{"id":20732,"date":"2018-07-15T23:07:07","date_gmt":"2018-07-16T03:07:07","guid":{"rendered":"https:\/\/participatorymedicine.org\/epatients\/?p=20732"},"modified":"2018-07-24T14:58:08","modified_gmt":"2018-07-24T18:58:08","slug":"save-the-date-facebook-patient-privacy-scandal-important-bcsm-twitter-chat-monday-9pm-et","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2018\/07\/save-the-date-facebook-patient-privacy-scandal-important-bcsm-twitter-chat-monday-9pm-et.html","title":{"rendered":"Facebook patient privacy issue &#8211; important #BCSM Twitter chat TONIGHT, July 16 9pm ET"},"content":{"rendered":"<h3><a href=\"https:\/\/i.amz.mshcdn.com\/u4vo45AF95GTuSvRmnWz-bX9E9Q=\/fit-in\/1200x9600\/http%3A%2F%2Fmashable.com%2Fwp-content%2Fuploads%2F2012%2F12%2Ffacebook-fail.png\" target=\"_blank\" rel=\"noopener\" data-rel=\"lightbox-image-0\" data-rl_title=\"\" data-rl_caption=\"\" title=\"\"><img decoding=\"async\" class=\"alignright\" src=\"https:\/\/i.amz.mshcdn.com\/u4vo45AF95GTuSvRmnWz-bX9E9Q=\/fit-in\/1200x9600\/http%3A%2F%2Fmashable.com%2Fwp-content%2Fuploads%2F2012%2F12%2Ffacebook-fail.png\" alt=\"\" width=\"100\" \/><strong>TONIGHT<\/strong><\/a><strong>: 9 pm Eastern time. #BCSM Twitter chat on the latest Facebook privacy issue.<\/strong><\/h3>\n<h3><strong>This time the data leaked is from a patient group. <\/strong><\/h3>\n<h4><strong>FB says it&#8217;s a nothingburger. What do you think?<\/strong><\/h4>\n<p>Facebook has a record of privacy leaks. The poster shown here (click to enlarge) was published in 2012, years before the Cambridge Analytica scandal around the 2016 US elections. The reality is, Facebook makes money from selling data about its users to people who have\u00a0<em>lots\u00a0<\/em>of money. And the more valuable that data is, the harder it seems to be for the company to be ethical, many people are saying.<\/p>\n<p>It&#8217;s pretty clear who holds cards here: Cambridge Analytica got shut down by a Facebook data scrape, while Facebook not only keeps rollin&#8217; along, they continue to be leaky as a sieve &#8211; while saying &#8220;What??? I didn&#8217;t do anything!&#8221;<\/p>\n<p>This time the incident involved the BRCA Sisterhood group, a &#8220;closed&#8221; Facebook group. Its members are sophisticated enough to know that nothing&#8217;s absolutely secure online. What nobody knew, though, was that Facebook actually had a hole &#8211;\u00a0<em>and a Chrome extension\u00a0<\/em>&#8211; that let marketers get at the membership list of such groups.<\/p>\n<p>Here&#8217;s the news coverage. As you&#8217;ll see, FB says no privacy problem happened. But also, see related news below.<\/p>\n<h2>Background articles:<\/h2>\n<p><!--more--><\/p>\n<ul>\n<li>CNBC:\u00a0<a href=\"https:\/\/www.cnbc.com\/2018\/07\/11\/facebook-private-groups-breast-cancer-privacy-loophole.html\" target=\"_blank\" rel=\"noopener\"><strong>Facebook &#8216;closed&#8217; groups weren&#8217;t as confidential as some thought<\/strong><\/a><\/li>\n<li>The Verge:\u00a0<a href=\"https:\/\/www.theverge.com\/2018\/7\/12\/17565754\/facebook-brca-private-group-breast-cancer\" target=\"_blank\" rel=\"noopener\"><strong>&#8220;Facebook changes privacy settings after outing members of a closed medical support group.<\/strong><\/a> Membership\u00a0Membership in closed groups was easily accessible before the change&#8221;<\/li>\n<li>CNET:\u00a0<strong><a href=\"https:\/\/www.cnet.com\/news\/facebook-loophole-let-marketers-easily-harvest-data-from-your-private-groups-report-says\/\" target=\"_blank\" rel=\"noopener\">Facebook loophole let marketers harvest data from private groups, report says<\/a><\/strong><\/li>\n<li>Huffington Post (good extension of other coverage:\u00a0<a href=\"https:\/\/www.huffingtonpost.com\/entry\/facebook-closed-group-private-info-public-loophole_us_5b47abd8e4b0e7c958f965f1\" target=\"_blank\" rel=\"noopener\"><strong>\u2018Closed\u2019 Facebook Group Data Were Visible To Marketers. <\/strong><strong>Until recently, anyone could download personally identifiable information from closed Facebook groups.