{"id":20462,"date":"2018-04-02T15:04:34","date_gmt":"2018-04-02T19:04:34","guid":{"rendered":"https:\/\/participatorymedicine.org\/epatients\/?p=20462"},"modified":"2018-04-02T15:04:34","modified_gmt":"2018-04-02T19:04:34","slug":"must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html","title":{"rendered":"Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data!"},"content":{"rendered":"<p><em>Guest post by SPM member Francie Grace.<\/em><\/p>\n<p>Here&#8217;s a last minute Important item for your Monday To Do list. Spotted in <a href=\"https:\/\/twitter.com\/dpatil\/status\/979699924991401984\" target=\"_blank\" rel=\"noopener\">a reminder tweet Friday<\/a>\u00a0from former U.S. Chief Data Scientist D.J. Patil (@dpatil):<\/p>\n<blockquote class=\"twitter-tweet\">\n<p dir=\"ltr\" lang=\"en\">Hey data scientists, just a few days to give the <a href=\"https:\/\/twitter.com\/NIH?ref_src=twsrc%5Etfw\">@NIH<\/a> <a href=\"https:\/\/twitter.com\/NIHDataScience?ref_src=twsrc%5Etfw\">@NIHDataScience<\/a> <a href=\"https:\/\/twitter.com\/NIHDirector?ref_src=twsrc%5Etfw\">@NIHDirector<\/a> your feedback on their approach to data science. I&#8217;ve got my letter ready to send in. This is going to take all of us. Let&#8217;s do this. <a href=\"https:\/\/t.co\/fv3tQ9rilR\">https:\/\/t.co\/fv3tQ9rilR<\/a><\/p>\n<p>\u2014 dj patil (@dpatil) <a href=\"https:\/\/twitter.com\/dpatil\/status\/979699924991401984?ref_src=twsrc%5Etfw\">March 30, 2018<\/a><\/p><\/blockquote>\n<p><a href=\"https:\/\/platform.twitter.com\/widgets.js\">https:\/\/platform.twitter.com\/widgets.js<\/a><br \/>\n<!--more--><br \/>\nPatients and the public at large are among those being asked to comment on a pathfinding blueprint for how health data should be handled &#8212; an issue close to our hearts (and every other body part, for that matter).<\/p>\n<p>Apologies for the super-short notice, but this is an important chance for all of us to comment, however briefly, on the National Institutes for Health strategic plan for how to create, use, re-use, allow access to, and protect the vast amounts of health data now being created every minute of every day.<\/p>\n<p>The deadline to fill out the government comment form is &#8220;by April 2&#8221; [11:59 pm ET] so please take a few minutes to read <a href=\"https:\/\/grants.nih.gov\/grants\/rfi\/NIH-Strategic-Plan-for-Data-Science.pdf\" target=\"_blank\" rel=\"noopener\">the NIH plan<\/a> (it&#8217;s in reasonably plain English, don&#8217;t be intimidated), and get your e-patient views on the record where you can help move the world forward:<\/p>\n<p>A brief glance suggests &#8230;<\/p>\n<ul>\n<li><strong>it would be useful for the draft NIH document to add specific language about mechanisms for patients, scientists and healthcare providers to flag errors for timely correction.<\/strong><\/li>\n<li>I also think there should be language stating that <strong>there will be patient representatives on the policy-making data usage committees.<\/strong><\/li>\n<li>And it&#8217;d be great to see something about getting the latest information into the hands of patients and clinicians much, much faster (instead of the notorious 17-year gap now standing between research insights and information available to MDs and patients making decisions about treatments and prevention).<\/li>\n<\/ul>\n<p>Any other suggestions? We know SPMers have great ideas, so please find time to take a look and add yours. The way we collect, compile, analyze, protect, disseminate, store, correct, use and reuse data is going to absolutely define us and our world, so please let your voices be heard.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Guest post by SPM member Francie Grace. Here&#8217;s a last minute Important item for your Monday To Do list. Spotted in a reminder tweet Friday\u00a0from former U.S. Chief Data Scientist D.J. Patil (@dpatil): Hey data scientists, just a few days to give the @NIH @NIHDataScience @NIHDirector your feedback on their approach to data science. I&#8217;ve [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":20463,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false}}},"categories":[59,3586],"tags":[],"coauthors":[8070],"jetpack_publicize_connections":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.6 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data! - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data! - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"Guest post by SPM member Francie Grace. Here&#8217;s a last minute Important item for your Monday To Do list. Spotted in a reminder tweet Friday\u00a0from former U.S. Chief Data Scientist D.J. Patil (@dpatil): Hey data scientists, just a few days to give the @NIH @NIHDataScience @NIHDirector your feedback on their approach to data science. I&#8217;ve [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html\" \/>\n<meta property=\"og:site_name\" content=\"SPM Blog\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/participatorymedicine\" \/>\n<meta property=\"article:published_time\" content=\"2018-04-02T19:04:34+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/04\/SuggestionBox_25114193_s_123rf.