{"id":14556,"date":"2013-04-02T12:16:54","date_gmt":"2013-04-02T16:16:54","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=14556"},"modified":"2013-04-02T12:30:36","modified_gmt":"2013-04-02T16:30:36","slug":"anniversary-of-a-health-data-earthquake","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2013\/04\/anniversary-of-a-health-data-earthquake.html","title":{"rendered":"Anniversary of a health data earthquake"},"content":{"rendered":"

Four years ago this week, e-Patient Dave published, “Imagine someone had been managing your data, and then you looked<\/a>,” and forever changed the national conversation about health data. I have described that post as an earthquake — a surprise to those who were not looking for signs and indicators of trouble, not a surprise to those who listen and learn from patients. If you’re new around here, read the post and skim the 175 (!!) comments to get an idea of its impact.<\/em><\/p>\n

I’d like to honor the anniversary by raising some new questions about health data in this cross-post from my personal blog<\/a>:<\/em><\/p>\n

Who provides the fuel for the health data fire? Hint: Look in the mirror.<\/strong><\/p>\n

“If\u00a0iron ore was the raw material that enriched the steel baron Andrew Carnegie in the Industrial Age, personal data is what fuels the barons of the Internet age.” – a line from Somini Sengupta’s article in the Sunday\u00a0New York Times<\/em>, “Letting Down Our Guard With Web Privacy<\/a>.”<\/p>\n

I think personal data is fueling health innovation, which is why I hope Sengupta’s article is\u00a0widely read in the health world. Who are the barons in the new health care enterprise? Who are the serfs? What assumptions are being made and what choices do people have about their health data — and are they aware of them?<\/p>\n

In the article, Sengupta profiles\u00a0Alessandro Acquisti<\/a>, a behavioral economist who\u00a0sees himself as an\u00a0“observer holding up a mirror to the flaws we cannot always see ourselves” (ditto, and in my view, research can also be\u00a0a window<\/a>).<\/p>\n

What can we learn by looking in Acquisti’s mirror? An excerpt from the article:<\/p>\n

Our browsing habits, search terms, e-mail communication \u2014 even our offering of our ZIP codes at the supermarket checkout \u2014 reveal bits of information that can be assembled by data companies, usually for the purpose of knowing what sorts of products we\u2019re most likely to buy. The online advertising industry insists that the data is scrambled to make it impossible to identify individuals.<\/p>\n

Mr. Acquisti offers a sobering counterpoint. In 2011, he took snapshots with a webcam of nearly 100 students on campus. Within minutes, he had identified about one-third of them using facial recognition software. In addition, for about a fourth of the subjects whom he could identify, he found out enough about them on Facebook to guess at least a portion of their Social Security numbers.<\/p>\n

The point of the experiment was to show how easy it is to identify people from the rich trail of data they scatter around the Web, including seemingly harmless pictures. Facebook can be especially valuable for identity thieves, particularly when a user\u2019s birth date is visible to the public.<\/p>\n

Does that mean Facebook users should lie about their birthdays (and break Facebook\u2019s terms of service)? Mr. Acquisti demurred. He would say only that there are \u201ccomplex trade-offs\u201d to be made.<\/p>\n

Indeed. I have heard about complex trade-offs before — and I bet you have, too.<\/p>\n

What would you trade for a chance to\u00a0discover whether a new drug will work for you<\/a>\u00a0or your loved one? What would you trade for a chance to\u00a0contribute to an experiment<\/a>\u00a0that could improve your life? What data would you\u00a0share for the greater good<\/a>, even if there was no direct benefit to you?<\/p>\n

Use of aggregated — or highly-identifiable, personal — data is not all done with nefarious intent. It can, in fact, be life-saving. But who holds the power when you face those choices? What are the patterns of behavior for the old way of doing things? How can people learn how to\u00a0contribute in new ways<\/a>\u00a0to health research? What would happen if patients were able to\u00a0fact-check their records<\/a>\u00a0and improve the data fueling innovation?<\/p>\n

Join me in reading the\u00a0article\u00a0<\/a>and thinking through these issues. Check out additional resources related to the\u00a0effects of sharing and exposing personal information<\/a>, curated by William Gunn and others. Please post observations and questions in the comments.<\/p>\n

Note: I don’t want to lose the great insights that Nick Dawson and e-Patient Dave already wrote in the comments on my personal blog, so I’m pasting them here:<\/em><\/p>\n

Nick:<\/p>\n

My first thought, with articles like Ms. Sengupta\u2019s, particularly when couched in the language of your first few paragraphs, is to be part of the voice heralding in the new age of consumerism. More data in the hands of patients, to me, signals a change in the traditional doctor patient relationship. Maybe we should start by calling it a patient doctor relationship.<\/p>\n

