{"id":140,"date":"2008-05-19T14:01:41","date_gmt":"2008-05-19T19:01:41","guid":{"rendered":"http:\/\/72.9.147.40\/archives\/2008\/05\/consumers-talk-back-to-cnns-empowered-patient.html"},"modified":"2008-05-19T14:01:41","modified_gmt":"2008-05-19T19:01:41","slug":"consumers-talk-back-to-cnns-empowered-patient","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2008\/05\/consumers-talk-back-to-cnns-empowered-patient.html","title":{"rendered":"Consumers talk back to CNN’s Empowered Patient"},"content":{"rendered":"

For several informative empowered patient stories, see the Comments at bottom of this post.<\/i><\/p>\n

CNN\u2019s Empowered Patient column, by medical correspondent Elizabeth Cohen, contains good, if not groundbreaking, advice, plus the occasional exaggeration or misconception.<\/p>\n

For example, here on e-patients.net, Charlie Smith praised the Empowered Patient column on misdiagnosis<\/a>; Gilles Frydman dismantled the tips on \u201csavvy medical surfing<\/a>\u201d; and John Grohol critiqued the article about \u201chow to find a doctor online<\/a>.\u201d<\/p>\n

I think it is excellent that CNN allows reader comments, which are sometimes well-argued attacks on the content of the article. CNN also features a \u201cFrom the Blogs\u201d section, although the links are not always relevant since they are machine-generated. Bottom line, CNN is on the road to having a very good consumer resource on their site.<\/p>\n

However, it could be even better.<\/p>\n


\nLet\u2019s take the recent \u201c5 mistakes women make at the doctor’s office<\/a>.\u201d I don\u2019t love the title, but I understand the instinct to scare readers about their personal failings (see my own small role in \u201cLies Parents Tell Themselves About Why They Work<\/a>\u201d).<\/p>\n

Cohen opens with a story about a mom who was intimidated by doctors but screwed up her courage, identified a misdiagnosis of irritable bowel syndrome and got her daughter treated for ulcerative colitis. The empowered patient triumphs, right? Read on.<\/p>\n

Cohen goes on to list the 5 mistakes: women don\u2019t question doctors, tend to over-research, don\u2019t recognize gender bias, interpret their own symptoms, and don\u2019t trust their intuition.<\/p>\n

Here\u2019s where things get interesting. In the 24-hour period during which comments are accepted, more than 50 people offered their personal stories, observations, and wisdom.<\/p>\n

\u201cElle\u201d <\/strong>clarifies that it probably wasn\u2019t a misdiagnosis, but rather a too-generic one.<\/p>\n

\u201cMapslaura\u201d <\/strong>throws even more cold water when she writes:<\/p>\n

I am appalled that the new doctor removed the poor kid’s colon. I had ulcerative colitis as a teen. It was really painful and a difficult disease. However, after a lot a work I found meds that help and then diet. Diet was so important. By my mid-twenties things were so much better. By my forties my colon had healed so well you couldn’t find the scars anymore. Now in my 60s I have a pretty healthy IG tract. The second doctor’s treatment, in my opinion, was wrong, too extreme, and the girl will suffer other problems as she gets older.<\/p><\/blockquote>\n

\u201cJG, MD\u201d<\/strong> writes, \u201cIf there is no randomized study with evidence then this article is opinion and flawed. To say that these are “mistakes that women make” IS a statement that is biased against women. In my practice, men and woman make these mistakes equally. It is not a problem with gender. That is a generalization and a stereotype and cannot fit the behavior of all women or men.\u201d<\/p>\n

\u201cAnonymous\u201d <\/strong>writes, \u201cIt’s not helpful to say that women over-research AND should trust their intuition. Those are competing pieces of advice.\u201d<\/p>\n

Many comments echo the “I am woman, hear me roar” sentiment, however:<\/p>\n

\u201cKaren\u201d <\/strong>tells of a friend who pushed her doctor for the appropriate tests to confirm her suspicion that she had non-Hodgkins Lymphoma (after researching a persistent rash online).<\/p>\n

\u201cDebbie\u201d <\/strong>writes, \u201cInternet research is NOT a bad thing, especially when it comes to medications and side effects\u2026 Ladies, RESEARCH….ASK QUESTIONS…SEEK EXPERT HELP!! No one cares more about your well-being that YOU do!!<\/p>\n

\u201cCarol K\u201d<\/strong> writes about a doctor who, when asked about a treatment, responds by saying, \u201cWho has the degree, me or you?\u201d Her intuition led her to insist on a test which revealed a rare blood disorder.<\/p>\n

If the comments were still turned on, I would write that Pew Internet research does indeed support <\/a>the assertion that women are more likely than men to research health information online (and thanks for citing our research!). However, I take issue with Dr. Pamela Peeke<\/a>\u2019s observation that \u201cher female patients are more likely to become overwhelmed by what they read.\u201d In fact, we asked that exact question in a survey and found that there is NO difference between women and men:
\n
\nAt any point in your last search for health information online did you feel overwhelmed by the amount of information you found online?<\/p>\n

25% of internet users who have researched health information online said yes (26% of males; 25% of females)<\/strong><\/p>\n

(Methodology<\/a>: n=1,990 internet users surveyed by phone August 1-31, 2006)<\/em><\/p>\n

It\u2019s important to note that there were no differences between men and women for any of the following questions:<\/p>\n

\n74% of e-patients felt reassured <\/strong>that they could make appropriate health care decisions,<\/p>\n

56% say they felt confident <\/strong>to raise new questions or concerns about a health issue with their doctor<\/p>\n

56% say they felt relieved or comforted<\/strong> by the information they found online.<\/p>\n

51% say they felt eager to share<\/strong> their new health or medical knowledge with others.<\/p>\n

22% say they felt frustrated <\/strong>by a lack of information or an inability to find what they were looking for online.<\/p>\n

18% say they felt confused <\/strong>by the information they found online.<\/p>\n

10% say they felt frightened <\/strong>by the serious or graphic nature of the information they found online.\n<\/p><\/blockquote>\n

I hope that Elizabeth Cohen and CNN see reader comments for what I think they are \u2013improvements. What other improvements do you suggest?<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

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