{"id":15146,"date":"2013-08-16T10:00:00","date_gmt":"2013-08-16T14:00:00","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=15146"},"modified":"2013-08-13T14:03:55","modified_gmt":"2013-08-13T18:03:55","slug":"resources-for-health-literacy","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2013\/08\/resources-for-health-literacy.html","title":{"rendered":"Resources for health literacy"},"content":{"rendered":"<div style=\"width: 234px\" class=\"wp-caption alignright\"><img loading=\"lazy\" decoding=\"async\" title=\"Kathy Kastner\" alt=\"\" src=\"http:\/\/t3.gstatic.com\/images?q=tbn:ANd9GcSCZooJndckc8Ehy-lhBKbGC6gcEn0oCSFsACpHjPIEax61CfnvCQ\" width=\"224\" height=\"225\" \/><p class=\"wp-caption-text\">Kathy Kastner<\/p><\/div>\n<p><em>Guest blogger Kathy Kastner gives us an overview of the health literacy resources on the Internet.\u00a0It is an important topic \u2013 how can patients be engaged and participatory if they don\u2019t understand what they are told? Kathy Kastner is Blogger and Curator for\u00a0<a title=\"Kathy Kastner's blog - Best Endings\" href=\"http:\/\/bestendings.com\/\" target=\"_blank\">bestendings.com\u00a0<\/a>and\u00a0<a title=\"Kathy Kastner's blog Ability for Life\" href=\"http:\/\/ability4life.com\/\" target=\"_blank\">ability4life.com<\/a><\/em><\/p>\n<p>Health literacy fascinates me because it&#8217;s so much more than writing for a specific grade (3,5,8 )level. It&#8217;s context and interpretation, layout and font size (in print), and tone and body language (in person)<\/p>\n<p>The American Medical Association has a terrific<a title=\"AMA video on health literacy\" href=\"http:\/\/www.ama-assn.org\/\/ama\/pub\/about-ama\/ama-foundation\/our-programs\/public-health\/health-literacy-program\/health-literacy-video.page \" target=\"_blank\"> video<\/a>,&#8217; You can&#8217;t tell by looking&#8217; <a href=\"http:\/\/www.ama-assn.org\/\/ama\/pub\/about-ama\/ama-foundation\/our-programs\/public-health\/health-literacy-program\/health-literacy-video.page\" target=\"_blank\">http:\/\/www.ama-assn.org\/\/ama\/pub\/about-ama\/ama-foundation\/our-programs\/public-health\/health-literacy-program\/health-literacy-video.page<\/a> (alert Facebook Group: &#8216;But you don&#8217;t look sick&#8217;)<!--more--><\/p>\n<p>The Harvard School of Public Health {<a href=\"http:\/\/www.hsph.harvard.edu\/healthliteracy\/practice\/innovative-actions\/\" target=\"_blank\">http:\/\/www.hsph.harvard.edu\/healthliteracy\/practice\/innovative-actions\/<\/a>} has a <a title=\"Harvard School of Public Health list of health literacy assessment tools\" href=\"http:\/\/www.hsph.harvard.edu\/healthliteracy\/practice\/innovative-actions\/\" target=\"_blank\">list of print assessment tools <\/a>&#8211; including the SAM Score from early health literacy innovators, Len and Ceci Doak, who wrote the classic text: <a title=\"Harvard School of Public Health Teaching patients with low literacy skills\" href=\"http:\/\/www.hsph.harvard.edu\/healthliteracy\/resources\/teaching-patients-with-low-literacy-skills\/\" target=\"_blank\">Teaching patients with low literacy skills<\/a>. {<a href=\"http:\/\/www.hsph.harvard.edu\/healthliteracy\/resources\/teaching-patients-with-low-literacy-skills\/\" target=\"_blank\">http:\/\/www.hsph.harvard.edu\/healthliteracy\/resources\/teaching-patients-with-low-literacy-skills\/<\/a>}<\/p>\n<p>Health literacy maven, Helen Osborne, founder of Health Literacy Month [<a href=\"http:\/\/www.healthliteracy.com\/\" target=\"_blank\">http:\/\/www.healthliteracy.com\/<\/a>] and Health Literacy Out Loud podcasts [<a href=\"http:\/\/www.healthliteracyoutloud.com\/about\/\" target=\"_blank\">http:\/\/www.healthliteracyoutloud.com\/about\/<\/a> ] counsels using metaphors &#8211; which have to be appropriate to the person&#8217;s experience (for someone like me who&#8217;s never seen a pump, &#8216;the heart is like a pump&#8217; is just one more thing to grapple with)<\/p>\n<p>There are worthwhile visual tools to check out from Communication Disabilities Across Canada <a href=\"http:\/\/www.accpc.ca\/\" target=\"_blank\">http:\/\/www.accpc.ca\/<\/a>\u00a0and The Institute for Healthcare Advancement has a terrific annual conference, and materials on their website.