But this is deeper. Sengupta\u2019s article and your post point to something more meaningful and widespread: the acceptance and promotion of vulnerability as a positive trait. Giving up data also means relinquishing fears about what the data reveals. Arrest records, shopping habits, health data \u2014often (not always) we guard those things against the judgement of others. What happens when we let down those guards in favor of feedback, scientific and societal advancement or shared decision making?<\/p>\n

Dave:<\/p>\n

I love behavioral economics. Kahneman\u2019s epic\u00a0Thinking, Fast and Slow<\/i>\u00a0is mandatory reading, I think, for anyone who wants to fully grasp the gulf between what people honestly think they want and what they do. it\u2019s not just stupidity or hypocrisy; Kahneman and his partner Tvesky formally established the mechanisms by which the mind loses its grip and does something other than it honestly believes it\u2019s doing. Without comprehending this we have little chance of creating policies that have a snowball\u2019s chance.
\n____________<\/p>\n

I\u2019d hoped to post something about\u00a0my own data post<\/a>, to which you linked \u2013 it appeared four years ago today. Boy, how the world of health IT has changed since THEN: the ARRA\/HITECH incentives had just come on the scene, the words \u201cmeaningful use\u201d had barely been signed into law\u2026<\/p>\n

\u2026 And people were\u00a0awfully<\/i>\u00a0naive about data, at least in health IT. Some were foolishly naive, unaware, clueless but acting confident; others were just charmingly innocent. As far as I can tell, that\u2019s the WHOLE reason people were so shocked about my post: they were naive about things that are routine to data geeks who actually get their hands dirty with the stuff.<\/p>\n

Here\u2019s an anti-naivete tip: it\u2019s a big mistake to take data created in one context and read it back in another. That\u2019s what happened in my case four years ago: data recorded for insurance purposes was read back as clinical data. It gave a catastrophically wrong impression. And people were amazed.<\/p>\n

If I can, then, take a different tack on your post: you mentioned data fueling innovation; yes, data is fuel, data is combustible. It can be powerful, but if it\u2019s contaminated it can wreck your engine,and if it\u2019s mishandled it can blow up in your face. In my famous case the data was both dirty and mishandled.<\/p>\n

I hope I\u2019m not stretching it when I say that like medicine itself, data can work miracles; but if we expect miracles just because it CAN do miracles, we are naive. We can get really disappointed, and when things go wrong people can get upset. Mix that with the illusions going on in our earnest minds, and it\u2019s a setup for disconnect.<\/p>\n

