{"id":18717,"date":"2016-05-20T15:47:14","date_gmt":"2016-05-20T19:47:14","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=18717"},"modified":"2016-05-20T19:35:59","modified_gmt":"2016-05-20T23:35:59","slug":"openaps-is-bearing-big-fruit-part-1-dana-lewiss-speech-at-oreillys-oscon","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2016\/05\/openaps-is-bearing-big-fruit-part-1-dana-lewiss-speech-at-oreillys-oscon.html","title":{"rendered":"#OpenAPS is bearing big fruit, part 1: Dana Lewis’s speech at O’Reilly’s OSCON"},"content":{"rendered":"
\"Dana<\/a>

Click image to watch video on the O’Reilly site<\/p><\/div>\n

For some reason we haven’t written much about this here – our only post<\/a> is from SPM Past President Nick Dawson 15 months ago – but this is\u00a0such\u00a0<\/em>a big deal. Here’s an 11 minute introductory video on this – I won’t say more, I’ll just ask you to click and watch this.<\/p>\n

The speaker is @DanaMLewis, who lives with Type 1 diabetes, and has hacked into her CGM (continuous glucose monitor) and her insulin pump\u00a0and\u00a0grabbed the data feeds in the devices. Then,\u00a0using a $35 computer called the Raspberry Pi, she and then-boyfriend @ScottLeibrand (now husband) wrote software to\u00a0manage her blood sugar better\u00a0<\/em>than it’s ever been controlled before.<\/p>\n

It works. They call it the Automated Pancreas System, and they\u00a0donated the code to open source, at OpenAPS.org. And now scores of people are doing it.<\/p>\n

As you’ll hear, this is threatening to everyone who believes that patients can’t understand all the complex things needed to manage a disease like this … but as you’ll also hear, it’s profoundly liberating<\/em> to the people who have the problem<\/em>.<\/p>\n

The event was an open source software conference, so some of the language is technical, but you can just skip over that – the main point is all in plain English.<\/p>\n

This week in San Diego, at the Quantified Self Public Health Symposium, six members of our Society for Participatory Medicine saw Dana lead a 45 minute session with eight other users on stage. It was beyond amazing, because everything they said was scientifically rigorous – an irrefutable display of evidence that unimaginable things are actually happening, with all power in these patients’ hands. Another post with video of that event will come shortly.<\/p>\n

If you haven’t heard of this and want to catch up, do some googling, and check these hashtags: #WeAreNotWaiting, #OpenAPS, #NightScout. More in a day or two.<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

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