{"id":20279,"date":"2018-01-17T09:00:59","date_gmt":"2018-01-17T14:00:59","guid":{"rendered":"https:\/\/participatorymedicine.org\/epatients\/?p=20279"},"modified":"2018-01-16T18:16:47","modified_gmt":"2018-01-16T23:16:47","slug":"transforming-the-culture-of-care-session-2-patient-experience-panel","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2018\/01\/transforming-the-culture-of-care-session-2-patient-experience-panel.html","title":{"rendered":"\u201cTransforming the Culture of Care\u201d session 2: Patient Experience panel"},"content":{"rendered":"<p><iframe loading=\"lazy\" title=\"#SPM2017 panel Opportunities &amp; Challenges in Patient Experience\" width=\"1080\" height=\"810\" src=\"https:\/\/www.youtube.com\/embed\/Gl-43VTd4_A?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen><\/iframe><\/p>\n<p>This is a long overdue post of the next session from our Society\u2019s first conference on October 25. The first keynote, about OpenNotes, was posted <a href=\"https:\/\/participatorymedicine.org\/epatients\/2017\/11\/transforming-the-culture-of-care-keynote-1-opennotes.html\">here<\/a>, including this note:<br \/>\n<!--more--><\/p>\n<blockquote><p>WOW was our Society\u2019s first conference on October 25 a breakthrough event! Titled \u201cParticipatory Medicine: Transforming the Culture of Care\u201d (<a href=\"https:\/\/participatorymedicine.org\/conference\/\" target=\"_blank\" rel=\"noopener\">web page<\/a>), it produced a storm of attention on Twitter (our #SPM2017 hashtag had 15 million impressions in 48 hours, 1.1 million per hour during the event!) and a tremendous boost in awareness of our movement. Importantly, new relationships were formed at our event and our table at the\u00a0<a href=\"http:\/\/www.connectedhealthconf.org\/boston\/2017\" target=\"newwin\">Connected Health Conference<\/a>, to which we were attached. It was a great and exhilarating outcome for our first-ever conference; our partnership with\u00a0<a href=\"http:\/\/www.pchalliance.org\/\" target=\"_blank\" rel=\"noopener\">PCHAlliance<\/a>\u00a0(Personal Connected Health Alliance) was highly effective for all involved.<\/p><\/blockquote>\n<h1>Opportunities and Challenges in Patient Experience: What\u2019s Next?<\/h1>\n<p>On this blog yesterday <a href=\"https:\/\/participatorymedicine.org\/epatients\/2018\/01\/mark-sullivan-who-gets-to-define-the-clinical-problem.html\" target=\"_blank\" rel=\"noopener\">Mark Sullivan&#8217;s post<\/a> is a perfect setup for this session. Titled &#8220;Who gets to define the clinical problem?&#8221;, he points out that while medicine can diagnose, only the patient can say what the real problem is in their life. If medicine doesn&#8217;t solve\u00a0<em>that<\/em>, the job didn&#8217;t get done.<\/p>\n<p>That&#8217;s just one aspect of participatory medicine in patient experience. This panel has terrific anecdotes and program news from several leaders in patient experience, and then, as often happens, the juicy part comes during Q&amp;A. Panelists:<\/p>\n<ul>\n<li><strong>Barbra Rabson,<\/strong> CEO of Massachusetts Health Quality Partners (<a href=\"http:\/\/www.mhqp.org\/\">MHQP,<\/a>\u00a0Twitter <a href=\"http:\/\/twitter.com\/MHQP\" target=\"_blank\" rel=\"noopener\">@MHQP<\/a>, which has been )\n<ul>\n<li>&#8220;We have to be careful, because the healthcare system has a perspective about what engagement is, and it&#8217;s not the same as what\u00a0<em>patients&#8217;\u00a0<\/em>engagement is.&#8221;<\/li>\n<li>&#8220;I think the payment system has to get\u00a0<em>thrown out\u00a0<\/em>before this gets fixed &#8211; because the incentives are skewed. Sometimes they&#8217;re skewed to give you inappropriate treatment.&#8221;(!)<\/li>\n<li>&#8220;Dignity takes people treating other people like people &#8211; and that takes time. &#8230; the bonus is that if you fix this, you&#8217;ll fix clinician burnout, too.&#8221;<\/li>\n<\/ul>\n<\/li>\n<li><strong>Grace Cordovano PhD\u00a0<\/strong>(@GraceCordovano) \u2013\u00a0Cancer Patient Advocate, CEO of Enlightening Results, SPM member\n<ul>\n<li>&#8220;There are so many stories that are bad and wrong &#8211; I wish there was a repository of positives that we could all turn to and say &#8216;Oo, this works!'&#8221;<\/li>\n<\/ul>\n<\/li>\n<li><strong>Pat Folcarelli<\/strong> RN, MA, PhD \u2013\u00a0VP, <a href=\"http:\/\/www.bidmc.org\/Quality-and-Safety\/Silverman-Institute.aspx\" target=\"_blank\" rel=\"noopener\">Silverman Institute for Health Care Quality and Safety<\/a>, Beth Israel Deaconess Medical Center\n<ul>\n<li>&#8220;[Ten years ago] We were segregating the patient experience from the quality work. &#8230; then it evolved, when we realized &#8216;False distinction!&#8217; These groups need to be one quality \/ safety \/ experience group.&#8221;<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p>Moderator is SPM board member Sue Woods MD, MPH, currently founder of health startup\u00a0<em>Nudg<\/em>.<\/p>\n<p>Around <a href=\"https:\/\/www.youtube.com\/watch?v=Gl-43VTd4_A?t=41m53s\" data-rel=\"lightbox-video-0\" target=\"_blank\" rel=\"noopener\">41:53<\/a> see the Q&amp;A from Tom Delbanco, co-creator of OpenNotes, about the work that&#8217;s been going on since the 1980s. He wants patient feedback posted publicly for each individual clinician.<\/p>\n<p>He&#8217;s followed by SPM board member-at-large Peter Elias MD, with a story that resonates\u00a0strongly\u00a0with <a href=\"https:\/\/participatorymedicine.org\/epatients\/2018\/01\/mark-sullivan-who-gets-to-define-the-clinical-problem.html\" target=\"_blank\" rel=\"noopener\">that post yesterday<\/a> on the importance of realizing that only the\u00a0<em>patient\u00a0<\/em>can say whether they&#8217;re better yet. Barbra Rabson replies with a spot-on story from a clinician friend in Minnesota.<\/p>\n<p>Thanks to all our panelists, and to those who asked the questions that pulled it all together to show the real patient impact.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Great panel on the participatory aspects of patient experience, with speakers from a leading quality non-profit (Mass. Health Quality Partners), a hospital (Beth Israel Deaconess) and a patient advocate (Grace Cordovano). The real juice comes in the Q&amp;A.<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false},"version":2}},"categories":[7344,5,59,7,2],"tags":[],"coauthors":[8070],"class_list":["post-20279","post","type-post","status-publish","format-standard","hentry","category-patient-conference-participation","category-ptdoc-co-care","category-policy-issues","category-positive-patterns","category-trendsprinciples"],"jetpack_publicize_connections":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>\u201cTransforming the Culture of Care\u201d session 2: Patient Experience panel - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2018\/01\/transforming-the-culture-of-care-session-2-patient-experience-panel.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u201cTransforming the Culture of Care\u201d session 2: Patient Experience panel - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"Great panel on the participatory aspects of patient experience, with speakers from a leading quality non-profit (Mass. 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