 <\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Four years ago this week, e-Patient Dave published, “Imagine someone had been managing your data, and then you looked,” and forever changed the national conversation about health data. I have […]<\/p>\n","protected":false},"author":29,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[35,367,2],"tags":[6356,6344,6350,6357,5605,545,6335,176,1257,417,6346,5797,6349,6336,6342,1420,6340,201,2218,4165,115,6351,6348,6339,6345,6347,6343],"coauthors":[],"class_list":["post-14556","post","type-post","status-publish","format-standard","hentry","category-key-people","category-medical-records","category-trendsprinciples","tag-alessandro-acquisti","tag-andrew-carnegie","tag-barons","tag-behavioral-economics","tag-behavioral-health","tag-cross-post","tag-data-fire","tag-e-mail","tag-e-patient-dave","tag-health-data","tag-health-world","tag-internet-age","tag-iron-ore","tag-look-in-the-mirror","tag-mail-communication","tag-national-conversation","tag-new-health-care","tag-new-york-times","tag-personal-blog","tag-personal-data","tag-privacy","tag-search-mail","tag-serfs","tag-somini-sengupta","tag-steel-baron","tag-sunday-new-york-times","tag-supermarket-checkout"],"yoast_head":"\nAnniversary of a health data earthquake - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2013\/04\/anniversary-of-a-health-data-earthquake.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Anniversary of a health data earthquake - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"Four years ago this week, e-Patient Dave published, “Imagine someone had been managing your data, and then you looked,” and forever changed the national conversation about health data. I have […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/participatorymedicine.org\/epatients\/2013\/04\/anniversary-of-a-health-data-earthquake.html\" \/>\n<meta property=\"og:site_name\" content=\"SPM Blog\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/participatorymedicine\" \/>\n<meta property=\"article:published_time\" content=\"2013-04-02T16:16:54+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2013-04-02T16:30:36+00:00\" \/>\n<meta name=\"author\" content=\"Susannah Fox\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@s4pm\" \/>\n<meta name=\"twitter:site\" content=\"@s4pm\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Susannah Fox\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"6 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2013\\\/04\\\/anniversary-of-a-health-data-earthquake.html#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2013\\\/04\\\/anniversary-of-a-health-data-earthquake.html\"},\"author\":{\"name\":\"Susannah Fox\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/person\\\/a9cfc60ac142a83295d74c8bb0f46958\"},\"headline\":\"Anniversary of a health data earthquake\",\"datePublished\":\"2013-04-02T16:16:54+00:00\",\"dateModified\":\"2013-04-02T16:30:36+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2013\\\/04\\\/anniversary-of-a-health-data-earthquake.html\"},\"wordCount\":1233,\"commentCount\":13,\"publisher\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#organization\"},\"keywords\":[\"Alessandro Acquisti\",\"Andrew Carnegie\",\"Barons\",\"behavioral economics\",\"Behavioral Health\",\"Cross Post\",\"Data Fire\",\"e-mail\",\"E-Patient Dave\",\"Health Data\",\"Health World\",\"Internet Age\",\"Iron Ore\",\"Look In The Mirror\",\"Mail Communication\",\"National Conversation\",\"New Health Care\",\"New York Times\",\"Personal Blog\",\"personal data\",\"privacy\",\"Search Mail\",\"Serfs\",\"Somini Sengupta\",\"Steel Baron\",\"Sunday New York Times\",\"Supermarket Checkout\"],\"articleSection\":[\"Key People\",\"Medical Records\",\"Trends & Principles\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2013\\\/04\\\/anniversary-of-a-health-data-earthquake.html#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2013\\\/04\\\/anniversary-of-a-health-data-earthquake.html\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2013\\\/04\\\/anniversary-of-a-health-data-earthquake.html\",\"name\":\"Anniversary of a health data earthquake - SPM Blog\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#website\"},\"datePublished\":\"2013-04-02T16:16:54+00:00\",\"dateModified\":\"2013-04-02T16:30:36+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2013\\\/04\\\/anniversary-of-a-health-data-earthquake.html#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2013\\\/04\\\/anniversary-of-a-health-data-earthquake.html\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2013\\\/04\\\/anniversary-of-a-health-data-earthquake.html#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Anniversary of a health data earthquake\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#website\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/\",\"name\":\"SPM Blog\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#organization\",\"name\":\"Society for Participatory Medicine\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2017\\\/06\\\/spm-logo-13.png\",\"contentUrl\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2017\\\/06\\\/spm-logo-13.png\",\"width\":971,\"height\":269,\"caption\":\"Society for Participatory Medicine\"},\"image\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/www.facebook.com\\\/participatorymedicine\",\"https:\\\/\\\/x.com\\\/s4pm\"]},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/person\\\/a9cfc60ac142a83295d74c8bb0f46958\",\"name\":\"Susannah Fox\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/2e0bf6174d37b6d1cc2bf766de22eed20a5d039ac57fc86628114f9c7035666e?s=96&d=mm&r=g6aee0dcd3e96f31c315fbf2ad35ae2f3\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/2e0bf6174d37b6d1cc2bf766de22eed20a5d039ac57fc86628114f9c7035666e?