{"id":3,"date":"2006-03-30T09:51:42","date_gmt":"2006-03-30T14:51:42","guid":{"rendered":"http:\/\/72.9.147.40\/archives\/2006\/03\/the-voice-of-the-patient.html"},"modified":"2006-03-30T09:51:42","modified_gmt":"2006-03-30T14:51:42","slug":"the-voice-of-the-patient","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html","title":{"rendered":"The Voice of the Patient"},"content":{"rendered":"

This January 12, 2005 interview with Don Berwick<\/a>, at the Health Affairs<\/a> web site, underlies the importance of doing all we can to make the “voice of the patient” directly accessible-to the press, health policy planners, government officials, and medical professionals.<\/p>\n

Like many of us, Don has now concluded that positive healthcare reform will not come from within the health care system, the medical profession, or the federal government. I think that we are edging closer and closer to a crowing consensus that the only hope for successful healthcare reform lies in understanding and leveraging the e-patient revolution<\/a>.<\/p>\n

There’s a deficiency of will and ambition in the major centers of power in the delivery of health care in America. We do not have a shared aim to raise the bar in performance. That’s the problem<\/p>\n

External pressure will be necessary to move the system toward meaningful change.<\/p>\n

I don’t care so much what the doctors say. I care what the patients say.<\/p>\n

The voice of the patient… the eloquence of the patient to speak up about what they need and want, is so powerful. We haven’t invited patients to speak up enough. [We need to provide] a megaphone for the patients. It’s [all about] storytelling; it’s hearing that this patient was in my hospital and this is what they went through. We need to create a space for patients to talk about things like that. Because, sooner or later, it’s going to be me or my child.<\/p><\/blockquote>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

This January 12, 2005 interview with Don Berwick<\/a>, at the Health Affairs<\/a> web site, underlies the importance of doing all we can to make the “voice of the patient” directly accessible-to the press, health policy planners, government officials, and medical professionals.<\/p>\n","protected":false},"author":26,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false},"version":2}},"categories":[4,5,3],"tags":[],"coauthors":[8282],"class_list":["post-3","post","type-post","status-publish","format-standard","hentry","category-patient-networks","category-ptdoc-co-care","category-pts-as-teachers"],"jetpack_publicize_connections":[],"yoast_head":"\nThe Voice of the Patient - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The Voice of the Patient - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"This January 12, 2005 interview with Don Berwick, at the Health Affairs web site, underlies the importance of doing all we can to make the "voice of the patient" directly accessible-to the press, health policy planners, government officials, and medical professionals.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html\" \/>\n<meta property=\"og:site_name\" content=\"SPM Blog\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/participatorymedicine\" \/>\n<meta property=\"article:published_time\" content=\"2006-03-30T14:51:42+00:00\" \/>\n<meta name=\"author\" content=\"Tom\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@s4pm\" \/>\n<meta name=\"twitter:site\" content=\"@s4pm\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Tom\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html#article\",\"isPartOf\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html\"},\"author\":{\"name\":\"Tom\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/a0344e4f87966a215a0f4a618e320ddf\"},\"headline\":\"The Voice of the Patient\",\"datePublished\":\"2006-03-30T14:51:42+00:00\",\"dateModified\":\"2006-03-30T14:51:42+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html\"},\"wordCount\":257,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#organization\"},\"articleSection\":[\"Patient Networks\",\"Patient\/Doctor Co-Care\",\"Patients as Teachers\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html\",\"url\":\"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html\",\"name\":\"The Voice of the Patient - SPM Blog\",\"isPartOf\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#website\"},\"datePublished\":\"2006-03-30T14:51:42+00:00\",\"dateModified\":\"2006-03-30T14:51:42+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/participatorymedicine.org\/epatients\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"The Voice of the Patient\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#website\",\"url\":\"https:\/\/participatorymedicine.org\/epatients\/\",\"name\":\"SPM Blog\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/participatorymedicine.org\/epatients\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#organization\",\"name\":\"Society for Participatory Medicine\",\"url\":\"https:\/\/participatorymedicine.org\/epatients\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png\",\"contentUrl\":\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png\",\"width\":971,\"height\":269,\"caption\":\"Society for Participatory Medicine\"},\"image\":{\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/participatorymedicine\",\"https:\/\/x.com\/s4pm\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/a0344e4f87966a215a0f4a618e320ddf\",\"name\":\"Tom\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/image\/23494c9101089ad44ae88ce9d2f56aac\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/?s=96&d=mm&r=g\",\"caption\":\"Tom\"},\"url\":\"https:\/\/participatorymedicine.org\/epatients\/author\/tom\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"The Voice of the Patient - SPM Blog","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html","og_locale":"en_US","og_type":"article","og_title":"The Voice of the Patient - SPM Blog","og_description":"This January 12, 2005 interview with Don Berwick, at the Health Affairs web site, underlies the importance of doing all we can to make the \"voice of the patient\" directly accessible-to the press, health policy planners, government officials, and medical professionals.","og_url":"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html","og_site_name":"SPM Blog","article_publisher":"https:\/\/www.facebook.com\/participatorymedicine","article_published_time":"2006-03-30T14:51:42+00:00","author":"Tom","twitter_card":"summary_large_image","twitter_creator":"@s4pm","twitter_site":"@s4pm","twitter_misc":{"Written by":"Tom","Est. reading time":"1 minute"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html#article","isPartOf":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html"},"author":{"name":"Tom","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/a0344e4f87966a215a0f4a618e320ddf"},"headline":"The Voice of the Patient","datePublished":"2006-03-30T14:51:42+00:00","dateModified":"2006-03-30T14:51:42+00:00","mainEntityOfPage":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html"},"wordCount":257,"commentCount":0,"publisher":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#organization"},"articleSection":["Patient Networks","Patient\/Doctor Co-Care","Patients as Teachers"],"inLanguage":"en-US","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html#respond"]}]},{"@type":"WebPage","@id":"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html","url":"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html","name":"The Voice of the Patient - SPM Blog","isPartOf":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#website"},"datePublished":"2006-03-30T14:51:42+00:00","dateModified":"2006-03-30T14:51:42+00:00","breadcrumb":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/participatorymedicine.org\/epatients\/"},{"@type":"ListItem","position":2,"name":"The Voice of the Patient"}]},{"@type":"WebSite","@id":"https:\/\/participatorymedicine.org\/epatients\/#website","url":"https:\/\/participatorymedicine.org\/epatients\/","name":"SPM Blog","description":"","publisher":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/participatorymedicine.org\/epatients\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/participatorymedicine.org\/epatients\/#organization","name":"Society for Participatory Medicine","url":"https:\/\/participatorymedicine.org\/epatients\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/","url":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png","contentUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png","width":971,"height":269,"caption":"Society for Participatory Medicine"},"image":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/participatorymedicine","https:\/\/x.com\/s4pm"]},{"@type":"Person","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/a0344e4f87966a215a0f4a618e320ddf","name":"Tom","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/image\/23494c9101089ad44ae88ce9d2f56aac","url":"https:\/\/secure.gravatar.com\/avatar\/?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/?s=96&d=mm&r=g","caption":"Tom"},"url":"https:\/\/participatorymedicine.org\/epatients\/author\/tom"}]}},"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/p8S1TQ-3","jetpack-related-posts":[],"_links":{"self":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/3"}],"collection":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/users\/26"}],"replies":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/comments?post=3"}],"version-history":[{"count":0,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/3\/revisions"}],"wp:attachment":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/media?parent=3"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/categories?post=3"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/tags?post=3"},{"taxonomy":"author","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/coauthors?post=3"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}