{"id":18425,"date":"2016-03-30T10:02:15","date_gmt":"2016-03-30T14:02:15","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=18425"},"modified":"2016-03-30T10:02:15","modified_gmt":"2016-03-30T14:02:15","slug":"national-doctors-day-clinicians-hacking-open-access-and-remembering-an-e-patient","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2016\/03\/national-doctors-day-clinicians-hacking-open-access-and-remembering-an-e-patient.html","title":{"rendered":"National Doctors’ Day, clinicians, hacking open access, and remembering an e-patient"},"content":{"rendered":"

\"National<\/a>Somehow I’d never heard of National\u00a0Doctors’ Day<\/a>, but apparently it started 25 years ago<\/a>, in 1991. As one of many SPM members whose life was saved (or is being helped) by excellent physicians, I’m in!<\/p>\n

And I want to shine a broader spotlight on the wider class called clinicians (Wikipedia<\/a>): all sorts of medical professionals who work directly with patients, including\u00a0nurse practitioners, nurses, aides … see that Wikipedia link for a list of many types.<\/p>\n

A side note: this particular “Twitter card” was taken from a tweet<\/a> by the American College of Radiologists. That’s the group we wrote about last week, who’s sponsoring a “hackathon for open access<\/a>” to medical journals. That subject – figuring out how to help all of us\u00a0harvest the most clinical value from research – will be a key enabler of\u00a0full\u00a0<\/em>patient-clinician partnerships.<\/p>\n

\"Judy

Judy with nephew Zack, from her “Patient Wisdom” blog, November 2007<\/p><\/div>\n

Speaking of those full relationships, I’ll close with a special note of thanks to the many researchers who generously share their work in process with e-patients. For some reason lately I’ve been thinking about – and talking about, in speeches – e-patient Judy Feder<\/a>, a metastatic breast cancer patient who prolonged her life 18 months thanks to the four e-patient communities she belonged to. On BCMets<\/a> she learned about a new blood test that got her access to an unusual use of Herceptin. That story is in our post a year later<\/a> about her demise.<\/p>\n

For her, the extraordinary value of achieving the best in medicine was that she and the next generation of her family got to spend a precious extra 18 months together.<\/p>\n

Here’s to\u00a0the best of medicine; no, here’s to the best of health. It works best when patients and clinicians each contribute their utmost – participatory medicine. So\u00a0Happy Doctor’s Day!<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

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