{"id":167,"date":"2008-06-25T13:53:58","date_gmt":"2008-06-25T18:53:58","guid":{"rendered":"http:\/\/72.9.147.40\/archives\/2008\/06\/common-framework-for-networked-personal-health-information.html"},"modified":"2008-06-25T13:53:58","modified_gmt":"2008-06-25T18:53:58","slug":"common-framework-for-networked-personal-health-information","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2008\/06\/common-framework-for-networked-personal-health-information.html","title":{"rendered":"Common Framework for Networked Personal Health Information"},"content":{"rendered":"
Today, June 25, 2008 the Markle Foundation’s Connecting for Health Initiative<\/a>, a public-private collaborative group engaging more than 100 organizations representing all major components of the health sector, released a new framework to increase health end-users participation and protect information. ACOR is one of the organizations endorsing<\/a> the Framework. Entitled “Common Framework for Networked Personal Health Information<\/a>” it proposes a set of practices that, when taken together, encourage appropriate handling of personal health information as it flows to and from personal health records (PHRs) and similar applications or supporting services.<\/p>\n The Common Framework resources are designed to guide organizations participating in \u201cConsumer Data Streams<\/strong>\u201d \u2014 the flow of personal health information into and out of consumer-accessible applications such as PHRs.<\/p>\n The Framework, based on the immutable fact that health end-users (the e-patients) are network participants<\/a>, is composed of a set of documents, discussing in detail the 9 consensus policy principles<\/a> and the associated technical overview<\/a>.<\/p>\n The principles provide the foundation for managing personal health information within consumer-accessible data streams. Taken together, they form a comprehensive approach to privacy, the hallmark for which is that personal information be handled according to the individual\u2019s understanding and consent<\/strong>.<\/p>\n In brief, the principles, and the corresponding papers in this Framework, are as follows:<\/p>\n The Common Framework is released at the same time there is renewed legislative activity on the PHR\/EMRs:<\/p>\n Charles Boustany, MD, a heart surgeon, is making a case<\/a> for personal control in health IT. “<\/p>\n We must do more to empower health care consumers and providers with better information about health care costs and quality, and protect patients\u2019 control over their personally identifiable information and individual treatment decisions.”<\/p><\/blockquote>\n The Patient-Controlled Health IT Act would give patients the right to receive their medical histories in an electronic form from their health care providers who use electronic health record systems. In addition, the bill would provide financial incentives to health data organizations for importing clinical data into patients’ PHRs, as well as to physicians who use those data while treating patients.<\/p>\n Rep. Boustany was quoted as saying, “One way to lower the cost and improve quality is to adopt [PHRs] to help doctors and other health care providers limit duplication and errors, but we should go further to put the patient in control.”<\/p>\n It is pretty clear that PHRs and Health IT are becoming a major topic of discussion both in DC and at an increasing number of large and small corporations. All of a sudden everybody is realizing that you cannot have a working healthcare system without putting the health services end-users at the center of the system and without providing them with the necessary tools to become informed, engaged and ready to show the benefits of participatory medicine.<\/p>\n <\/p>\n","protected":false},"excerpt":{"rendered":" Today, June 25, 2008 the Markle Foundation’s Connecting for Health Initiative, a public-private collaborative group engaging more than 100 organizations representing all major components of the health sector, released a new framework to increase health end-users participation and protect information. ACOR is one of the organizations endorsing the Framework. Entitled “Common Framework for Networked Personal […]<\/p>\n","protected":false},"author":33,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false}}},"categories":[62],"tags":[],"coauthors":[8259],"jetpack_publicize_connections":[],"yoast_head":"\n
\nThe Common Framework resources are intended to foster network relationships and, ultimately, to enhance trust among the following parties:<\/p>\n\n
\n
\nobtain access to information collected about them and how they may control who has access to it.<\/p>\n\n