{"id":3199,"date":"2009-09-17T16:47:45","date_gmt":"2009-09-17T21:47:45","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=3199"},"modified":"2009-10-09T22:39:25","modified_gmt":"2009-10-10T03:39:25","slug":"participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2009\/09\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html","title":{"rendered":"Participatory Medicine and Patient Research: It’s Gonna be a New World, indeed!"},"content":{"rendered":"

Matthew Herper’s post about thalidomide treatment <\/a>of Myeloma is a good\u00a0example of\u00a0how patients will contribute to medical knowledge in the future, and may form a cautionary tale for patients who get involved to this degree in formulating new treatment approaches.<\/p>\n

I work at UAMS with Bart Barlogie, MD, (quoted in the article as the physician who ran the first clinical trial of the use of thalidomide in treatment of Myeloma) who is a brilliant, innovative clinician researcher who has extended the life of many patients with Myeloma with his treatment approaches.\u00a0 I, like many of my “e-patient” colleagues, was also a good friend of Tom Ferguson, MD, who came to UAMS and was treated with thalidomide in 1999.\u00a0\u00a0\u00a0 Tom was also the founder of the “e-patient scholars” who started this web site and still meet annually.\u00a0\u00a0What he began has morphed to the budding Participatory Medicine movement, evidenced by the formation of the Society of Participatory Medicine and the soon-to-be-launched Journal of Participatory Medicine, which I will Co Edit along with Jessie Gruman.\u00a0 And that takes us back full circle to this story of a patient doing research about their condition as an example of Particpatory Medicine, which Tom strongly encouraged, \u00a0facilitated and exemplified with his actions.<\/p>\n

Whether Beth Jacobsen’s accusations about Celgene stealing her husband’s idea has merit or not is not something I am prepared to comment on.\u00a0 I’ll let the courts sort that out.\u00a0 But the fact that her husband pushed her physician to try a novel approach to try to save his life, and that it was tried (even though it didn’t work for him), is an example of what will happen increasingly in the “new world of Participatory Medicine”.<\/p>\n

The article notes that, although Mr. Jacobsen didn’t respond to Thalidomide, the next patient had a dramatic response.\u00a0 Again, ironically, Tom Ferguson was one of the early patients who was treated at UAMS by Dr. Barlogie with Thalidomide.\u00a0 His Myeloma was rather advanced at the time, in 1999.\u00a0 Whether the Thalidomide was the reason or not, he did well for years after that.\u00a0 I didn’t meet Tom until much later, in 2005 and he died of complications of his disease in 2008.<\/p>\n

So, he would undoubtedly be cheering with the knowledge that the treatment that helped him beat back his disease for over a decade was probably “discovered” by a patient who was practicing Participatory Medicine!<\/p>\n

How many other clinical trials are out there waiting to be started by ideas engineered by\u00a0patients who have the utmost to gain and the ultimate motivation–saving their own life.<\/p>\n

