{"id":21140,"date":"2018-11-16T07:59:04","date_gmt":"2018-11-16T12:59:04","guid":{"rendered":"https:\/\/participatorymedicine.org\/epatients\/?p=21140"},"modified":"2018-11-19T09:12:21","modified_gmt":"2018-11-19T14:12:21","slug":"fypmdata-yes-or-no","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html","title":{"rendered":"Pay people for their data &#8211; yes, or no?"},"content":{"rendered":"<p>SPM members Casey Quinlan (yes, yours truly) and Jan Oldenburg were part of a trinity of folks debating the idea of paying people for the data they contribute to the digital economy, in healthcare and in all other sectors.<\/p>\n<p>Here&#8217;s the full version of the conversation on YouTube, with <a href=\"https:\/\/twitter.com\/MightyCasey\" target=\"_blank\" rel=\"noopener\">Casey<\/a> taking the &#8220;yes&#8221; side, Brookings Institution non-resident fellow and UConn professor <a href=\"https:\/\/twitter.com\/niamyaraghi\" target=\"_blank\" rel=\"noopener\">Niam Yaraghi<\/a>\u00a0taking the &#8220;no&#8221; side, and <a href=\"https:\/\/twitter.com\/janoldenburg\" target=\"_blank\" rel=\"noopener\">Jan<\/a> moderating the debate. It&#8217;s an hour long, so pack a lunch!<\/p>\n<span class=\"embed-youtube\" style=\"text-align:center; display: block;\"><iframe loading=\"lazy\" class=\"youtube-player\" width=\"1080\" height=\"608\" src=\"https:\/\/www.youtube.com\/embed\/eQyJ6qAFIB0?version=3&#038;rel=1&#038;showsearch=0&#038;showinfo=1&#038;iv_load_policy=1&#038;fs=1&#038;hl=en-US&#038;autohide=2&#038;wmode=transparent\" allowfullscreen=\"true\" style=\"border:0;\" sandbox=\"allow-scripts allow-same-origin allow-popups allow-presentation allow-popups-to-escape-sandbox\"><\/iframe><\/span>\n<p>&nbsp;<\/p>\n<p>Casey put together a shortened audio version of the discussion for her Healthcare Is HILARIOUS! podcast, and <a href=\"https:\/\/www.patreon.com\/posts\/fypmdata-debate-22734144\" target=\"_blank\" rel=\"noopener\">that&#8217;s here<\/a>.<\/p>\n<p>We invite you to weigh in &#8211; share your comments here, or on Twitter or Facebook. On Twitter and Facebook, use the hashtag #fypmdata &#8211; **** You Pay Me (for my) Data.<\/p>\n<p>There&#8217;s a transcript of the entire discussion here:\u00a0<a href=\"https:\/\/bit.ly\/data-xcrpt\" target=\"_blank\" rel=\"nofollow noopener\"><u>Transcript (in Google Docs)<\/u><\/a><\/p>\n<p>LInks related to issues raised during the debate:<\/p>\n<p><a href=\"https:\/\/dataprivacylab.org\/people\/sweeney\/\" target=\"_blank\" rel=\"nofollow noopener\"><u>Dr. Latanya Sweeney<\/u><\/a>, data scientist and data privacy thought leader extraordinaire<\/p>\n<p><a href=\"https:\/\/datacommons.coop\/\" target=\"_blank\" rel=\"nofollow noopener\"><u>Data Commons Cooperative<\/u><\/a><\/p>\n<p><a href=\"https:\/\/www.ciitizen.com\/\" target=\"_blank\" rel=\"nofollow noopener\"><u>Ciitizen (health data coop)<\/u><\/a><\/p>\n<p><a href=\"https:\/\/citizenhealth.io\/humantiv\/\" target=\"_blank\" rel=\"nofollow noopener\"><u>Humantiv (health data coop)<\/u><\/a><\/p>\n<p><a href=\"https:\/\/hu-manity.co\/my31app\/\" target=\"_blank\" rel=\"nofollow noopener\"><u>#My31\/Hu-manity (health data coop)<\/u><\/a><\/p>\n<p><a href=\"https:\/\/www.youtube.com\/redirect?redir_token=rCgdVC3W1gXJ64XkaIN3yM83xSV8MTU0MjM4MDIzOEAxNTQyMjkzODM4&amp;event=video_description&amp;v=eQyJ6qAFIB0&amp;q=https%3A%2F%2Fwww.pbs.org%2Fwgbh%2Ffrontline%2Ffilm%2Ffacebook-dilemma%2F\" target=\"_blank\" rel=\"nofollow noopener\"><u>PBS Frontline &#8220;The Facebook Dilemma&#8221; series (enraging + frightening)<\/u><\/a><\/p>\n<p>&#8220;<a href=\"https:\/\/medium.com\/@mightycasey\/selling-my-health-data-cut-me-in-bitches-447880201004\" target=\"_blank\" rel=\"noopener\">Selling My Health Data? CUT. ME. IN. BITCHES.<\/a>&#8221; &#8211; Casey Quinlan&#8217;s manifesto on health data brokering<\/p>\n<p>UPDATE added Saturday, Nov. 17, to reflect possibility that the universe is reading either my mind, or my Twitter feed (possibly both):<\/p>\n<p><a href=\"https:\/\/www.npr.org\/sections\/health-shots\/2018\/11\/15\/667946213\/startup-offers-to-sequence-your-genome-free-of-charge-then-let-you-profit-from-ihttps:\/\/www.npr.org\/sections\/health-shots\/2018\/11\/15\/667946213\/startup-offers-to-sequence-your-genome-free-of-charge-then-let-you-profit-from-i\" target=\"_blank\" rel=\"noopener\">Startup Offers To Sequence Your Genome Free Of Charge, Then Let You Profit From It<\/a> &#8211; NPR<\/p>\n<p>Some stories revealing the creep factor in digital health data capture and sale:<\/p>\n<p><a href=\"https:\/\/techcrunch.com\/2018\/11\/14\/google-gobbling-deepminds-health-app-might-be-the-trust-shock-we-need\/\" target=\"_blank\" rel=\"nofollow