{"id":18913,"date":"2016-07-07T17:10:09","date_gmt":"2016-07-07T21:10:09","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=18913"},"modified":"2016-07-07T17:10:09","modified_gmt":"2016-07-07T21:10:09","slug":"peter-elias-a-physician-experiences-a-portal-from-the-family-side-and-fail","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2016\/07\/peter-elias-a-physician-experiences-a-portal-from-the-family-side-and-fail.html","title":{"rendered":"Peter Elias: a physician experiences a portal from the family side, and… #fail"},"content":{"rendered":"
\"Peter<\/a>

Peter Elias working with a patient, from the SPM website<\/p><\/div>\n

Peter Elias MD (in photo at left) is a member-at-large on the board of our Society for Participatory Medicine. See his earlier posts here<\/a>. Particularly relevant is his\u00a0Proposal for a TRULY patient-centered medical record<\/a>, The experience he recounts here, as a caregiver of a family member trying to partner with her<\/strong> providers, fell far short of that vision of true patient-clinician partnership. <\/em><\/p>\n

There is much to learn here, from the comparison. Current portals\u00a0were developed to meet Federal reimbursement guidelines – whose requirements\u00a0were negotiated downward<\/strong>\u00a0to make reimbursement easier.\u00a0What can we do, to move beyond this state?\u00a0<\/em><\/p>\n

\n

I recently spent nearly a week at the bedside of a hospitalized elderly relative. After discharge, I used the Partners HealthCare<\/a> portal to notify my relative’s PCP. I gave a very brief (one paragraph) summary of the presentation and hospital course, some pertinent lab and x-ray values, her changed discharge medication list, her status at discharge, the discharge plan, and the 2 items needing follow-up.
\n.
\nI got a prompt and constructive reply from her PCP, which is great.
\n.
\nNot so great was the fact that, because of a 1500 character limit, I had to divide my information into three separate messages. Fifteen hundred characters is less than 11 tweets, and represents a very significant barrier to the quality and safety of clinical communication between patient and clinician.
\n.
\nI provided this feedback to the organization and was told the “…character limit was requested by the clinicians within Partners Healthcare…was set by the development team per the decision of the executive clinical team members.”
\n.
\nThey did not comment on my suggestion that if the character limit is important, it should be possible to attach either a text or Word document to a message. (Their system allows only image formats.)
\n.
\nI find this very disappointing. The implication is that the clinicians at Mass General, the Brigham, McLean and others do not really want to allow patients to provide useful clinical information. They want to receive postcards rather than letters, which is the online version of interrupting the patient after 18 seconds. It’s like saying to patients: “I’m really not that into you.”
\n.
\nThe institutions that use the Partners Healthcare gateway include:
\n.
\nBrigham and Women’s Hospital
\nMassachusetts General Hospital
\nBrigham and Women’s Faulkner Hospital
\nCooley Dickinson Hospital
\nMartha’s Vineyard Hospital
\nMcLean Hospital
\nNantucket Cottage Hospital
\nNewton-Wellesley Hospital
\nNorth Shore Medical Center
\nPartners Community Healthcare, Inc.
\nPartners HealthCare at Home
\nSpaulding Rehabilitation Network
\n.
\nFrom my perspective, the root cause of this communication \u202a#\u200e<\/span>fail\u202c<\/span><\/a> is that portals are generally built without much input from patients and are designed to qualify for financial rewards by meeting CMS metrics, rather than designed to meet patient needs.<\/span><\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

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