{"id":14118,"date":"2013-01-21T23:07:52","date_gmt":"2013-01-22T04:07:52","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=14118"},"modified":"2013-01-21T23:07:52","modified_gmt":"2013-01-22T04:07:52","slug":"1-million-va-patients-can-now-access-their-complete-health-record","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2013\/01\/1-million-va-patients-can-now-access-their-complete-health-record.html","title":{"rendered":"1 Million VA Patients Can Now Access Their Complete Health Record"},"content":{"rendered":"<p>This weekend is momentous not only for the 2nd inauguration of the President. History will say the Veterans Health Administration is innovative, truly patient centered and even a bit risky. Today, VA patients can view, print and download ALL their health record data in their My HealtheVet personal health record. It&#8217;s the time when veterans can see clinic notes and test results \u2013<em> from their couch<\/em>.<\/p>\n<p>The full record data is available via the Blue Button. In 2010, the White House announced the <a href=\"http:\/\/www.whitehouse.gov\/blog\/2010\/10\/07\/blue-button-provides-access-downloadable-personal-health-data\" target=\"_blank\">Blue Button<\/a>, lead by open data gurus Peter Levin, Todd Park and Aneesh Chopra. I tend to think of Blue Button as a <em>door<\/em>, allowing information to come out of a locked room (the record). Some think Blue Button means they get their entire record, but that\u2019s not necessarily the case. It depends on how much the health system lets out.<\/p>\n<p>The phenomenal thing about the VA is the sheer amount of information available:<\/p>\n<ul>\n<li>VA Demographics<a href=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2013\/01\/02_BlueButton_Logo_WhiteBG_300dpi_2000x667.jpg\" data-rel=\"lightbox-image-0\" data-rl_title=\"\" data-rl_caption=\"\" title=\"\"><img loading=\"lazy\" decoding=\"async\" class=\"alignright size-medium wp-image-14124\" src=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2013\/01\/02_BlueButton_Logo_WhiteBG_300dpi_2000x667-300x100.jpg\" alt=\"\" width=\"300\" height=\"100\" srcset=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2013\/01\/02_BlueButton_Logo_WhiteBG_300dpi_2000x667-300x100.jpg 300w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2013\/01\/02_BlueButton_Logo_WhiteBG_300dpi_2000x667-1024x341.jpg 1024w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2013\/01\/02_BlueButton_Logo_WhiteBG_300dpi_2000x667-800x267.jpg 800w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2013\/01\/02_BlueButton_Logo_WhiteBG_300dpi_2000x667.jpg 2000w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><\/li>\n<li>VA Problem List (active problems)<\/li>\n<li>VA Admissions and Discharges (Discharge Summaries)<\/li>\n<li>VA Notes (Progress Notes)<\/li>\n<li>VA Laboratory Results: (adds Microbiology)<\/li>\n<li>VA Vitals and Readings<\/li>\n<li>VA Pathology Reports: (Surgical Pathology, Cytology, Electron Microscopy)<\/li>\n<li>VA Radiology Reports<\/li>\n<li>VA Electrocardiogram (EKG) Reports (list of studies)<\/li>\n<li>VA Continuity of Care Document (CCD, standard sharable .xml file)<\/li>\n<\/ul>\n<p>See that fourth bullet? Notes! Actual doctor notes! Game change! For patients, caregivers and for the healthcare team and administrators. VA joins the ranks of <a href=\"http:\/\/www.myopennotes.org\/\" target=\"_blank\">OpenNotes<\/a> &#8211; frequently discussed on this blog and an essential movement to get us to New. Medicine. Now.<\/p>\n<p><!--more-->I haven\u2019t looked under every rock, but I suspect VA becomes the system offering the greatest number of people the most <em>complete access<\/em> to their electronic record. Now, about 997,000 Veterans have capability to access <em>all their data.<\/em> <strong><\/strong><\/p>\n<p><strong>A million veteran march toward participatory care. <\/strong><\/p>\n<p>There&#8217;s more information about VA Blue Button <a href=\"http:\/\/www.va.gov\/bluebutton\" target=\"_blank\">on their website<\/a>, and an example of text <a href=\"http:\/\/www.va.gov\/BLUEBUTTON\/docs\/VA_My_HealtheVet_Blue_Button_Sample_Version_12_3.txt\" target=\"_blank\">output<\/a> (PDF posted soon). Many will say it\u2019s text-heavy, confusing and not user-friendly. I say: the door is wide open, the room is filled, and we&#8217;re ready to design new ways to give consumers\/patients their own health information in the most meaningful way.<\/p>\n<p>On this lovely holiday weekend, the words of MLK ring true as applied to health care:<\/p>\n<blockquote><p><strong>\u201cFaith is taking the first step even when you can&#8217;t see the whole staircase.\u201d <\/strong>\u2013 Martin Luther King Jr.<\/p><\/blockquote>\n<p>Congratulations to all the VA staff, developers and leaders &#8212; for walking up those grand stairs.<\/p>\n<p><em>Disclosure<\/em>: views are solely the author&#8217;s and should not be attributed to any organization or agency.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>This weekend is momentous not only for the 2nd inauguration of the President. History will say the Veterans Health Administration is innovative, truly patient centered and even a bit risky. 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