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/2e0bf6174d37b6d1cc2bf766de22eed20a5d039ac57fc86628114f9c7035666e?s=96&d=mm&r=g\",\"caption\":\"Susannah Fox\"},\"description\":\"Susannah Fox is the Entrepreneur in Residence at the Robert Wood Johnson Foundation. She has contributed to this blog since its inception. Follow her on Twitter: @SusannahFox\",\"sameAs\":[\"http:\\\/\\\/www.susannahfox.com\"],\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/author\\\/susannah-fox\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Anniversary of a health data earthquake - SPM Blog","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/participatorymedicine.org\/epatients\/2013\/04\/anniversary-of-a-health-data-earthquake.html","og_locale":"en_US","og_type":"article","og_title":"Anniversary of a health data earthquake - SPM Blog","og_description":"Four years ago this week, e-Patient Dave published, “Imagine someone had been managing your data, and then you looked,” and forever changed the national conversation about health data. I have […]","og_url":"https:\/\/participatorymedicine.org\/epatients\/2013\/04\/anniversary-of-a-health-data-earthquake.html","og_site_name":"SPM Blog","article_publisher":"https:\/\/www.facebook.com\/participatorymedicine","article_published_time":"2013-04-02T16:16:54+00:00","article_modified_time":"2013-04-02T16:30:36+00:00","author":"Susannah Fox","twitter_card":"summary_large_image","twitter_creator":"@s4pm","twitter_site":"@s4pm","twitter_misc":{"Written by":"Susannah Fox","Est. reading time":"6 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/participatorymedicine.org\/epatients\/2013\/04\/anniversary-of-a-health-data-earthquake.html#article","isPartOf":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2013\/04\/anniversary-of-a-health-data-earthquake.html"},"author":{"name":"Susannah Fox","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/a9cfc60ac142a83295d74c8bb0f46958"},"headline":"Anniversary of a health data earthquake","datePublished":"2013-04-02T16:16:54+00:00","dateModified":"2013-04-02T16:30:36+00:00","mainEntityOfPage":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2013\/04\/anniversary-of-a-health-data-earthquake.html"},"wordCount":1233,"commentCount":13,"publisher":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#organization"},"keywords":["Alessandro Acquisti","Andrew Carnegie","Barons","behavioral economics","Behavioral Health","Cross Post","Data Fire","e-mail","E-Patient Dave","Health Data","Health World","Internet Age","Iron Ore","Look In The Mirror","Mail Communication","National Conversation","New Health Care","New York Times","Personal Blog","personal data","privacy","Search Mail","Serfs","Somini Sengupta","Steel Baron","Sunday New York Times","Supermarket Checkout"],"articleSection":["Key People","Medical Records","Trends & Principles"],"inLanguage":"en-US","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/participatorymedicine.org\/epatients\/2013\/04\/anniversary-of-a-health-data-earthquake.html#respond"]}]},{"@type":"WebPage","@id":"https:\/\/participatorymedicine.org\/epatients\/2013\/04\/anniversary-of-a-health-data-earthquake.html","url":"https:\/\/participatorymedicine.org\/epatients\/2013\/04\/anniversary-of-a-health-data-earthquake.html","name":"Anniversary of a health data earthquake - SPM Blog","isPartOf":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#website"},"datePublished":"2013-04-02T16:16:54+00:00","dateModified":"2013-04-02T16:30:36+00:00","breadcrumb":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2013\/04\/anniversary-of-a-health-data-earthquake.html#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/participatorymedicine.org\/epatients\/2013\/04\/anniversary-of-a-health-data-earthquake.html"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/participatorymedicine.org\/epatients\/2013\/04\/anniversary-of-a-health-data-earthquake.html#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/participatorymedicine.org\/epatients\/"},{"@type":"ListItem","position":2,"name":"Anniversary of a health data earthquake"}]},{"@type":"WebSite","@id":"https:\/\/participatorymedicine.org\/epatients\/#website","url":"https:\/\/participatorymedicine.org\/epatients\/","name":"SPM Blog","description":"","publisher":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/participatorymedicine.org\/epatients\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/participatorymedicine.org\/epatients\/#organization","name":"Society for Participatory Medicine","url":"https:\/\/participatorymedicine.org\/epatients\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/","url":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png","contentUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png","width":971,"height":269,"caption":"Society for Participatory Medicine"},"image":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/participatorymedicine","https:\/\/x.com\/s4pm"]},{"@type":"Person","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/a9cfc60ac142a83295d74c8bb0f46958","name":"Susannah Fox","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/secure.gravatar.com\/avatar\/2e0bf6174d37b6d1cc2bf766de22eed20a5d039ac57fc86628114f9c7035666e?s=96&d=mm&r=g6aee0dcd3e96f31c315fbf2ad35ae2f3","url":"https:\/\/secure.gravatar.com\/avatar\/2e0bf6174d37b6d1cc2bf766de22eed20a5d039ac57fc86628114f9c7035666e?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/2e0bf6174d37b6d1cc2bf766de22eed20a5d039ac57fc86628114f9c7035666e?s=96&d=mm&r=g","caption":"Susannah Fox"},"description":"Susannah Fox is the Entrepreneur in Residence at the Robert Wood Johnson Foundation. She has contributed to this blog since its inception. Follow her on Twitter: @SusannahFox","sameAs":["http:\/\/www.susannahfox.com"],"url":"https:\/\/participatorymedicine.org\/epatients\/author\/susannah-fox"}]}},"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/p8S1TQ-3MM","jetpack-related-posts":[],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/14556","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/users\/29"}],"replies":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/comments?post=14556"}],"version-history":[{"count":16,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/14556\/revisions"}],"predecessor-version":[{"id":14572,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/14556\/revisions\/14572"}],"wp:attachment":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/media?parent=14556"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/categories?post=14556"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/tags?post=14556"},{"taxonomy":"author","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/coauthors?post=14556"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}