{"id":1605,"date":"2009-03-19T22:28:30","date_gmt":"2009-03-20T03:28:30","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=1605"},"modified":"2010-03-05T00:04:06","modified_gmt":"2010-03-05T05:04:06","slug":"lets-hear-it-for-the-d-patient-e-patients","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2009\/03\/lets-hear-it-for-the-d-patient-e-patients.html","title":{"rendered":"Let&#8217;s hear it for the d-patient e-patients. :-)"},"content":{"rendered":"<p><em>Update 3\/21: For easier reference, I&#8217;m editing this to incorporate some goodies from comments below.<\/em><\/p>\n<p>Here&#8217;s a little game that just might turn into something transformational.<\/p>\n<p>Since I started learning about this world of participatory medicine, I&#8217;ve looked for patterns that can teach us something. (That&#8217;s what I do at work, in high tech \u2013 look for patterns that help understand and predict.)<\/p>\n<p>After reading the e-patient white paper (you should if you haven&#8217;t), I started to notice ways that certain patients created great value, far beyond what their mortals docs could do alone. Notice the slogan at the top of this page.<\/p>\n<p><del datetime=\"2009-03-22T03:58:38+00:00\">Here&#8217;s a thought: perhaps <\/del>Our patron saint Gilles Frydman has long said that some of the most potent e-patient specimens are health professionals who become patients themselves. Let&#8217;s collect some names.<br \/>\n<!--more--><br \/>\nFor starters:<\/p>\n<ul>\n<li style=\"line-height: 1.4em;\"><strong><a href=\"https:\/\/participatorymedicine.org\/epatients\/about-e-patientsnet\" target=\"epd\">Doc Tom Ferguson<\/a><\/strong> himself, founder of this group \u2013 a multiple myeloma patient who far outlived his prognosis<\/li>\n<li style=\"line-height: 1.4em;\"><strong>Doreen Kossove<\/strong>, powerhouse pediatrician, the soul of her ACOR community, who just died last month after outlasting her leiomyosarcoma prognosis by a decade. (See <a href=\"http:\/\/www.cnn.com\/2009\/HEALTH\/02\/26\/ep.kossove.tribute.leiomyosarcoma\/\" target=\"epd\">Elizabeth Cohen&#8217;s CNN.com piece<\/a>.)<\/li>\n<li style=\"line-height: 1.4em;\"><strong>Ken Youner<\/strong>, retired MD who&#8217;s a vital and valuable contributor to my kidney cancer group on ACOR.<\/li>\n<\/ul>\n<p><em>Additions submitted in comments:<\/em><\/p>\n<ul>\n<li style=\"line-height: 1.4em;\"><strong>David Servan-Schreiber MD, PhD,<\/strong> author of <em>Anticancer: A New Way of Life.<\/em><\/li>\n<li style=\"line-height: 1.4em;\"><strong>Dr. Steven Fadem, MD.<\/strong> Being diagnosed with a deadly disease changed his practice of medicine.<em> (Details below.)<\/em><\/li>\n<li style=\"line-height: 1.4em;\">Diabetic docs cited by Diabetes Mine goddess Amy Tenderich:\n<ul>\n<li style=\"line-height: 1.4em;\">Dr. Steven Edelman of TCOYD \/ UCSD<\/li>\n<li style=\"line-height: 1.4em;\">Dr. Irl Hirsch of Univ of Washington<\/li>\n<li style=\"line-height: 1.4em;\">Theresa Garnero of UCSF<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p>Your thoughts please? Other examples? Let&#8217;s collect &#8217;em. And I&#8217;m callin&#8217; &#8217;em <strong>&#8220;d-patients&#8221;<\/strong> \u2013 a subset of e-patients.<\/p>\n<p>One thing d-patients prove is that patient empowerment is anything but anti-doctor. Heck, sometimes it&#8217;s a doctor preservation movement.<\/p>\n<p>Your turn: Names, please.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Update 3\/21: For easier reference, I&#8217;m editing this to incorporate some goodies from comments below. Here&#8217;s a little game that just might turn into something transformational. Since I started learning [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[171,35,87,5,3,2],"tags":[],"coauthors":[],"class_list":["post-1605","post","type-post","status-publish","format-standard","hentry","category-e-patient-stories","category-key-people","category-net-friendly-docs","category-ptdoc-co-care","category-pts-as-teachers","category-trendsprinciples"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Let&#039;s hear it for the d-patient e-patients. :-) - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2009\/03\/lets-hear-it-for-the-d-patient-e-patients.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Let&#039;s hear it for the d-patient e-patients. :-) - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"Update 3\/21: For easier reference, I&#8217;m editing this to incorporate some goodies from comments below. 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