{"id":20832,"date":"2018-09-10T09:00:04","date_gmt":"2018-09-10T13:00:04","guid":{"rendered":"https:\/\/participatorymedicine.org\/epatients\/?p=20832"},"modified":"2018-09-16T21:45:46","modified_gmt":"2018-09-17T01:45:46","slug":"spm2018-speaker-doug-lindsay-driven-by-experience-to-advocate-passionately-for-participatory-medicine","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2018\/09\/spm2018-speaker-doug-lindsay-driven-by-experience-to-advocate-passionately-for-participatory-medicine.html","title":{"rendered":"#SPM2018 speaker Doug Lindsay: Driven by experience to advocate passionately for participatory medicine"},"content":{"rendered":"<p><i>First in a series of interviews with outstanding speakers we&#8217;ve lined up for the Society for Participatory Medicine&#8217;s <a href=\"http:\/\/participatorymedicine.org\/conference\" target=\"_blank\" rel=\"noopener\">second annual conference<\/a> on\u00a0<span class=\"m_8346056156746982620gmail-aBn\"><span class=\"m_8346056156746982620gmail-aQJ\"><span class=\"aBn\"><span class=\"aQJ\">Oct. 17<\/span><\/span><\/span><\/span>\u00a0in Boston. <a href=\"https:\/\/www.connectedhealthconf.org\/boston\/2018\/Society-for-Participatory-Medicine-Presents%3A-Make-Health-Happen\" target=\"_blank\" rel=\"noopener\">Register here<\/a>.<\/i><\/p>\n<p>Doug Lindsay calls himself as Transformational Thought Leader, an apt description for an advocate and educator who developed the surgery that fixed him after he fell gravely ill to a rare autonomic-adrenal disease at the age of 21.<\/p>\n<p><a href=\"https:\/\/douglindsay.net\/\">Doug<\/a> is a featured speaker at the Society for Participatory Medicine\u2019s second annual conference, which takes place Wednesday, October 17, in Boston. <a href=\"https:\/\/www.connectedhealthconf.org\/boston\/2018\/Society-for-Participatory-Medicine-Presents%3A-Make-Health-Happen\"><em>(Learn more and register here.)<\/em><\/a> If you haven\u2019t seen Doug speak, check out his recent presentations on YouTube, particularly his riveting speech at the <a href=\"https:\/\/whatsthefix.info\/videos\/wtfix-2018-sessions-doug-lindsay\/\">WTFix conference in Austin<\/a>, and his <a href=\"https:\/\/youtu.be\/w4s0uNy8Q2g\">TEDx talk in St. Louis<\/a>.<\/p>\n<p>In an email interview, Doug told me that his message at #SPM2018 will be this:<br \/>\n<!--more--><\/p>\n<blockquote><p>Patients need to claim their right to fully participate in their care.\u00a0In doing this, they can become the decisive force in protecting doctors\u2019 roles as healers whose work is done through a series of individual, personal clinical relationships with their patients.<\/p><\/blockquote>\n<p>He continued, \u201cMy beliefs about participatory medicine come not just from my need to be involved in my care, but from the deeply held convictions of the doctors and scientists who helped me see how I could participate in my own care.\u201d<\/p>\n<p>Doug points to the late Georgetown bioethicist <a href=\"https:\/\/cbhd.org\/content\/edmund-pellegrino\">Dr. E.D. Pellegrino<\/a>, Doug\u2019s primary bioethics adviser for six years, as his mentor.\u00a0According to Doug, in Dr. Pellegrino\u2019s writings, he identified the four components of <strong>the \u201cGood of the Patient\u201d:<\/strong><\/p>\n<ol>\n<li>the medical good<\/li>\n<li>the patient\u2019s perception of the good<\/li>\n<li>the good for humans<\/li>\n<li>the spiritual good<\/li>\n<\/ol>\n<p>The \u201cmedical good,\u201d Doug noted, hinges on \u201cmaking the correct medical decision \u2013 on knowing things and having skill and using your knowledge and skill it to identify the correct medical decision for diagnosis or treatment. But the three higher components of the \u2018good\u2019 cannot be attained without the patient\u2019s voice being heard, without the doctor and patient working together.\u201d<\/p>\n<p>And that, not surprisingly, is a topic that drives Doug now as an educator and advocate.<\/p>\n<p>Doug said he was excited not just to speak at SPM, but to collaborate with the attendees on the e-patient\/participatory medicine manifesto.\u00a0We\u2019ll detail the session about the manifesto in a column here in the near future, and also highlight more from the upcoming <a href=\"https:\/\/www.connectedhealthconf.org\/boston\/2018\/Society-for-Participatory-Medicine-Presents%3A-Make-Health-Happen\">SPM conference<\/a>.<\/p>\n<p>&nbsp;<\/p>\n<hr \/>\n<h3>Join Us in Boston<\/h3>\n<p>Learn more about SPM&#8217;s <a href=\"http:\/\/participatorymedicine.org\/conference\" target=\"_blank\" rel=\"noopener\">second annual conference<\/a> on Oct. 17 in Boston or <a href=\"https:\/\/www.connectedhealthconf.org\/boston\/2018\/Society-for-Participatory-Medicine-Presents%3A-Make-Health-Happen\" target=\"_blank\" rel=\"noopener\"><strong>register here today<\/strong><\/a> ($100 for members\/$150 for non-members).\u00a0\u00a0In our early years it\u2019s priced as a great bargain for a full day. And see this blog\u2019s\u00a0<a href=\"https:\/\/participatorymedicine.org\/epatients\/category\/spm-conferences\/spm2018\" target=\"_blank\" rel=\"noopener\">#SPM2018 series<\/a>\u00a0for more about, or by, the speakers and activities.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>SPM member Doug Lindsay developed the surgery that fixed him after he fell gravely ill to a rare autonomic-adrenal disease at the age of 21. 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