{"id":3,"date":"2006-03-30T09:51:42","date_gmt":"2006-03-30T14:51:42","guid":{"rendered":"http:\/\/72.9.147.40\/archives\/2006\/03\/the-voice-of-the-patient.html"},"modified":"2006-03-30T09:51:42","modified_gmt":"2006-03-30T14:51:42","slug":"the-voice-of-the-patient","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2006\/03\/the-voice-of-the-patient.html","title":{"rendered":"The Voice of the Patient"},"content":{"rendered":"<p>This January 12, 2005 <a href=\"http:\/\/content.healthaffairs.org\/cgi\/content\/full\/hlthaff.w5.1\/DC1\">interview with Don Berwick<\/a>, at the <a href=\"http:\/\/www.healthaffairs.org\/\">Health Affairs<\/a> web site, underlies the importance of doing all we can to make the &#8220;voice of the patient&#8221; directly accessible-to the press, health policy planners, government officials, and medical professionals.<\/p>\n<p>Like many of us, Don has now concluded that positive healthcare reform will not come from within the health care system, the medical profession, or the federal government. I think that we are edging closer and closer to a crowing consensus that the only hope for successful healthcare reform lies in understanding and leveraging the <a href=\"http:\/\/www.pewinternet.org\/PPF\/r\/26\/report_display.asp\">e-patient revolution<\/a>.<\/p>\n<blockquote><p>There&#8217;s a deficiency of will and ambition  in the major centers of power in the delivery of health care in America. We  do not have a shared aim to raise the bar in performance. That&#8217;s the  problem<\/p>\n<p>External pressure will be necessary to move the system toward meaningful change.<\/p>\n<p>I don&#8217;t care so much what the doctors say. I care what the patients  say.<\/p>\n<p>The voice of the patient&#8230; the  eloquence of the patient to speak up about what they need and want, is  so powerful. We haven&#8217;t invited patients to speak up enough. [We need to provide]  a megaphone for the patients. It&#8217;s [all about] storytelling; it&#8217;s hearing that this patient was in my hospital and this is what they went through. We need to create a space for patients to talk about things like  that. Because, sooner or later, it&#8217;s going to be me or my child.<\/p><\/blockquote>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>This January 12, 2005 <a href=\"http:\/\/content.healthaffairs.org\/cgi\/content\/full\/hlthaff.w5.1\/DC1\">interview with Don Berwick<\/a>, at the <a href=\"http:\/\/www.healthaffairs.org\/\">Health Affairs<\/a> web site, underlies the importance of doing all we can to make the &#8220;voice of the patient&#8221; directly accessible-to the press, health policy planners, government officials, and medical professionals.<\/p>\n","protected":false},"author":26,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[4,5,3],"tags":[],"coauthors":[8282],"class_list":["post-3","post","type-post","status-publish","format-standard","hentry","category-patient-networks","category-ptdoc-co-care","category-pts-as-teachers"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - 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