{"id":4184,"date":"2009-12-15T08:10:44","date_gmt":"2009-12-15T13:10:44","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=4184"},"modified":"2009-12-15T08:15:54","modified_gmt":"2009-12-15T13:15:54","slug":"what-part-of-give-us-our-damn-data-do-you-not-understand","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2009\/12\/what-part-of-give-us-our-damn-data-do-you-not-understand.html","title":{"rendered":"What part of &#8220;Give us our damn data&#8221; do you not understand?"},"content":{"rendered":"<p>Yesterday I attended &#8220;How Access to Information Can Empower Patients and their Caregivers,&#8221; conducted by the Consumer Partnership for eHealth. CPeH is an alliance of stakeholder groups sponsored by the National Partnership for Women and Families. It has no web site of its own &#8211; it&#8217;s just a Partnership for Consumer eHealth (duh), convening to work on accomplishing good health through IT &#8211; especially health data.<\/p>\n<p>An incredible moment (and I don&#8217;t say that often) happened after three physicians presented how their organizations are giving patients access to their medical records online. Their presentations were all encouraging. But during Q&amp;A we got down to the nitty details, and comments from two physicians revealed a well-meaning attitude that I can only describe as protective and paternal:<\/p>\n<ul>\n<li>Concern about emotional impact of bad news<\/li>\n<li>Concern about the difficulty of interpreting some reports: &#8220;Even\u00a0I\u00a0can&#8217;t understand radiology reports sometimes.&#8221;<\/li>\n<\/ul>\n<p>Regina Holliday was there &#8211; the &#8220;73 Cents&#8221; artist whose husband died of kidney cancer in June. Ted Eytan MD, an avid advocate of patient empowerment, asked her thoughts. With a cold clear look in her eye she said:<!--more--><\/p>\n<blockquote><p><span> <\/span><\/p>\n<div>When I finally got my hands on his medical records &#8211; a <strong>month <\/strong>after I asked for them &#8211; I saw that on 3\/25, 3\/26, 3\/27 and 3\/28 they mentioned an 8cm tumor in one  kidney and 10cm in the other, a large growth in the abdomen, bone mets in the  pelvis, sacrum, femur, and skull, and soft tissue mets throughout the lung; at the  end the reports say they couldn&#8217;t get a good image &#8220;due to patient&#8217;s extremely  distended bladder.&#8221;\u00a0 The  nurse&#8217;s notes of 4-7 also mention concern over urine retention.<\/div>\n<div>After another CT on 4-10, <strong><em>then <\/em><\/strong>the radiologist comes to me to tell me verbally that the  patient&#8217;s bladder is on the point of rupture.<\/div>\n<div>My husband almost died from a ruptured and infected bladder, while in the care of hospital staff, because nobody <strong>read<\/strong> the record. \u00a0I could have read it and known he needed a  catheter.<\/div>\n<\/blockquote>\n<p>What came next was telling: a physician, meaning well I&#8217;m sure, said &#8220;Well, we can sit here &#8211; we&#8217;re all college educated &#8230;&#8221; and Regina said &#8220;I&#8217;m not.&#8221;<\/p>\n<p>What lessons can we take away?\u00a0 I&#8217;ll start:<\/p>\n<ul>\n<li>You don&#8217;t have to be an MD to contribute value from seeing the record.\n<ul>\n<li>Consider the <a href=\"https:\/\/participatorymedicine.org\/epatients\/archives\/2008\/03\/e-patients-might-have-prevented-minnesota-wrong-kidney-tragedy.html\">Minnesota kidney cancer tragedy<\/a> two years ago. (A cancer patient awoke to find that the wrong kidney had been removed. It traced back to an error in the first dictated report.) If the family had seen the doctor&#8217;s notes they could have spotted the wrong-side error.<\/li>\n<\/ul>\n<\/li>\n<li>As internet visionary Clay Shirky has said, \u201cGiving patients access \u000bto their medical records \u000bwill just naturally improve \u000bthe quality of what&#8217;s in there. It&#8217;s like the way you clean up \u000bwhen you know company&#8217;s coming.\u201d<\/li>\n<\/ul>\n<p>Regina summed it up in an email today: &#8220;Have they met the folks on <a href=\"http:\/\/www.acor.org\">ACOR<\/a>? Might open their eyes.&#8221;<\/p>\n<p>Perhaps protective paternalism should be inverted: DO show us our data, to help us save our own butts from medical error.<\/p>\n<p>Now that I think of it, who <em>wouldn&#8217;t <\/em>want to let us help save our own family members?