Participatory Medicine:\u00a0 Patients doing research, usually online, and taking the ideas into the medical arena.\u00a0 Get ready, it’s going to be\u00a0a brand new world!<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Matthew Herper’s post about thalidomide treatment of Myeloma is a good\u00a0example of\u00a0how patients will contribute to medical knowledge in the future, and may form a cautionary tale for patients who […]<\/p>\n","protected":false},"author":31,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1,2304],"tags":[2123,2112,2121,2119,1310,2120,2125,2115,2122,2117,2104,2106,2118,2108,2124,2105,2113,2107,2114,2111],"coauthors":[],"class_list":["post-3199","post","type-post","status-publish","format-standard","hentry","category-general","category-why-pm","tag-accusations","tag-bart","tag-celgene","tag-clinical-trial","tag-colleagues","tag-doing-research","tag-dramatic-response","tag-good-friend","tag-jacobsen","tag-jessie-gruman","tag-matthew-herper","tag-medical-knowledge","tag-medicine-movement","tag-myeloma","tag-novel-approach","tag-patient-research","tag-researcher","tag-thalidomide","tag-tom-ferguson-md","tag-uams"],"yoast_head":"\nParticipatory Medicine and Patient Research: It's Gonna be a New World, indeed! - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2009\/09\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Participatory Medicine and Patient Research: It's Gonna be a New World, indeed! - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"Matthew Herper’s post about thalidomide treatment of Myeloma is a good\u00a0example of\u00a0how patients will contribute to medical knowledge in the future, and may form a cautionary tale for patients who […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/participatorymedicine.org\/epatients\/2009\/09\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html\" \/>\n<meta property=\"og:site_name\" content=\"SPM Blog\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/participatorymedicine\" \/>\n<meta property=\"article:published_time\" content=\"2009-09-17T21:47:45+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2009-10-10T03:39:25+00:00\" \/>\n<meta name=\"author\" content=\"Charlie Smith\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@s4pm\" \/>\n<meta name=\"twitter:site\" content=\"@s4pm\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charlie Smith\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/09\\\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/09\\\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html\"},\"author\":{\"name\":\"Charlie Smith\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/person\\\/78ed7d106262bc8cbdcff1f680e8022d\"},\"headline\":\"Participatory Medicine and Patient Research: It’s Gonna be a New World, indeed!\",\"datePublished\":\"2009-09-17T21:47:45+00:00\",\"dateModified\":\"2009-10-10T03:39:25+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/09\\\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html\"},\"wordCount\":474,\"commentCount\":7,\"publisher\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#organization\"},\"keywords\":[\"Accusations\",\"Bart\",\"Celgene\",\"Clinical Trial\",\"Colleagues\",\"Doing Research\",\"Dramatic Response\",\"Good Friend\",\"Jacobsen\",\"Jessie Gruman\",\"Matthew Herper\",\"Medical Knowledge\",\"Medicine Movement\",\"Myeloma\",\"Novel Approach\",\"Patient Research\",\"Researcher\",\"Thalidomide\",\"Tom Ferguson Md\",\"Uams\"],\"articleSection\":[\"General\",\"Why PM\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/09\\\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/09\\\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/09\\\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html\",\"name\":\"Participatory Medicine and Patient Research: It's Gonna be a New World, indeed! - SPM Blog\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#website\"},\"datePublished\":\"2009-09-17T21:47:45+00:00\",\"dateModified\":\"2009-10-10T03:39:25+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/09\\\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/09\\\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/09\\\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Participatory Medicine and Patient Research: It’s Gonna be a New World, indeed!\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#website\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/\",\"name\":\"SPM Blog\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#organization\",\"name\":\"Society for Participatory Medicine\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2017\\\/06\\\/spm-logo-13.png\",\"contentUrl\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2017\\\/06\\\/spm-logo-13.png\",\"width\":971,\"height\":269,\"caption\":\"Society for Participatory Medicine\"},\"image\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/www.facebook.com\\\/participatorymedicine\",\"https:\\\/\\\/x.com\\\/s4pm\"]},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/person\\\/78ed7d106262bc8cbdcff1f680e8022d\",\"name\":\"Charlie Smith\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/b11186557bb7dde2da0708e949ecc5a4e886f301354a96256dfef56d7e9f8337?s=96&d=mm&r=g1fe9ef6dd19507a717d325cd3e843bd6\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/b11186557bb7dde2da0708e949ecc5a4e886f301354a96256dfef56d7e9f8337?