{"id":16737,"date":"2014-10-14T15:26:03","date_gmt":"2014-10-14T19:26:03","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=16737"},"modified":"2014-10-14T15:33:24","modified_gmt":"2014-10-14T19:33:24","slug":"wsj-researchers-are-asking-patients-to-help-design-clinical-trials","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2014\/10\/wsj-researchers-are-asking-patients-to-help-design-clinical-trials.html","title":{"rendered":"WSJ: &#8220;Researchers are asking patients to help design clinical trials.&#8221;"},"content":{"rendered":"<p>I could smack myself for not noticing this earlier, but it happened while I was at the ESMO conference (the &#8220;European ASCO&#8221; cancer conference) in Madrid last month: Amy Dockser Marcus has another great piece on how medicine is truly starting to engage with patients as active contributors to improving healthcare. Woohoo!<\/p>\n<p>The lede:<\/p>\n<blockquote><p>Scientists regularly sign up patients in clinical trials to test new treatments. Now, they are seeking patients to help them design some of those trials.<\/p>\n<p>Patients and researchers can bring different perspectives to treating disease &#8230;<\/p><\/blockquote>\n<p><a href=\"http:\/\/online.wsj.com\/articles\/design-power-patients-play-researchers-in-drug-trials-1412034067\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-9063\" src=\"http:\/\/www.epatientdave.com\/wp-content\/uploads\/2014\/10\/WSJ-pts-as-researchers.jpg\" alt=\"Screen capture of Wall Street Journal\" width=\"601\" height=\"452\" \/><\/a><\/p>\n<p>It seems clear that medicine is starting to act on the Institute of Medicine&#8217;s mandate in\u00a0<em>Best Care at Lower Cost<\/em>:<\/p>\n<blockquote><p>A learning healthcare system is anchored on patient needs and perspectives.<\/p><\/blockquote>\n<p>Doesn&#8217;t this dovetail deliciously with <a href=\"http:\/\/www.epatientdave.com\/2014\/09\/28\/how-early-should-patient-voices-be-heard-in-the-research-process\/#more-8985\" target=\"_blank\">the presentation I blogged about<\/a>\u00a0on my own site, on involving patients earlier in the research process?? Imagine: Scientists asking patients what they think is important!<\/p>\n<p>Clearly, science is starting to act on the realization that patients are no longer the passive beneficiaries\u00a0of what scientists think. \u00a0(It also matches nicely Laura Landro&#8217;s front page WSJ piece in June, \u201c<a href=\"http:\/\/online.wsj.com\/articles\/health-care-providers-want-patients-to-read-medical-records-spot-errors-1402354902\" target=\"_blank\">Health-Care Providers Want Patients to Read Medical Records, Spot Errors<\/a>\u201d.<\/p>\n<p>This is a major shift in the wind, and it&#8217;s spreading. Watch for more of this in the coming months.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>I could smack myself for not noticing this earlier, but it happened while I was at the ESMO conference (the &#8220;European ASCO&#8221; cancer conference) in Madrid last month: Amy Dockser Marcus has another great piece on how medicine is truly starting to engage with patients as active contributors to improving healthcare. Woohoo! The lede: Scientists [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false},"version":2}},"categories":[5,3,7,3586],"tags":[3471,7467,128,7464,7466,413,55,884],"coauthors":[],"class_list":["post-16737","post","type-post","status-publish","format-standard","hentry","category-ptdoc-co-care","category-pts-as-teachers","category-positive-patterns","category-research-issues","tag-design","tag-esmo","tag-healthcare","tag-imagine-scientists","tag-laura-landro","tag-medicine","tag-patients","tag-wsj"],"jetpack_publicize_connections":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>WSJ: &quot;Researchers are asking patients to help design clinical trials.&quot; - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2014\/10\/wsj-researchers-are-asking-patients-to-help-design-clinical-trials.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"WSJ: &quot;Researchers are asking patients to help design clinical trials.&quot; - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"I could smack myself for not noticing this earlier, but it happened while I was at the ESMO conference (the &#8220;European ASCO&#8221; cancer conference) in Madrid last month: Amy Dockser Marcus has another great piece on how medicine is truly starting to engage with patients as active contributors to improving healthcare. 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