noopener\"><u>Google gobbling DeepMind\u2019s health app might be the trust shock we need<\/u><\/a> &#8211; TechCrunch<\/p>\n<p><a href=\"https:\/\/www.fiercehealthcare.com\/payer\/quest-for-identified-data-why-firms-are-starting-to-bypass-hospitals-and-buy-data-directly\" target=\"_blank\" rel=\"nofollow noopener\"><u>The quest for identified data: Why some firms are bypassing hospitals to buy data directly from patients<\/u><\/a> &#8211; Fierce Healthcare<\/p>\n<p><a href=\"https:\/\/www.vox.com\/the-goods\/2018\/11\/13\/18079458\/menstrual-tracking-surveillance-glow-clue-apple-health\" target=\"_blank\" rel=\"nofollow noopener\"><u>Period-tracking apps are not for women<\/u><\/a> &#8211; Vox<\/p>\n<p><a href=\"https:\/\/www.marks-clerk.com\/Home\/Knowledge-News\/Articles\/Intellectual-propertys-vital-role-in-healthcare.aspx#.W-Q-xXpKjOQ\" target=\"_blank\" rel=\"nofollow noopener\"><u>Intellectual property\u2019s vital role in healthcare\u2019s AI-driven future<\/u><\/a> &#8211; Pharmaphorum<\/p>\n<p><a href=\"https:\/\/www.the-scientist.com\/bio-business\/startups-plan-the-health-data-gold-rush-64840\" target=\"_blank\" rel=\"nofollow noopener\"><u>Startups Plan the Health Data Gold Rush<\/u><\/a> &#8211; The Scientist<\/p>\n<p>[image credit: CIO Magazine]<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>SPM members Casey Quinlan (yes, yours truly) and Jan Oldenburg were part of a trinity of folks debating the idea of paying people for the data they contribute to the [&hellip;]<\/p>\n","protected":false},"author":57,"featured_media":21141,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[281,367,59,2],"tags":[38,8133,8134,277,58,417,498,128],"coauthors":[8112],"class_list":["post-21140","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ethics","category-medical-records","category-policy-issues","category-trendsprinciples","tag-data","tag-data-economy","tag-digital-economy","tag-facebook","tag-health-20","tag-health-data","tag-health-information-technology","tag-healthcare"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Pay people for their data - yes, or no? - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Pay people for their data - yes, or no? - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"SPM members Casey Quinlan (yes, yours truly) and Jan Oldenburg were part of a trinity of folks debating the idea of paying people for the data they contribute to the [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html\" \/>\n<meta property=\"og:site_name\" content=\"SPM Blog\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/participatorymedicine\" \/>\n<meta property=\"article:published_time\" content=\"2018-11-16T12:59:04+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2018-11-19T14:12:21+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/11\/data-funnels-with-money_coin_monetization-of-data_funnel-100762704-large.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"700\" \/>\n\t<meta property=\"og:image:height\" content=\"467\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Casey Quinlan\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@s4pm\" \/>\n<meta name=\"twitter:site\" content=\"@s4pm\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Casey Quinlan\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2018\\\/11\\\/fypmdata-yes-or-no.html#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2018\\\/11\\\/fypmdata-yes-or-no.html\"},\"author\":{\"name\":\"Casey Quinlan\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/person\\\/6e341f8175db79341ddc513cee260c5b\"},\"headline\":\"Pay people for their data &#8211; yes, or no?\",\"datePublished\":\"2018-11-16T12:59:04+00:00\",\"dateModified\":\"2018-11-19T14:12:21+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2018\\\/11\\\/fypmdata-yes-or-no.html\"},\"wordCount\":346,\"commentCount\":8,\"publisher\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2018\\\/11\\\/fypmdata-yes-or-no.html#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2018\\\/11\\\/data-funnels-with-money_coin_monetization-of-data_funnel-100762704-large.jpg\",\"keywords\":[\"data\",\"data economy\",\"digital economy\",\"Facebook\",\"health 2.0\",\"Health Data\",\"Health Information Technology\",\"healthcare\"],\"articleSection\":[\"Ethics\",\"Medical Records\",\"Policy Issues\",\"Trends &amp; Principles\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2018\\\/11\\\/fypmdata-yes-or-no.html#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2018\\\/11\\\/fypmdata-yes-or-no.html\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2018\\\/11\\\/fypmdata-yes-or-no.html\",\"name\":\"Pay