{"id":15218,"date":"2013-09-04T09:00:08","date_gmt":"2013-09-04T13:00:08","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=15218"},"modified":"2013-09-06T13:00:33","modified_gmt":"2013-09-06T17:00:33","slug":"opennotes-is-going-wide-a-million-patients-and-families-empowered-and-enabled","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2013\/09\/opennotes-is-going-wide-a-million-patients-and-families-empowered-and-enabled.html","title":{"rendered":"The OpenNotes project goes wide: a million patients and families enabled by information!"},"content":{"rendered":"

\"OpenNotes<\/a>Updated Sept. 6: I’d forgotten that as we posted in June<\/a>, Cleveland Clinic announced open access too, adding a half million patients to the total.<\/em><\/p>\n

Big news is emerging from the OpenNotes\u00ae<\/sup>\u00a0project: big institutions are making patient access to the medical record Standard Operating Procedure.<\/p>\n

For the first time, an unprecedented number of patients and families – over 1.3 million<\/del> 1.8\u00a0million so far<\/strong> – are enabled to take a big step toward full partnership in their care, by having access to the information their clinicians wrote. And there’s more on the way in the next year.<\/p>\n

This is great <\/i>news for participatory medicine!\u00a0We’ve often touted here<\/a> the news from the OpenNotes study. If you’re new to it, here’s our post announcing the results<\/a> last fall, and here’s the project’s website<\/a>. The results were big news for participatory medicine because they said that when patients can see their doctors’ visit notes – unedited – things go better<\/i>. That’s important, because as SPM co-founder Dr. Danny Sands says, “How can patients participate if they can’t see what I see?”<\/p>\n

The OpenNotes study was limited to letting us see the visit notes written by our primary physicians, but the participating medical centers (and others) heard the message loud and clear, and they’re going LARGE on it.<\/p>\n

Added 9\/6: <\/i>In addition to Cleveland Clinic, these providers are on board:<\/p>\n

1. Study participant Geisinger Medical Center has opened visit notes to over 100,000 patients.<\/p>\n

From the OpenNotes project site:
\n\"Geisinger<\/a><\/p>\n

2. The Veterans Administration has opened progress notes to a million patients.<\/p>\n

We reported on it here<\/a> in January.
\n\"OpenNotes<\/a><\/p>\n

3. My primary hospital, Boston’s Beth Israel Deaconess Medical Center, is opening notes from all specialities.<\/p>\n

BIDMC was the lead institution for the OpenNotes study; it’s home to principal investigators Jan Walker RN, MBA and Tom Delbanco MD. They announced last year<\/em> that they’d open visit notes from all primary physicians, but they’ve gone one better – a BIG one better: now, all specialties<\/strong> are coming on board.<\/p>\n

From their site<\/a>:<\/p>\n

\"OpenNotes<\/a><\/p>\n

4. Next year: INPATIENT NOTES!<\/p>\n

Regular readers will recall that last December, SPM member Marge Benham-Hutchins (PhD, RN) was astounded<\/a> that although she’d followed her husband’s data via his patient portal while he was an outpatient,\u00a0her access was shut off<\/strong> when he got worse and became an in-patient.<\/p>\n

Well, this too shall pass. I’m thrilled to say that my hospital is leading the charge. Look:<\/p>\n

\"OpenNotes<\/a><\/p>\n

Read the full announcement<\/a> on their site.<\/p>\n

What you can do<\/p>\n

Medicine is changing, but it’s a big big industry and a lot of people don’t like to be the “first penguin in the water.”\u00a0(If you don’t know that metaphor, see this page<\/a> about it. It refers to people’s aversion to jumping in first, when there might be unknown risks.)<\/p>\n

Well folks, several whales <\/i>have jumped in, and they’re telling their friends “The water’s fine!”<\/p>\n

Whether you are a clinician or a patient,\u00a0pass the word about this initiative.<\/strong><\/p>\n