{"id":14657,"date":"2013-05-01T14:24:53","date_gmt":"2013-05-01T18:24:53","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=14657"},"modified":"2013-05-01T14:26:26","modified_gmt":"2013-05-01T18:26:26","slug":"how-things-change","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2013\/05\/how-things-change.html","title":{"rendered":"How Things Change"},"content":{"rendered":"<p>SPM member Jody Schoger&#8217;s post \u201cCancer: Part Two\u201d at her blog\u00a0<a href=\"http:\/\/womenwcancer.blogspot.com\/\" target=\"_blank\">Women with Cancer<\/a>\u00a0landed with a big thud on April 26. Schoger was recently diagnosed with metastatic breast cancer. She\u2019s a co-founder of\u00a0<a href=\"http:\/\/www.symplur.com\/healthcare-hashtags\/bcsm\/\" target=\"_blank\">#bcsm<\/a>\u00a0(breast cancer social media), one of the highest rated\u00a0Tweetchats with almost 6,000 tweets per month.<\/p>\n<p>In less than two years the group has gained so much momentum that it has branched into other media. Dan Munro discussed the #bcsm phenomenon in\u00a0<a href=\"http:\/\/forbes.com\/\" target=\"_blank\">Forbes.com<\/a>\u00a0in March. \u201cWhat\u00a0#BCSM does exemplify\u2026is\u00a0how to be open, direct and cut through the layers of healthcare bureaucracies we\u2019ve spent decades building,\u201d he wrote.<\/p>\n<p>In an email to me Schoger said \u201cTo be empowered and engaged&#8230;means I know what to do now that this has occurred. \u00a0I know how to navigate and who has my back.&#8221;\u00a0\u00a0Schoger is one of the 150,000 American women previously treated for early stage breast cancer who are now living with metastatic breast cancer, which is the only fatal kind. \u201cIt can occur 5, 10,\u00a015 or even 20 years after a person\u2019s original diagnosis,\u201d according to the\u00a0<a href=\"http:\/\/mbcnbuzz.wordpress.com\/\" target=\"_blank\">Metastatic Breast Cancer Network<\/a>.<\/p>\n<p>In Forbes, Munro\u00a0quoted Schoger as saying<\/p>\n<blockquote><p>#BCSM is true grass roots effort&#8230;We have absolutely no intention of reinventing the breast cancer wheel or duplicating the work of other breast cancer organizations. But\u00a0<b>we have every intention of reshaping how social media can be used to empower women affected by cancer.<\/b><i>\u00a0(emphasis mine)<\/i><\/p><\/blockquote>\n<p>Symplur measured\u00a0<a href=\"http:\/\/www.symplur.com\/healthcare-hashtags\/BCSM\/analytics\/?hashtag=BCSM&amp;fdate=04-29-2013&amp;shour=18&amp;smin=00&amp;tdate=04-29-2013&amp;thour=19&amp;tmin=15&amp;ssec=00&amp;tsec=00&amp;img=1#allparticipants\" target=\"_blank\">2.6 million impressions<\/a>\u00a0resulting from #bcsm April 29. Participants in the rapid-paced tweetchat were sad, angry and more focused than ever.<\/p>\n<p>Schoger\u2019s most recent post starts this way:<\/p>\n<blockquote><p>Friday, April 26, 2013<\/p>\n<p><b><a href=\"http:\/\/womenwcancer.blogspot.com\/2013\/04\/cancer-round-two.html\" target=\"_blank\">Cancer: Round Two<\/a><\/b><\/p>\n<p>This is how things change.<\/p>\n<p>On Tuesday, April 9 we celebrate DH&#8217;s (darling husband&#8217;s) birthday with an extravagant dinner with friends at our favorite restaurant. We make happy noises about the food and pass around bites so rich it is absurd to even contemplate their arterial impact. We simply go with the moment and taste everything.<\/p>\n<p>The next day I&#8217;m at MD Anderson for my yearly visit to the survivorship clinic. This will mark &#8211; let&#8217;s celebrate anyway &#8211; my 15th cancer-free year. \u00a0The mammogram shows an anomaly. \u00a0We take another view. The second shot is inconclusive. \u00a0My nurse practitioner meets me in the exam room and says, &#8220;I don&#8217;t want to alarm you, but we need to get another an ultrasound to make sure it&#8217;s benign.&#8221;<\/p>\n<p>I&#8217;m not alarmed. Lobular breast cancer, which affects approximately 10 percent of all breast cancer cases, does not image well. \u00a0Never has, never will. \u00a0It&#8217;s sneaky. The cells line up in a single file instead of clustering to form a mass.<\/p><\/blockquote>\n<p>Read the rest of <a title=\"Jody Schoger - Cancer Round Two \" href=\"http:\/\/womenwcancer.blogspot.com\/2013\/04\/cancer-round-two.html\" target=\"_blank\">this blog post<\/a> at Schoger&#8217;s blog.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>SPM member Jody Schoger&#8217;s post \u201cCancer: Part Two\u201d at her blog\u00a0Women with Cancer\u00a0landed with a big thud on April 26. Schoger was recently diagnosed with metastatic breast cancer. She\u2019s a co-founder of\u00a0#bcsm\u00a0(breast cancer social media), one of the highest rated\u00a0Tweetchats with almost 6,000 tweets per month. In less than two years the group has gained [&hellip;]<\/p>\n","protected":false},"author":54,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false}}},"categories":[21,171,35,4,208],"tags":[66,6513,6514,5300,264,6501,6502,6510,9,5348,6507,6516,6508,8,6509,6515,6505,6504,6512,169,1844,6503,6511,6506,488,276],"coauthors":[],"jetpack_publicize_connections":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>How Things Change - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2013\/05\/how-things-change.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"How Things Change - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"SPM member Jody Schoger&#8217;s post \u201cCancer: Part Two\u201d at her blog\u00a0Women with Cancer\u00a0landed with a big thud on April 26. 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