{"id":2946,"date":"2009-08-06T21:57:53","date_gmt":"2009-08-07T02:57:53","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=2946"},"modified":"2009-08-06T21:59:11","modified_gmt":"2009-08-07T02:59:11","slug":"e-patients-a-high-tech-group-wants-our-input-gasp-on-connected-health-do-it","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2009\/08\/e-patients-a-high-tech-group-wants-our-input-gasp-on-connected-health-do-it.html","title":{"rendered":"e-Patients: a high tech group wants our input (gasp!) on connected health. DO IT!"},"content":{"rendered":"<p>I&#8217;m not making this up; it&#8217;s a wonderful thing. <a title=\"epd\" href=\"http:\/\/www.massmedic.com\/\" target=\"_blank\">MassMEDIC<\/a>, the Massachusetts Medical Device Industry Council, is looking at the future of &#8220;connected health&#8221; devices. They&#8217;ve got a survey that&#8217;s been given to all kinds of industry and policy people, and now, blow me down, they want <em>patients <\/em>to take the survey too.<\/p>\n<p><strong>DO IT!\u00a0 Go get your friends.<\/strong><em> Let&#8217;s make this invitation rewarding to the industry people who invited us. <\/em><\/p>\n<p>The link to the survey is at bottom. But first, if you&#8217;re not up on what connected health is, get informed. Here&#8217;s a start. <em><br \/>\n<\/em><\/p>\n<p><img decoding=\"async\" title=\"More...\" src=\"..\/wp-includes\/js\/tinymce\/plugins\/wordpress\/img\/trans.gif\" alt=\"\" \/><!--more--><br \/>\n<em><\/em><a title=\"epd\" href=\"http:\/\/en.wikipedia.org\/wiki\/Connected_Health\" target=\"_blank\">The Wikipedia article<\/a> defines it nicely:<\/p>\n<blockquote><p><strong>Connected Health<\/strong> is a term used to describe a model for healthcare delivery that uses technology to provide healthcare remotely.<\/p>\n<p>Connected health aims to maximize healthcare resources and provide increased, flexible opportunities for <strong>consumers to engage with clinicians<\/strong> and <strong>better self-manage their care.<\/strong> It uses technology \u2013 often leveraging readily available consumer technologies \u2013 to deliver patient care outside of the hospital or doctor\u2019s office.<\/p>\n<p>Connected health encompasses programs in telehealth, remote care (such as home care) and disease and lifestyle management, and is associated with efforts to improve chronic care.&#8221;<\/p><\/blockquote>\n<p>I&#8217;d add that it&#8217;s not <em>just <\/em>about chronic care.\u00a0 In my grand semi-educated vision, we&#8217;d have all kinds of devices:<\/p>\n<ul>\n<li><strong><a href=\"http:\/\/www.amazon.com\/dp\/B000O58QM0\/?tag=googhydr-20&amp;hvadid=2208157061&amp;ref=pd_sl_2zjw4ozfzw_b\" target=\"_blank\">My blood pressure machine<\/a><\/strong> already has USB and uploads data to my PC. (I want it to have wifi and upload data to my doctor.)<\/li>\n<li><strong>My bathroom scale<\/strong> should do the same, eh?<\/li>\n<li>Why not let diabetics&#8217; <a href=\"http:\/\/freestylenavigator.com\/ab_nav\/url\/content\/en_US\/10.20:20\/general_content\/General_Content_0000010.htm\" target=\"_blank\"><strong>CGM devices<\/strong><\/a> (continuous glucose monitors) should upload their readings into their personal health record?<\/li>\n<li><strong>Cardiac monitors<\/strong> could do the same. (An example that may or may not be on target is <a href=\"http:\/\/is.gd\/25O5x\" target=\"_blank\">Holter monitors<\/a>.)<\/li>\n<li>And so on and so on.<\/li>\n<\/ul>\n<p>All that data would be online (just like your bank statement) and both you and your consultant\/doctor could view it. And clever software could monitor it for you.<\/p>\n<p>A key principle, in my view, is that <strong>automation works:<\/strong> things that are automated get done much more reliably than things that I have to remember and &#8220;get around to.