people for their data - yes, or no? - SPM Blog\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2018\\\/11\\\/fypmdata-yes-or-no.html#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2018\\\/11\\\/fypmdata-yes-or-no.html#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2018\\\/11\\\/data-funnels-with-money_coin_monetization-of-data_funnel-100762704-large.jpg\",\"datePublished\":\"2018-11-16T12:59:04+00:00\",\"dateModified\":\"2018-11-19T14:12:21+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2018\\\/11\\\/fypmdata-yes-or-no.html#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2018\\\/11\\\/fypmdata-yes-or-no.html\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2018\\\/11\\\/fypmdata-yes-or-no.html#primaryimage\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2018\\\/11\\\/data-funnels-with-money_coin_monetization-of-data_funnel-100762704-large.jpg\",\"contentUrl\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2018\\\/11\\\/data-funnels-with-money_coin_monetization-of-data_funnel-100762704-large.jpg\",\"width\":700,\"height\":467,\"caption\":\"image credit: CIO Magazine\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2018\\\/11\\\/fypmdata-yes-or-no.html#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Pay people for their data &#8211; yes, or no?\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#website\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/\",\"name\":\"SPM Blog\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#organization\",\"name\":\"Society for Participatory Medicine\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2017\\\/06\\\/spm-logo-13.png\",\"contentUrl\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2017\\\/06\\\/spm-logo-13.png\",\"width\":971,\"height\":269,\"caption\":\"Society for Participatory Medicine\"},\"image\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/www.facebook.com\\\/participatorymedicine\",\"https:\\\/\\\/x.com\\\/s4pm\"]},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/person\\\/6e341f8175db79341ddc513cee260c5b\",\"name\":\"Casey Quinlan\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/3ce68d4d74c1dcb1db4987d2de5414d68a6a0475ca6c33cf07b6b801544187f3?s=96&d=mm&r=g3324fc1cdeb3c61316476efde02c8149\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/3ce68d4d74c1dcb1db4987d2de5414d68a6a0475ca6c33cf07b6b801544187f3?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/3ce68d4d74c1dcb1db4987d2de5414d68a6a0475ca6c33cf07b6b801544187f3?s=96&d=mm&r=g\",\"caption\":\"Casey Quinlan\"},\"description\":\"Journalist, cancer warrior, author, content strategist, redhead, rabble-rouser, health cost transparency advocate, clinical trial re-animator. And funny.\",\"sameAs\":[\"http:\\\/\\\/www.MightyCasey.com\"],\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/author\\\/casey-quinlan\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Pay people for their data - yes, or no? - SPM Blog","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html","og_locale":"en_US","og_type":"article","og_title":"Pay people for their data - yes, or no? - SPM Blog","og_description":"SPM members Casey Quinlan (yes, yours truly) and Jan Oldenburg were part of a trinity of folks debating the idea of paying people for the data they contribute to the [&hellip;]","og_url":"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html","og_site_name":"SPM Blog","article_publisher":"https:\/\/www.facebook.com\/participatorymedicine","article_published_time":"2018-11-16T12:59:04+00:00","article_modified_time":"2018-11-19T14:12:21+00:00","og_image":[{"width":700,"height":467,"url":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/11\/data-funnels-with-money_coin_monetization-of-data_funnel-100762704-large.jpg","type":"image\/jpeg"}],"author":"Casey Quinlan","twitter_card":"summary_large_image","twitter_creator":"@s4pm","twitter_site":"@s4pm","twitter_misc":{"Written by":"Casey Quinlan","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html#article","isPartOf":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html"},"author":{"name":"Casey Quinlan","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/6e341f8175db79341ddc513cee260c5b"},"headline":"Pay people for their data &#8211; yes, or no?","datePublished":"2018-11-16T12:59:04+00:00","dateModified":"2018-11-19T14:12:21+00:00","mainEntityOfPage":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html"},"wordCount":346,"commentCount":8,"publisher":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#organization"},"image":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html#primaryimage"},"thumbnailUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/11\/data-funnels-with-money_coin_monetization-of-data_funnel-100762704-large.jpg","keywords":["data","data