<br \/>\n<a href=\"http:\/\/www.iha4health.org\/\" target=\"_blank\">http:\/\/www.iha4health.org\/<\/a><\/p>\n<p>There&#8217;s an emerging raft of online discussion:<\/p>\n<ul>\n<li>Public Health Literacy Blog <a href=\"http:\/\/publichealthliteracy.blogspot.ca\/\" target=\"_blank\">http:\/\/publichealthliteracy.blogspot.ca\/<\/a><\/li>\n<li>Twitter community = #healthliteracy<\/li>\n<li>Tweechat &#8211; <span style=\"text-decoration: underline;\">#hchlitss<\/span>\u00a0Every Thursday at 8pm EST\u00a0with co-hosts\u00a0RV Rikard\u00a0@<a href=\"https:\/\/twitter.com\/intent\/user?screen_name=rv_rikard\">rv_rikard<\/a>, Kathleen Hoffman @<a href=\"https:\/\/twitter.com\/intent\/user?screen_name=drkdhoffman\">drkdhoffman<\/a>, and\u00a0guests<\/li>\n<li>Health Literacy listserv &#8211; HealthLiteracy@lincs.ed.gov<\/li>\n<\/ul>\n<p>I&#8217;ve also blogged about my findings:<\/p>\n<ul>\n<li>Even single syllable words can confound<br \/>\n<a href=\"http:\/\/www.ability4life.com\/2010\/08\/medical-jargon-even-single-syllable-words-can-confound\/\" target=\"_blank\">http:\/\/www.ability4life.com\/2010\/08\/medical-jargon-even-single-syllable-words-can-confound\/<\/a><\/li>\n<li>Every encounter with the health system is a cross-cultural event<br \/>\n<a href=\"http:\/\/www.ability4life.com\/2010\/11\/doctors-and-patients-cross-cultural-event\/\" target=\"_blank\">http:\/\/www.ability4life.com\/2010\/11\/doctors-and-patients-cross-cultural-event\/<\/a><\/li>\n<li>Health Literacy: <a href=\"http:\/\/www.ability4life.com\/2010\/06\/health-literacy-beyond-reading-level\/\" target=\"_blank\">beyond reading level<\/a>.<br \/>\n<a href=\"http:\/\/www.ability4life.com\/2010\/06\/health-literacy-beyond-reading-level\/\" target=\"_blank\">http:\/\/www.ability4life.com\/2010\/06\/health-literacy-beyond-reading-level\/<\/a><\/li>\n<\/ul>\n<p>My particular bone to pick relates to medication instructions -proven to be the source of medication errors. Why? they require health literacy and proper interpretation.\u00a0 YouTube&#8217;s provided my digital solution to illustrate: &#8216;take with food&#8217; <a href=\"http:\/\/youtu.be\/JZavfJ_U7hU \" target=\"_blank\">http:\/\/youtu.be\/JZavfJ_U7hU <\/a>and &#8216;plenty of liquids&#8217; <a href=\"https:\/\/www.youtube.com\/watch?v=lJOYjpwtlBQ&amp;feature=share&amp;list=UUeBg6OoHP7nx9jUHpEWCeCQ\" target=\"_blank\">https:\/\/www.youtube.com\/watch?v=lJOYjpwtlBQ&amp;feature=share&amp;list=UUeBg6OoHP7nx9jUHpEWCeCQ<\/a><\/p>\n<p>An <a href=\"http:\/\/www.ability4life.com\/2010\/10\/when-is-an-ice-cream-label-a-health-literacy-tool\/\" target=\"_blank\">anecdote from Dr Barry Weiss<\/a>, creator of the nutrition label as health literacy indicator: <a href=\"http:\/\/www.ability4life.com\/2010\/10\/when-is-an-ice-cream-label-a-health-literacy-tool\/\" target=\"_blank\">http:\/\/www.ability4life.com\/2010\/10\/when-is-an-ice-cream-label-a-health-literacy-tool\/<\/a><br \/>\n&#8220;After hearing the doctor say &#8216;we&#8217;re going to transfer the patient to another floor&#8217; the patient worried to the nurse: &#8216;will there be a blanket? The floors are so cold.&#8217; &#8221;<\/p>\n<p>Let us know if these links are helpful and if you would like to have more posts with resources like this. What topics are of interest to you?<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Guest blogger Kathy Kastner gives us an overview of the health literacy resources on the Internet.\u00a0It is an important topic \u2013 how can patients be engaged and participatory if they 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