{"id":20436,"date":"2018-03-28T06:54:49","date_gmt":"2018-03-28T10:54:49","guid":{"rendered":"https:\/\/participatorymedicine.org\/epatients\/?p=20436"},"modified":"2018-03-28T07:12:27","modified_gmt":"2018-03-28T11:12:27","slug":"introducing-pccds-ln","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2018\/03\/introducing-pccds-ln.html","title":{"rendered":"Introducing the Patient-Centered Clinical Decision Support-Learning Network"},"content":{"rendered":"

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Introduction<\/h1>\n

SPM member, Danny van Leeuwen, Health Hats, introduces a new blog sponsored by the Patient-Centered Clinical Decision Support-Learning Network:\u00a0Patient Expertise<\/span>: Sharing and informing choices to connect research and clinical experience.<\/p>\n

Patient expertise<\/span> provides a platform for the Patient-Centered Clinical Decision Support (PCCDS) Learning Network (@pccdsln<\/a>) to offer current perspectives in the field (via a blog hosted by Danny van Leeuwen, updates on breaking news, and a twitter feed). The website is located <\/span>here<\/span><\/a> We plan to post at least monthly. The posts will blend relevant science with stakeholder narrative. The PCCDS-LN seeks to promote the conversation between patients, care partners, clinicians, IT experts, and researchers to move toward an ideal state in PCCDS. We realize that deep-rooted obstacles stand in the way of visioning, let alone reaching an ideal state. We also know that success depends on appreciating the business and workflow of clinical practices, the challenges and flow of people’s lives, and the fragmented technology connections.\u00a0<\/span>With your help and participation, we can select, prioritize, and take meaningful steps in a positive direction. Let’s take a step \u2013 let\u2019s talk. \u00a0Join us <\/span>here <\/span><\/a>where you can read, comment, and get involved.<\/span><\/p>\n

We are partnering with SPM by cross-posting here on SPM’s blog, sharing posts, articles, thoughts about on either or both our platforms, and co-authoring material about Patient-Centered Clinical Decision Support that may be vital to SPM. <\/span><\/p>\n

Danny van Leeuwen, MPH, RN, patient activist <\/span>@healthhats<\/span><\/a> danny@health-hats.com<\/span><\/a><\/p>\n

Barry Blumenfeld, MD, Project Director and Principal Investigator, PCCDS-LN <\/span>bhb@rti.org<\/span><\/a><\/p>\n

First Post<\/h1>\n

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Inching Toward the Ideal<\/h1>\n

Imagining is necessary but not sufficient. Depending on where you sit, the ideal state can seem miles away or insurmountable. I want to get closer to that ideal state without burning myself out. You\u2019re reading this because you care about Informed Decision-Making, Clinical Decision-Making, or Making Health Choices. You are at least ankle deep if not eyeball deep Clinical Decision Support (CDS). So, let\u2019s talk.<\/p>\n

\"\"<\/a>
\nUsing PCCDS, patients and providers discuss and prioritize treatment options.<\/p>\n

The Patient-Centered Clinical Decision Support (PCCDS) Learning Network seeks to promote the conversation between patients, care partners, clinicians, IT experts, and researchers to move toward an ideal state in CDS. We realize that deep-rooted obstacles stand in the way of visioning, let alone reaching an ideal state. We also know that success depends on appreciating the business and workflow of medical practices, the challenges and flow of people’s lives, and the technology connections. Complicating things further, clinicians and patients and their care partners are diverse characters across the widest possible continuum. Patients\u2019 comfort with their medical surroundings has some but limited relationship to their understanding of medical language and their bodies. Family personalities, dynamics and social circumstances have bewildering variation. Clinicians can range from those who feel, the relationship with my patients is most important to me, to those who feel, just get me through the day, I’m so tired. Likewise, patients and their care partners could range from, I’m driving my own train, to Just tell me.<\/p>\n


\nDiagnosis and treatment partnerships are the primary goal of PCCDS.<\/p>\n

With your help and participation, we can select, prioritize, and take meaningful steps in a positive direction. Let’s take a step \u2013 let\u2019s talk. Do our imaginings ring true? What’s missing? Imagine we can move the dial. What would you do next?<\/p>\n

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Clinician<\/h1>\n