<\/p>\n<p>What a fitting fulfillment of the meeting&#8217;s title &#8211; &#8220;How Access to Information Can Empower Patients and their Caregivers.&#8221; Thanks to CPeH and the National Partnership for an important meeting.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Yesterday I attended &#8220;How Access to Information Can Empower Patients and their Caregivers,&#8221; conducted by the Consumer Partnership for eHealth. CPeH is an alliance of stakeholder groups sponsored by the [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[114,367,5,59],"tags":[3171,3177,3176,3172,3179,3160,1624,3169,3164,417,1135,3182,856,7709,3161,3174,3170,3168,3173,3162,3166,1097],"coauthors":[],"class_list":["post-4184","post","type-post","status-publish","format-standard","hentry","category-hcs-problem-list","category-medical-records","category-ptdoc-co-care","category-policy-issues","tag-10cm","tag-abdomen","tag-bladder","tag-catheter","tag-emotional-impact","tag-engagement-forum","tag-eytan","tag-femur","tag-good-health","tag-health-data","tag-holliday","tag-hospital-staff","tag-kidney-cancer","tag-medical-records","tag-national-partnership-for-women-and-families","tag-pelvis","tag-radiologist","tag-sacrum","tag-soft-tissue","tag-stakeholder-groups","tag-urine-retention","tag-well-meaning"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>What part of &quot;Give us our damn data&quot; do you not understand? - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2009\/12\/what-part-of-give-us-our-damn-data-do-you-not-understand.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"What part of &quot;Give us our damn data&quot; do you not understand? - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"Yesterday I attended &#8220;How Access to Information Can Empower Patients and their Caregivers,&#8221; conducted by the Consumer Partnership for eHealth. CPeH is an alliance of stakeholder groups sponsored by the [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/participatorymedicine.org\/epatients\/2009\/12\/what-part-of-give-us-our-damn-data-do-you-not-understand.html\" \/>\n<meta property=\"og:site_name\" content=\"SPM Blog\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/participatorymedicine\" \/>\n<meta property=\"article:published_time\" content=\"2009-12-15T13:10:44+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2009-12-15T13:15:54+00:00\" \/>\n<meta name=\"author\" content=\"e-Patient Dave\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@s4pm\" \/>\n<meta name=\"twitter:site\" content=\"@s4pm\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"e-Patient Dave\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/12\\\/what-part-of-give-us-our-damn-data-do-you-not-understand.html#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/12\\\/what-part-of-give-us-our-damn-data-do-you-not-understand.html\"},\"author\":{\"name\":\"e-Patient Dave\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/person\\\/964cf120da8ac17067b46802eb561e5d\"},\"headline\":\"What part of &#8220;Give us our damn data&#8221; do you not understand?\",\"datePublished\":\"2009-12-15T13:10:44+00:00\",\"dateModified\":\"2009-12-15T13:15:54+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/12\\\/what-part-of-give-us-our-damn-data-do-you-not-understand.html\"},\"wordCount\":584,\"commentCount\":55,\"publisher\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#organization\"},\"keywords\":[\"10cm\",\"Abdomen\",\"Bladder\",\"Catheter\",\"Emotional Impact\",\"Engagement Forum\",\"Eytan\",\"Femur\",\"Good Health\",\"Health Data\",\"Holliday\",\"Hospital Staff\",\"Kidney Cancer\",\"medical records\",\"National Partnership For Women And Families\",\"Pelvis\",\"Radiologist\",\"Sacrum\",\"Soft Tissue\",\"Stakeholder Groups\",\"Urine Retention\",\"Well Meaning\"],\"articleSection\":[\"Healthcare Problems\",\"Medical Records\",\"Patient\\\/Doctor Co-Care\",\"Policy Issues\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/12\\\/what-part-of-give-us-our-damn-data-do-you-not-understand.html#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/12\\\/what-part-of-give-us-our-damn-data-do-you-not-understand.html\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/12\\\/what-part-of-give-us-our-damn-data-do-you-not-understand.html\",\"name\":\"What part of \\\"Give us our damn data\\\" do you not understand? - SPM Blog\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#website\"},\"datePublished\":\"2009-12-15T13:10:44+00:00\",\"dateModified\":\"2009-12-15T13:15:54+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/12\\\/what-part-of-give-us-our-damn-data-do-you-not-understand.html#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/12\\\/what-part-of-give-us-our-damn-data-do-you-not-understand.html\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2009\\\/12\\\/what-part-of-give-us-our-damn-data-do-you-not-understand.html#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"What part of &#8220;Give us our damn data&#8221; do you not understand?