{"id":20182,"date":"2017-11-29T07:07:20","date_gmt":"2017-11-29T12:07:20","guid":{"rendered":"https:\/\/participatorymedicine.org\/epatients\/?p=20182"},"modified":"2017-11-29T07:23:31","modified_gmt":"2017-11-29T12:23:31","slug":"transforming-the-culture-of-care-keynote-1-opennotes","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2017\/11\/transforming-the-culture-of-care-keynote-1-opennotes.html","title":{"rendered":"&#8220;Transforming the Culture of Care&#8221; Keynote 1: OpenNotes"},"content":{"rendered":"<p>I&#8217;m way late in blogging this &#8211; too much travel and jet lag &#8211; but WOW was our Society&#8217;s first conference on October 25 a breakthrough event! Titled &#8220;\u201cParticipatory Medicine: Transforming the Culture of Care&#8221; (<a href=\"https:\/\/participatorymedicine.org\/conference\/\" target=\"_blank\" rel=\"noopener\">web page<\/a>), it produced a storm of attention on Twitter (our #SPM2017 hashtag had 15 million impressions in 48 hours, 1.1 million per hour during the event!) and a tremendous boost in awareness of our movement. Importantly, new relationships were formed at our event and our table at the\u00a0<a href=\"http:\/\/www.connectedhealthconf.org\/boston\/2017\" target=\"newwin\">Connected Health Conference<\/a>, to which we were attached. It was a great and exhilarating outcome for our first-ever conference; our partnership with <a href=\"http:\/\/www.pchalliance.org\/\" target=\"_blank\" rel=\"noopener\">PCHAlliance<\/a> (Personal Connected Health Alliance) was highly effective for all involved.<\/p>\n<p>In the coming days we&#8217;ll be blogging the video of each of the keynote addresses by the <a href=\"https:\/\/participatorymedicine.org\/conference\/2017-conference-speakers\/\" target=\"_blank\" rel=\"noopener\">truly outstanding speakers<\/a> who presented to our packed room. Here&#8217;s the first: fittingly, it&#8217;s OpenNotes &#8211; patients and providers sharing the work.<\/p>\n<h1>The opening keynote: OpenNotes<\/h1>\n<p>The OpenNotes movement is about patients and providers sharing access to &#8220;visit notes&#8221; &#8211; the notes that clinicians type into the computer about patient visits. The movement has the perfect tagline:\u00a0&#8220;<a href=\"https:\/\/www.opennotes.org\/story\/on-the-same-page\/\" target=\"_blank\" rel=\"noopener\">Patients and Doctors on the Same Page<\/a>.&#8221;\u00a0We&#8217;ve blogged about it <a href=\"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/open-notes-2.html\" target=\"_blank\" rel=\"noopener\">since its beginning<\/a> in 2010, with <a href=\"https:\/\/participatorymedicine.org\/epatients\/page\/2?s=opennotes\" target=\"_blank\" rel=\"noopener\">dozens of posts<\/a> since then.<\/p>\n<p>Why is this important? Well, in 2012 the National Academy of Medicine wrote in\u00a0<em>Best Care at Lower Cost\u00a0<\/em>that the future of healthcare requires &#8220;Patient-clinician partnerships [with] engaged, empowered patients.&#8221; And as SPM chair &amp; co-founder Dr. Danny Sands often says, &#8220;How can patients participate if they can&#8217;t see what I see?&#8221;\u00a0<em>That&#8217;s\u00a0<\/em>how important this is.<\/p>\n<p>In our opening keynote, the &#8220;father&#8221; of OpenNotes, Dr. Tom Delbanco (co-founder with Jan Walker RN MBA) and SPM member Liz Salmi @TheLizArmy share the roots of OpenNotes (going back to a 1998 conference in Salzburg I <a href=\"http:\/\/www.epatientdave.com\/2010\/11\/28\/healthcare-in-a-land-called-peoplepower-a-landmark-paper-from-2001\/\" target=\"_blank\" rel=\"noopener\">blogged about<\/a>), its present, and its future: an exhilarating new project, currently in study, called <a href=\"https:\/\/www.opennotes.org\/news\/e-patients-net\/\">OurNotes<\/a>, in which\u00a0<em>you and your clinician\u00a0<strong>co-author\u00a0<\/strong>the visit notes.<\/em> How&#8217;s\u00a0<em>that\u00a0<\/em>for participatory medicine? How&#8217;s\u00a0<em>that\u00a0<\/em>for transforming the culture of care?<\/p>\n<span class=\"embed-youtube\" style=\"text-align:center; display: block;\"><iframe loading=\"lazy\" class=\"youtube-player\" width=\"100\" height=\"57\" src=\"https:\/\/www.youtube.com\/embed\/941s_ELuxds?version=3&#038;rel=1&#038;showsearch=0&#038;showinfo=1&#038;iv_load_policy=1&#038;fs=1&#038;hl=en-US&#038;autohide=2&#038;wmode=transparent\" allowfullscreen=\"true\" style=\"border:0;\" sandbox=\"allow-scripts allow-same-origin allow-popups allow-presentation allow-popups-to-escape-sandbox\"><\/iframe><\/span>\n<hr \/>\n<div id=\"attachment_14792\" style=\"width: 186px\" class=\"wp-caption alignright\"><a href=\"https:\/\/patientsincluded.org\/conferences\/accredited-conferences\/\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-14792\" class=\"wp-image-14792\" src=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2013\/06\/Patients-Included-badge-with-TM.jpg\" alt=\"\" width=\"176\" height=\"170\" srcset=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2013\/06\/Patients-Included-badge-with-TM.jpg 628w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2013\/06\/Patients-Included-badge-with-TM-300x289.jpg 300w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2013\/06\/Patients-Included-badge-with-TM-600x579.jpg 600w\" sizes=\"auto, (max-width: 176px) 100vw, 176px\" \/><\/a><p id=\"caption-attachment-14792\" class=\"wp-caption-text\">Click to view criteria<\/p><\/div>\n<h1>#PatientsIncluded<\/h1>\n<p>In keeping with our society&#8217;s emphasis on patient-professional partnerships, our conference achieved #PatientsIncluded certification, which (believe me) is not trivial &#8211; the criteria require that you really mean it. If our all-volunteer organization can do it at our first-ever conference, we encourage all other conferences to get on board.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Our first-ever conference was a huge success. Fittingly, the opening keynote was about OpenNotes: &#8220;patients and clinicians on the same page.&#8221; Here&#8217;s the video.<\/p>\n","protected":false},"author":4,"featured_media":20192,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[367,7344,5,59,7,2],"tags":[],"coauthors":[8070],"class_list":["post-20182","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medical-records","category-patient-conference-participation","category-ptdoc-co-care","category-policy-issues","category-positive-patterns","category-trendsprinciples"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>&quot;Transforming the Culture of Care&quot; Keynote 1: OpenNotes - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2017\/11\/transforming-the-culture-of-care-keynote-1-opennotes.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"&quot;Transforming the Culture of Care&quot; Keynote 1: OpenNotes - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"Our first-ever conference was a huge success. 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