{"id":18021,"date":"2015-12-10T10:04:31","date_gmt":"2015-12-10T15:04:31","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=18021"},"modified":"2015-12-10T10:21:39","modified_gmt":"2015-12-10T15:21:39","slug":"nrp-shots-small-violations-of-medical-privacy-can-hurt-patients-and-corrode-trust","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2015\/12\/nrp-shots-small-violations-of-medical-privacy-can-hurt-patients-and-corrode-trust.html","title":{"rendered":"NPR Shots: Small Violations Of Medical Privacy Can Hurt Patients And Corrode Trust"},"content":{"rendered":"<p><a href=\"http:\/\/www.npr.org\/sections\/health-shots\/2015\/12\/10\/459091273\/small-violations-of-medical-privacy-can-hurt-patients-and-corrode-trust\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-18024\" style=\"border:5px\" src=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2015\/12\/nprhipaaheader-300x144.jpg\" alt=\"Screen capture of NPR Shots blog post\" width=\"365\" height=\"175\" srcset=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2015\/12\/nprhipaaheader-300x144.jpg 300w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2015\/12\/nprhipaaheader-800x383.jpg 800w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2015\/12\/nprhipaaheader.jpg 854w\" sizes=\"auto, (max-width: 365px) 100vw, 365px\" \/><\/a>One pillar of participatory medicine, as SPM co-chair Dr. Danny Sands often says, is access to our medical records: &#8220;How can patients participate if they can&#8217;t see what I see??&#8221; But a major impediment to free-flowing information is incompetence or malfeasance in protecting our data, which makes some people want to clamp down. Patients and participatory providers\u00a0need our health information to be as secure <em>and\u00a0<\/em>free-flowing\u00a0as banking information &#8230; which is not perfect but it&#8217;s an industry where they take privacy seriously.<\/p>\n<p>Charles Ornstein <a href=\"http:\/\/twitter.com\/CharlesOrnstein\" target=\"_blank\">@CharlesOrnstein<\/a> of ProPublica has <a href=\"http:\/\/www.npr.org\/sections\/health-shots\/2015\/12\/10\/459091273\/small-violations-of-medical-privacy-can-hurt-patients-and-corrode-trust\" target=\"_blank\">a new piece today<\/a> on the NPR &#8220;Shots&#8221; health blog, talking about some really heinous violations by immoral individuals and sometimes sloppy individuals, e.g. a doctor who gave his password to a temp employee. (Oy.)<br \/>\n<!--more--><\/p>\n<p>Awareness is a\u00a0first step in fixing problems like this. Technical wizards can&#8217;t design-out the weaknesses without knowing what they are, and activists for free-flowing data (like many of us in SPM) need to know the real risks of harm and embarrassment that happen when a system isn&#8217;t really secure. Security wizards say you can&#8217;t ever be perfect but you can surely design systems &#8211; and access &#8211; to be secure enough to prevent the malfeasance in these anecdotes.<\/p>\n<p>Question for EMR experts: why do we not have systems that allow\u00a0<em>adding\u00a0<\/em>information without also allowing rummaging? Do systems allow different levels of access, or is it all all-or-nothing? When I was an admin for Salesforce.com we could give users\u00a0many different levels of access, and that system starts out\u00a0<em>free<\/em>. Is the same not available in Epic, Cerner, etc etc? (I&#8217;d welcome non-hypey answers from vendors or anyone, in comments.)<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>One pillar of participatory medicine, as SPM co-chair Dr. Danny Sands often says, is access to our medical records: &#8220;How can patients participate if they can&#8217;t see what I see??&#8221; [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[367,59],"tags":[6257,7410,3471,5422,55,213,4160,3592],"coauthors":[],"class_list":["post-18021","post","type-post","status-publish","format-standard","hentry","category-medical-records","category-policy-issues","tag-cerner","tag-danny-sands","tag-design","tag-oy","tag-patients","tag-providers","tag-security","tag-spm"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - 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