{"id":3231,"date":"2009-09-25T08:45:56","date_gmt":"2009-09-25T13:45:56","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=3231"},"modified":"2009-09-25T08:47:11","modified_gmt":"2009-09-25T13:47:11","slug":"hipaa-is-so-1996","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2009\/09\/hipaa-is-so-1996.html","title":{"rendered":"“HIPAA is SO 1996”"},"content":{"rendered":"

That’s a direct quote from Paul Tang<\/a>, of the Palo Alto Medical Foundation, at last week’s meeting of the Health IT Policy committee<\/a>, of which he is vice chair.<\/p>\n

Dr. Tang was riffing on an e-Patient Dave quote, which I read during my testimony<\/a>:<\/p>\n

I want innovation at a rate that resembles the rate of improvement in cell phones and iPods: I want to think, in 2011, that the healthcare tool I started using in 2009 is, well, \u201cthat\u2019s SO 2009,\u201d just the way many people think about their cell phones.<\/p><\/blockquote>\n

It’s a good meme, made better by Latanya Sweeney<\/a>‘s testimony at the end of the day which asked the committee to start digging in to infrastructure design, not just abstract policy discussions. Here are some quotes I captured:<\/p>\n

“The Advance HIT Project (advancehit.org) launches Monday: our goal is to ensure tech decisions are well-informed. <\/span><\/span>My goal was to leave you with hope. Barring that, some architectural designs.”<\/span><\/span><\/p>\n

“I wish that there had been a meeting that included 5 ways to design the national infrastructure, <\/span><\/span>then we asked panelists how their privacy concerns mapped onto those 5 designs.”<\/span><\/span><\/p>\n

Keep following the work of this committee. Their debates go to the heart of participatory medicine: whose data is it? What policies will be in place to allow data liquidity yet protect patient privacy? And to quote Diana Forsythe (yes, again<\/a>!):<\/span><\/span><\/p>\n

Whose assumptions and whose point of view are inscribed in the design of this tool?<\/em><\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

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