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"450\" \/>\n\t<meta property=\"og:image:height\" content=\"429\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"e-Patient Dave\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@s4pm\" \/>\n<meta name=\"twitter:site\" content=\"@s4pm\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"e-Patient Dave\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#article\",\"isPartOf\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html\"},\"author\":{\"name\":\"e-Patient Dave\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/964cf120da8ac17067b46802eb561e5d\"},\"headline\":\"Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data!\",\"datePublished\":\"2018-04-02T19:04:34+00:00\",\"dateModified\":\"2018-04-02T19:04:34+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html\"},\"wordCount\":398,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#organization\"},\"image\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#primaryimage\"},\"thumbnailUrl\":\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/04\/SuggestionBox_25114193_s_123rf.jpg\",\"articleSection\":[\"Policy Issues\",\"Research Issues\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html\",\"url\":\"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html\",\"name\":\"Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data! - SPM Blog\",\"isPartOf\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#primaryimage\"},\"image\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#primaryimage\"},\"thumbnailUrl\":\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/04\/SuggestionBox_25114193_s_123rf.jpg\",\"datePublished\":\"2018-04-02T19:04:34+00:00\",\"dateModified\":\"2018-04-02T19:04:34+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#primaryimage\",\"url\":\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/04\/SuggestionBox_25114193_s_123rf.jpg\",\"contentUrl\":\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/04\/SuggestionBox_25114193_s_123rf.jpg\",\"width\":450,\"height\":429,\"caption\":\"Source: 123rf\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/participatorymedicine.org\/epatients\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data!\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#website\",\"url\":\"https:\/\/participatorymedicine.org\/epatients\/\",\"name\":\"SPM Blog\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/participatorymedicine.org\/epatients\/?s={search_term_string}\"},\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#organization\",\"name\":\"Society for Participatory Medicine\",\"url\":\"https:\/\/participatorymedicine.org\/epatients\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png\",\"contentUrl\":\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png\",\"width\":971,\"height\":269,\"caption\":\"Society for Participatory Medicine\"},\"image\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/participatorymedicine\",\"https:\/\/x.com\/s4pm\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/964cf120da8ac17067b46802eb561e5d\",\"name\":\"e-Patient Dave\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/image\/bb6a6cea4b839aa865190891ced9fa91\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/9ea792f5ebe81e0279ab60420820d283?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/9ea792f5ebe81e0279ab60420820d283?s=96&d=mm&r=g\",\"caption\":\"e-Patient Dave\"},\"description\":\"\\\"e-Patient Dave\\\" deBronkart is a co-founder of our Society and past board chair. He survived a near-fatal kidney cancer by being an e-patient long before he'd heard the word. Today he evangelizes participatory medicine, patient empowerment, and patient data access as a keynote speaker and at epatientdave.com.\",\"sameAs\":[\"http:\/\/www.epatientdave.com\"],\"url\":\"https:\/\/participatorymedicine.org\/epatients\/author\/dave-debronkart\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data! - SPM Blog","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html","og_locale":"en_US","og_type":"article","og_title":"Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data! - SPM Blog","og_description":"Guest post by SPM member Francie Grace. Here&#8217;s a last minute Important item for your Monday To Do list. Spotted in a reminder tweet Friday\u00a0from former U.S. Chief Data Scientist D.J. Patil (@dpatil): Hey data scientists, just a few days to give the @NIH @NIHDataScience @NIHDirector your feedback on their approach to data science. I&#8217;ve [&hellip;]","og_url":"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html","og_site_name":"SPM Blog","article_publisher":"https:\/\/www.facebook.com\/participatorymedicine","article_published_time":"2018-04-02T19:04:34+00:00","og_image":[{"width":450,"height":429,"url":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/04\/SuggestionBox_25114193_s_123rf.jpg","type":"image\/jpeg"}],"author":"e-Patient Dave","twitter_card":"summary_large_image","twitter_creator":"@s4pm","twitter_site":"@s4pm","twitter_misc":{"Written by":"e-Patient