,59,7],"tags":[],"coauthors":[],"class_list":["post-12191","post","type-post","status-publish","format-standard","hentry","category-medical-records","category-policy-issues","category-positive-patterns"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Important ONC\/NeHC Webinar, noon ET - the Patient&#039;s Role in EHR Data Quality (SPM speaking) - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2012\/05\/important-oncnehc-webinar-noon-et-the-patients-role-in-ehr-data-quality-spm-speaking.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Important ONC\/NeHC Webinar, noon ET - the Patient&#039;s Role in EHR Data Quality (SPM speaking) - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"I should have announced this long ago but I&#8217;ve just been too busy for my own good. 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