\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#website\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/\",\"name\":\"SPM Blog\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#organization\",\"name\":\"Society for Participatory Medicine\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2017\\\/06\\\/spm-logo-13.png\",\"contentUrl\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2017\\\/06\\\/spm-logo-13.png\",\"width\":971,\"height\":269,\"caption\":\"Society for Participatory Medicine\"},\"image\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/www.facebook.com\\\/participatorymedicine\",\"https:\\\/\\\/x.com\\\/s4pm\"]},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/person\\\/964cf120da8ac17067b46802eb561e5d\",\"name\":\"e-Patient Dave\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/9f667d29481aa21d5c3e8a0274e7dad18a783f7cc04d9c94c1771438fcdd4558?s=96&d=mm&r=gbe7701cd8f5d751958d0a428533b1190\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/9f667d29481aa21d5c3e8a0274e7dad18a783f7cc04d9c94c1771438fcdd4558?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/9f667d29481aa21d5c3e8a0274e7dad18a783f7cc04d9c94c1771438fcdd4558?s=96&d=mm&r=g\",\"caption\":\"e-Patient Dave\"},\"description\":\"\\\"e-Patient Dave\\\" deBronkart is a co-founder of our Society and past board chair. He survived a near-fatal kidney cancer by being an e-patient long before he'd heard the word. Today he evangelizes participatory medicine, patient empowerment, and patient data access as a keynote speaker and at epatientdave.com.\",\"sameAs\":[\"http:\\\/\\\/www.epatientdave.com\"],\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/author\\\/dave-debronkart\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"What part of \"Give us our damn data\" do you not understand? - SPM Blog","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/participatorymedicine.org\/epatients\/2009\/12\/what-part-of-give-us-our-damn-data-do-you-not-understand.html","og_locale":"en_US","og_type":"article","og_title":"What part of \"Give us our damn data\" do you not understand? - SPM Blog","og_description":"Yesterday I attended &#8220;How Access to Information Can Empower Patients and their Caregivers,&#8221; conducted by the Consumer Partnership for eHealth. CPeH is an alliance of stakeholder groups sponsored by the [&hellip;]","og_url":"https:\/\/participatorymedicine.org\/epatients\/2009\/12\/what-part-of-give-us-our-damn-data-do-you-not-understand.html","og_site_name":"SPM Blog","article_publisher":"https:\/\/www.facebook.com\/participatorymedicine","article_published_time":"2009-12-15T13:10:44+00:00","article_modified_time":"2009-12-15T13:15:54+00:00","author":"e-Patient Dave","twitter_card":"summary_large_image","twitter_creator":"@s4pm","twitter_site":"@s4pm","twitter_misc":{"Written by":"e-Patient Dave","Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/participatorymedicine.org\/epatients\/2009\/12\/what-part-of-give-us-our-damn-data-do-you-not-understand.html#article","isPartOf":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2009\/12\/what-part-of-give-us-our-damn-data-do-you-not-understand.html"},"author":{"name":"e-Patient Dave","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/964cf120da8ac17067b46802eb561e5d"},"headline":"What part of &#8220;Give us our damn data&#8221; do you not understand?","datePublished":"2009-12-15T13:10:44+00:00","dateModified":"2009-12-15T13:15:54+00:00","mainEntityOfPage":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2009\/12\/what-part-of-give-us-our-damn-data-do-you-not-understand.html"},"wordCount":584,"commentCount":55,"publisher":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#organization"},"keywords":["10cm","Abdomen","Bladder","Catheter","Emotional Impact","Engagement Forum","Eytan","Femur","Good Health","Health Data","Holliday","Hospital