<\/strong><\/a><\/li>\n<\/ul>\n<h3>Important related news:<\/h3>\n<h4 style=\"padding-top: 10px\"><em>1. Hackers break into and troll private FB group of 15,000 sexual abuse survivors<\/em><\/h4>\n<p>This is not for the faint-hearted, but it&#8217;s true: BCSM member @BraveBosom reports that in a separate issue, hackers broke into this group of traumatized women and taunted them for hours. Her tweets and some screen captures are included at bottom of this article on the above, by Boing-Boing co-editor and former breast cancer patient @Xeni:\u00a0<a href=\"https:\/\/boingboing.net\/2018\/07\/12\/facebook-allowed-third-party-m.html\" target=\"_blank\" rel=\"noopener\"><strong>Facebook allowed third party marketers to download names of people in private groups<\/strong><\/a><\/p>\n<p>Here&#8217;s the thing: when it was reported to Facebook,<em><strong>they destroyed the evidence.\u00a0<\/strong><\/em>They didn&#8217;t just close the group, they\u00a0<em><strong>deleted it. The members no longer have their support community. Their messages are gone.\u00a0<\/strong><\/em><\/p>\n<h4 style=\"padding-top: 10px\"><em>2. Investor problems:<\/em><\/h4>\n<p>I can&#8217;t read minds and divine people&#8217;s motivations, but this article\u00a0shows the company has a lot at stake: coincidentally on the same day they got a warning about causing problems for\u00a0<strong>investors:\u00a0<\/strong><\/p>\n<p>Wall Street Journal ($):\u00a0<a href=\"https:\/\/www.wsj.com\/articles\/sec-probes-why-facebook-didnt-warn-sooner-on-privacy-lapse-1531422043\" target=\"_blank\" rel=\"noopener\">SEC Probes Why Facebook Didn\u2019t Warn Investors Sooner on [Cambridge Analytica] Privacy Lapse<\/a><\/p>\n<p>This CNET piece summarizes the Wall Street article:\u00a0<a href=\"https:\/\/www.cnet.com\/news\/sec-investigating-if-facebook-gave-investors-enough-warning-about-data-issue-wsj-says\/\" target=\"_blank\" rel=\"noopener\">SEC asking if Facebook properly warned investors of data issue &#8212; WSJ<\/a><\/p>\n<hr \/>\n<p><strong>Again, the #BCSM Twitter chat on this is TONIGHT, July 16, 9 pm ET.<\/strong><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>TONIGHT: 9 pm Eastern time. #BCSM Twitter chat on the latest Facebook privacy issue. This time the data leaked is from a patient group. FB says it&#8217;s a nothingburger. What [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":20743,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[281,1,4,59],"tags":[],"coauthors":[8070],"class_list":["post-20732","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ethics","category-general","category-patient-networks","category-policy-issues"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Facebook patient privacy issue - important #BCSM Twitter chat TONIGHT, July 16 9pm ET - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2018\/07\/save-the-date-facebook-patient-privacy-scandal-important-bcsm-twitter-chat-monday-9pm-et.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Facebook patient privacy issue - important #BCSM Twitter chat TONIGHT, July 16 9pm ET - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"TONIGHT: 9 pm Eastern time. #BCSM Twitter chat on the latest Facebook privacy issue. 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