economy","digital economy","Facebook","health 2.0","Health Data","Health Information Technology","healthcare"],"articleSection":["Ethics","Medical Records","Policy Issues","Trends &amp; Principles"],"inLanguage":"en-US","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html#respond"]}]},{"@type":"WebPage","@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html","url":"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html","name":"Pay people for their data - yes, or no? - SPM Blog","isPartOf":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#website"},"primaryImageOfPage":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html#primaryimage"},"image":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html#primaryimage"},"thumbnailUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/11\/data-funnels-with-money_coin_monetization-of-data_funnel-100762704-large.jpg","datePublished":"2018-11-16T12:59:04+00:00","dateModified":"2018-11-19T14:12:21+00:00","breadcrumb":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html#primaryimage","url":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/11\/data-funnels-with-money_coin_monetization-of-data_funnel-100762704-large.jpg","contentUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/11\/data-funnels-with-money_coin_monetization-of-data_funnel-100762704-large.jpg","width":700,"height":467,"caption":"image credit: CIO Magazine"},{"@type":"BreadcrumbList","@id":"https:\/\/participatorymedicine.org\/epatients\/2018\/11\/fypmdata-yes-or-no.html#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/participatorymedicine.org\/epatients\/"},{"@type":"ListItem","position":2,"name":"Pay people for their data &#8211; yes, or no?"}]},{"@type":"WebSite","@id":"https:\/\/participatorymedicine.org\/epatients\/#website","url":"https:\/\/participatorymedicine.org\/epatients\/","name":"SPM Blog","description":"","publisher":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/participatorymedicine.org\/epatients\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/participatorymedicine.org\/epatients\/#organization","name":"Society for Participatory Medicine","url":"https:\/\/participatorymedicine.org\/epatients\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/","url":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png","contentUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png","width":971,"height":269,"caption":"Society for Participatory Medicine"},"image":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/participatorymedicine","https:\/\/x.com\/s4pm"]},{"@type":"Person","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/6e341f8175db79341ddc513cee260c5b","name":"Casey Quinlan","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/secure.gravatar.com\/avatar\/3ce68d4d74c1dcb1db4987d2de5414d68a6a0475ca6c33cf07b6b801544187f3?s=96&d=mm&r=g3324fc1cdeb3c61316476efde02c8149","url":"https:\/\/secure.gravatar.com\/avatar\/3ce68d4d74c1dcb1db4987d2de5414d68a6a0475ca6c33cf07b6b801544187f3?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/3ce68d4d74c1dcb1db4987d2de5414d68a6a0475ca6c33cf07b6b801544187f3?s=96&d=mm&r=g","caption":"Casey Quinlan"},"description":"Journalist, cancer warrior, author, content strategist, redhead, rabble-rouser, health cost transparency advocate, clinical trial re-animator. And funny.","sameAs":["http:\/\/www.MightyCasey.com"],"url":"https:\/\/participatorymedicine.org\/epatients\/author\/casey-quinlan"}]}},"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2018\/11\/data-funnels-with-money_coin_monetization-of-data_funnel-100762704-large.jpg","jetpack_shortlink":"https:\/\/wp.me\/p8S1TQ-5uY","jetpack-related-posts":[],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/21140","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/users\/57"}],"replies":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/comments?post=21140"}],"version-history":[{"count":7,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/21140\/revisions"}],"predecessor-version":[{"id":21148,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/21140\/revisions\/21148"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/media\/21141"}],"wp:attachment":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/media?parent=21140"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/categories?post=21140"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/tags?post=21140"},{"taxonomy":"author","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/coauthors?post=21140"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}