Dave","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#article","isPartOf":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html"},"author":{"name":"e-Patient Dave","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/964cf120da8ac17067b46802eb561e5d"},"headline":"Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data!","datePublished":"2018-04-02T19:04:34+00:00","dateModified":"2018-04-02T19:04:34+00:00","mainEntityOfPage":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html"},"wordCount":398,"commentCount":0,"publisher":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#organization"},"image":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#primaryimage"},"thumbnailUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/04\/SuggestionBox_25114193_s_123rf.jpg","articleSection":["Policy Issues","Research Issues"],"inLanguage":"en-US","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#respond"]}]},{"@type":"WebPage","@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html","url":"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html","name":"Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data! - SPM Blog","isPartOf":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#website"},"primaryImageOfPage":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#primaryimage"},"image":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#primaryimage"},"thumbnailUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/04\/SuggestionBox_25114193_s_123rf.jpg","datePublished":"2018-04-02T19:04:34+00:00","dateModified":"2018-04-02T19:04:34+00:00","breadcrumb":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#primaryimage","url":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/04\/SuggestionBox_25114193_s_123rf.jpg","contentUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/04\/SuggestionBox_25114193_s_123rf.jpg","width":450,"height":429,"caption":"Source: 123rf"},{"@type":"BreadcrumbList","@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/04\/must-do-by-midnight-comment-on-nih-plan-for-handling-all-health-data.html#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/participatorymedicine.org\/epatients\/"},{"@type":"ListItem","position":2,"name":"Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data!"}]},{"@type":"WebSite","@id":"https:\/\/participatorymedicine.org\/epatients\/#website","url":"https:\/\/participatorymedicine.org\/epatients\/","name":"SPM Blog","description":"","publisher":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/participatorymedicine.org\/epatients\/?s={search_term_string}"},"query-input":"required name=search_term_string"}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/participatorymedicine.org\/epatients\/#organization","name":"Society for Participatory Medicine","url":"https:\/\/participatorymedicine.org\/epatients\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/","url":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png","contentUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png","width":971,"height":269,"caption":"Society for Participatory Medicine"},"image":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/participatorymedicine","https:\/\/x.com\/s4pm"]},{"@type":"Person","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/964cf120da8ac17067b46802eb561e5d","name":"e-Patient Dave","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/image\/bb6a6cea4b839aa865190891ced9fa91","url":"https:\/\/secure.gravatar.com\/avatar\/9ea792f5ebe81e0279ab60420820d283?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/9ea792f5ebe81e0279ab60420820d283?s=96&d=mm&r=g","caption":"e-Patient Dave"},"description":"\"e-Patient Dave\" deBronkart is a co-founder of our Society and past board chair. He survived a near-fatal kidney cancer by being an e-patient long before he'd heard the word. Today he evangelizes participatory medicine, patient empowerment, and patient data access as a keynote speaker and at epatientdave.com.","sameAs":["http:\/\/www.epatientdave.com"],"url":"https:\/\/participatorymedicine.org\/epatients\/author\/dave-debronkart"}]}},"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/04\/SuggestionBox_25114193_s_123rf.jpg","jetpack_shortlink":"https:\/\/wp.me\/p8S1TQ-5k2","jetpack-related-posts":[],"_links":{"self":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/20462"}],"collection":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/comments?post=20462"}],"version-history":[{"count":5,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/20462\/revisions"}],"predecessor-version":[{"id":20468,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/20462\/revisions\/20468"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/media\/20463"}],"wp:attachment":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/media?parent=20462"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/categories?post=20462"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/tags?post=20462"},{"taxonomy":"author","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/coauthors?post=20462"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}