Staff","Kidney Cancer","medical records","National Partnership For Women And Families","Pelvis","Radiologist","Sacrum","Soft Tissue","Stakeholder Groups","Urine Retention","Well Meaning"],"articleSection":["Healthcare Problems","Medical Records","Patient\/Doctor Co-Care","Policy Issues"],"inLanguage":"en-US","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/participatorymedicine.org\/epatients\/2009\/12\/what-part-of-give-us-our-damn-data-do-you-not-understand.html#respond"]}]},{"@type":"WebPage","@id":"https:\/\/participatorymedicine.org\/epatients\/2009\/12\/what-part-of-give-us-our-damn-data-do-you-not-understand.html","url":"https:\/\/participatorymedicine.org\/epatients\/2009\/12\/what-part-of-give-us-our-damn-data-do-you-not-understand.html","name":"What part of \"Give us our damn data\" do you not understand? - SPM Blog","isPartOf":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#website"},"datePublished":"2009-12-15T13:10:44+00:00","dateModified":"2009-12-15T13:15:54+00:00","breadcrumb":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2009\/12\/what-part-of-give-us-our-damn-data-do-you-not-understand.html#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/participatorymedicine.org\/epatients\/2009\/12\/what-part-of-give-us-our-damn-data-do-you-not-understand.html"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/participatorymedicine.org\/epatients\/2009\/12\/what-part-of-give-us-our-damn-data-do-you-not-understand.html#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/participatorymedicine.org\/epatients\/"},{"@type":"ListItem","position":2,"name":"What part of &#8220;Give us our damn data&#8221; do you not understand?"}]},{"@type":"WebSite","@id":"https:\/\/participatorymedicine.org\/epatients\/#website","url":"https:\/\/participatorymedicine.org\/epatients\/","name":"SPM Blog","description":"","publisher":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/participatorymedicine.org\/epatients\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/participatorymedicine.org\/epatients\/#organization","name":"Society for Participatory Medicine","url":"https:\/\/participatorymedicine.org\/epatients\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/","url":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png","contentUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png","width":971,"height":269,"caption":"Society for Participatory Medicine"},"image":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/participatorymedicine","https:\/\/x.com\/s4pm"]},{"@type":"Person","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/964cf120da8ac17067b46802eb561e5d","name":"e-Patient Dave","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/secure.gravatar.com\/avatar\/9f667d29481aa21d5c3e8a0274e7dad18a783f7cc04d9c94c1771438fcdd4558?s=96&d=mm&r=gbe7701cd8f5d751958d0a428533b1190","url":"https:\/\/secure.gravatar.com\/avatar\/9f667d29481aa21d5c3e8a0274e7dad18a783f7cc04d9c94c1771438fcdd4558?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/9f667d29481aa21d5c3e8a0274e7dad18a783f7cc04d9c94c1771438fcdd4558?s=96&d=mm&r=g","caption":"e-Patient Dave"},"description":"\"e-Patient Dave\" deBronkart is a co-founder of our Society and past board chair. He survived a near-fatal kidney cancer by being an e-patient long before he'd heard the word. Today he evangelizes participatory medicine, patient empowerment, and patient data access as a keynote speaker and at epatientdave.com.","sameAs":["http:\/\/www.epatientdave.com"],"url":"https:\/\/participatorymedicine.org\/epatients\/author\/dave-debronkart"}]}},"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/p8S1TQ-15u","jetpack-related-posts":[],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/4184","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/comments?post=4184"}],"version-history":[{"count":21,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/4184\/revisions"}],"predecessor-version":[{"id":4204,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/4184\/revisions\/4204"}],"wp:attachment":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/media?parent=4184"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/categories?post=4184"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/tags?post=4184"},{"taxonomy":"author","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/coauthors?post=4184"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}