{"id":22340,"date":"2022-05-05T13:11:53","date_gmt":"2022-05-05T17:11:53","guid":{"rendered":"https:\/\/participatorymedicine.org\/epatients\/?p=22340"},"modified":"2022-05-05T13:11:53","modified_gmt":"2022-05-05T17:11:53","slug":"creating-your-own-self-advocacy-style","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2022\/05\/creating-your-own-self-advocacy-style.html","title":{"rendered":"Creating Your Own Self-Advocacy Style"},"content":{"rendered":"

We cannot always choose what happens to us in life, but we can choose how we respond and handle it. Take for example, the time that I had a physical examination with my relatively new primary care physician. They did blood work and I received a report, along with a prescription for a statin due to borderline high cholesterol. As an e-patient, an individual who is equipped<\/em>, enabled<\/em>, empowered<\/em>, and engaged<\/em> in my health and health care decisions, I looked up credible sources about HDL, LDL, and triglycerides. I read medical articles and plugged in my numbers into free online risk calculators. None of these calculations and articles pointed to the need for a statin, and thus, I felt I had enough evidence to justify my treatment plan.<\/p>\n

At my next visit, my primary care physician was surprised to hear that I wasn\u2019t taking the statin he prescribed. I told him I had a few questions and he pulled my lab work, ready to answer them. I asked whether I could try changing diet and increase my physical activity and exercise. He replied that people often say they\u2019ll do those things but then they don\u2019t. I proposed a six-month period to see if I could lower my cholesterol with lifestyle changes, and he agreed. Sure enough, six months later, my lab work showed better numbers and he agreed that I didn\u2019t need a statin. I could have reacted to receiving a mailed prescription differently; I could\u2019ve used humor, reacted negatively, or even changed doctors. But I wanted to take the time to build a relationship and convey my preference to avoid medications unless I absolutely need them. I have found that asking questions is well-received as a first step towards resolving the issue.<\/p>\n

Sometimes, however, situations require a little more assertiveness. For me, it helps to know my rights and stay up to date about health literacy and evidence-based practices.<\/p>\n

When the first COVID-19 booster shot was made available to people with certain health conditions, I talked to my specialist physician and he printed a letter attesting to my need for a booster (3rd shot). I showed up for my appointment at a local pharmacy, fairly confident that I\u2019d be boosted within a half hour. But the woman behind the counter noted that I was requesting Moderna after getting Pfizer for my first two shots. I knew it was within my rights to mix and match, and when I explained my rationale to my specialist physician, he concurred. I showed my letter and explained that I had discussed this with my doctor, who approved my plan.<\/p>\n

Then the woman asked, \u201cAre you taking a TNF-alpha inhibitor?\u201d In that instant, I knew she was questioning whether I should even be eligible for the booster. I replied, truthfully, \u201cNo.\u201d Internally, I was thinking I had done everything right, including a signed letter from my physician. As an allied health professional, I knew that she was out of line, inquiring about private health information. But I also knew that she had the power to either facilitate or prohibit the vaccination. I told her, \u201cI\u2019m taking a steroid.\u201d She regarded me and asked, \u201cHigh-dose?\u201d I nodded and held my breath. Satisfied, she processed my paperwork and gave the pharmacist the clipboard. While I waited, I wondered if others had been denied a booster because of similar circumstances or if other factors had come into play. The woman behind the counter was white and I\u2019m Asian-American. I\u2019d like to think not, but if others didn\u2019t know their rights or how to answer her questions, they may not have received their vaccinations.<\/p>\n

To achieve better health equity and reduce health disparities, we need to standardize evidence-based high-quality service delivery and make it easier, not harder, to get the right care to the right person at the right time.<\/p>\n

I received my booster shortly thereafter and I found myself recalling the lyrics from \u201cMy Shot\u201d in the musical, Hamilton<\/em>:<\/p>\n

\u201cWe’re gonna rise up (time to take a shot)<\/em><\/p>\n

I am not throwin’ away my shot.\u201d<\/em><\/p>\n

Susan H. Lin, ScD, OTR\/L, FAOTA, FACRM,a lifelong member of the Society for Participatory Medicine is a consultant specializing in occupational therapy education and research. She is an affiliate professor in Marymount University\u2019s Center for Optimal Aging and serves on the Patient-Centered Outcomes Research Institute\u2019s (PCORI) Clinical Trials Advisory Panel. Her interests include health and wellness, implementation science, and prevention. Connect with her on <\/em>Twitter<\/em><\/a>\u00a0 or<\/em> LinkedIn.<\/em><\/a><\/p>\n

Not a member of the Society?\u00a0 Please consider joining here:\u00a0https:\/\/participatorymedicine.org\/memberships\/<\/a>.<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

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