&#8221;<\/p>\n<p>There&#8217;s no better example of this in my life than computer backups. Over the years I spent over a thousand dollars on well-intentioned backup devices and software: Zip drives, external hard drives, tape drives. Mind you, I <em>know <\/em>the right way to do backups (full backup monthly or weekly, incremental in between, blah blah blah) but knowledge isn&#8217;t action. (In medical lingo I was a &#8220;non-compliant&#8221; backer-upper.)<\/p>\n<p>Y&#8217;know what works for backup? Carbonite: you start it running and it <strong>runs in the background, continuously<\/strong> backing up your data over the internet. So, last November, when we visited a delicious B&amp;B in Provincetown and I just <em>happened<\/em> to drop my computer on a gorgeous tile floor, I put in a new disk drive and all my data came back. (It took 3 days, but <em>nothing<\/em> was lost. It worked. I only had to reinstall my applications.)<\/p>\n<p>So I&#8217;m like all <em>over<\/em> the idea of connected health gadgets that gather data and pump them out to elsewhere.<\/p>\n<p>The survey is a dozen questions, and takes 5-10 minutes. <strong>You can start it and work your way through and stop and come back later. <\/strong>I did that, to let myself think.<\/p>\n<p>Be aware, this is a business survey, so a lot of the questions about what factors will help or hinder adoption of the technology.\u00a0 On some, I had to use &#8220;Other&#8221; and enter &#8220;I have no idea&#8221; or &#8220;There&#8217;s no one single cause.&#8221; Express yourself!<\/p>\n<p>One last note: the final question is &#8220;<abbr title=\"Question 12\"><\/abbr>In what way could Connected Health be most beneficial to you?&#8221; It&#8217;s an open text box, and <em>you&#8217;re invited to type a personal note<\/em> about your condition or particular interests, if you want. (That topic wasn&#8217;t designed into the survey, but they said we could use it that way, if we want.)<\/p>\n<p>The survey starts <a href=\"http:\/\/www.surveymonkey.com\/s.aspx?sm=cwqHWXswowiHR3yCpT7gOQ_3d_3d\" target=\"_blank\">here<\/a>.<\/p>\n<p>Thanks to MassMEDIC for including <strong>the ultimate stakeholder<\/strong> in the research, and especially thanks to researcher Vaishali Kamat of <a href=\"http:\/\/www.cambridgeconsultants.com\" target=\"_blank\">Cambridge Consultants<\/a>, who met with me in Harvard Square one rainy Sunday for more than an hour and who returned today, inviting patients to participate in the survey.<\/p>\n<p>DO IT! And go get your friends. Have them study up, think, and respond. Deadline is August 15.<\/p>\n<p>p.s. If you become a Carbonite subscriber, tell &#8217;em I sent you so I get referral points toward my free toaster. <em>And<\/em>, be aware that their tech support is, well, offshore: a chat session yesterday started with the rep saying &#8220;I will defiantly help you with same.&#8221; (I replied &#8220;Are you angry?&#8221;) (Yes, I did.)\u00a0 But we eventually got it done.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>I&#8217;m not making this up; it&#8217;s a wonderful thing. MassMEDIC, the Massachusetts Medical Device Industry Council, is looking at the future of &#8220;connected health&#8221; devices. They&#8217;ve got a survey that&#8217;s been given to all kinds of industry and policy people, and now, blow me down, they want patients to take the survey too. DO IT!\u00a0 [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false}}},"categories":[367,5,59,7,2],"tags":[1816,1817,1831,1812,1836,1001,1808,998,1834,1811,1810,1807,1837,1809,1835,1805,1806,384,1167,50],"coauthors":[],"jetpack_publicize_connections":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>e-Patients: a high tech group wants our input (gasp!) on connected health. 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