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/b11186557bb7dde2da0708e949ecc5a4e886f301354a96256dfef56d7e9f8337?s=96&d=mm&r=g\",\"caption\":\"Charlie Smith\"},\"sameAs\":[\"http:\\\/\\\/\"],\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/author\\\/charlie-smith\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Participatory Medicine and Patient Research: It's Gonna be a New World, indeed! - SPM Blog","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/participatorymedicine.org\/epatients\/2009\/09\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html","og_locale":"en_US","og_type":"article","og_title":"Participatory Medicine and Patient Research: It's Gonna be a New World, indeed! - SPM Blog","og_description":"Matthew Herper’s post about thalidomide treatment of Myeloma is a good\u00a0example of\u00a0how patients will contribute to medical knowledge in the future, and may form a cautionary tale for patients who […]","og_url":"https:\/\/participatorymedicine.org\/epatients\/2009\/09\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html","og_site_name":"SPM Blog","article_publisher":"https:\/\/www.facebook.com\/participatorymedicine","article_published_time":"2009-09-17T21:47:45+00:00","article_modified_time":"2009-10-10T03:39:25+00:00","author":"Charlie Smith","twitter_card":"summary_large_image","twitter_creator":"@s4pm","twitter_site":"@s4pm","twitter_misc":{"Written by":"Charlie Smith","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/participatorymedicine.org\/epatients\/2009\/09\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html#article","isPartOf":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2009\/09\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html"},"author":{"name":"Charlie Smith","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/78ed7d106262bc8cbdcff1f680e8022d"},"headline":"Participatory Medicine and Patient Research: It’s Gonna be a New World, indeed!","datePublished":"2009-09-17T21:47:45+00:00","dateModified":"2009-10-10T03:39:25+00:00","mainEntityOfPage":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2009\/09\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html"},"wordCount":474,"commentCount":7,"publisher":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#organization"},"keywords":["Accusations","Bart","Celgene","Clinical Trial","Colleagues","Doing Research","Dramatic Response","Good Friend","Jacobsen","Jessie Gruman","Matthew Herper","Medical Knowledge","Medicine Movement","Myeloma","Novel Approach","Patient Research","Researcher","Thalidomide","Tom Ferguson Md","Uams"],"articleSection":["General","Why PM"],"inLanguage":"en-US","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/participatorymedicine.org\/epatients\/2009\/09\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html#respond"]}]},{"@type":"WebPage","@id":"https:\/\/participatorymedicine.org\/epatients\/2009\/09\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html","url":"https:\/\/participatorymedicine.org\/epatients\/2009\/09\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html","name":"Participatory Medicine and Patient Research: It's Gonna be a New World, indeed! - SPM Blog","isPartOf":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#website"},"datePublished":"2009-09-17T21:47:45+00:00","dateModified":"2009-10-10T03:39:25+00:00","breadcrumb":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2009\/09\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/participatorymedicine.org\/epatients\/2009\/09\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/participatorymedicine.org\/epatients\/2009\/09\/participatory-medicine-and-patient-research-its-gonna-be-a-new-world-indeed.html#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/participatorymedicine.org\/epatients\/"},{"@type":"ListItem","position":2,"name":"Participatory Medicine and Patient Research: It’s Gonna be a New World, indeed!"}]},{"@type":"WebSite","@id":"https:\/\/participatorymedicine.org\/epatients\/#website","url":"https:\/\/participatorymedicine.org\/epatients\/","name":"SPM Blog","description":"","publisher":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/participatorymedicine.org\/epatients\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/participatorymedicine.org\/epatients\/#organization","name":"Society for Participatory Medicine","url":"https:\/\/participatorymedicine.org\/epatients\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/","url":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png","contentUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png","width":971,"height":269,"caption":"Society for Participatory Medicine"},"image":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/participatorymedicine","https:\/\/x.com\/s4pm"]},{"@type":"Person","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/78ed7d106262bc8cbdcff1f680e8022d","name":"Charlie Smith","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/secure.gravatar.com\/avatar\/b11186557bb7dde2da0708e949ecc5a4e886f301354a96256dfef56d7e9f8337?s=96&d=mm&r=g1fe9ef6dd19507a717d325cd3e843bd6","url":"https:\/\/secure.gravatar.com\/avatar\/b11186557bb7dde2da0708e949ecc5a4e886f301354a96256dfef56d7e9f8337?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/b11186557bb7dde2da0708e949ecc5a4e886f301354a96256dfef56d7e9f8337?s=96&d=mm&r=g","caption":"Charlie Smith"},"sameAs":["http:\/\/"],"url":"https:\/\/participatorymedicine.org\/epatients\/author\/charlie-smith"}]}},"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/p8S1TQ-PB","jetpack-related-posts":[],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/3199","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/users\/31"}],"replies":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/comments?post=3199"}],"version-history":[{"count":5,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/3199\/revisions"}],"predecessor-version":[{"id":3448,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/3199\/revisions\/3448"}],"wp:attachment":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/media?parent=3199"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/categories?post=3199"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/tags?post=3199"},{"taxonomy":"author","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/coauthors?post=3199"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}