{"id":5567,"date":"2010-05-01T16:24:46","date_gmt":"2010-05-01T21:24:46","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=5567"},"modified":"2010-05-01T16:24:46","modified_gmt":"2010-05-01T21:24:46","slug":"the-decision-tree-how-better-health-can-scale","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2010\/05\/the-decision-tree-how-better-health-can-scale.html","title":{"rendered":"The Decision Tree: How Better Health Can Scale"},"content":{"rendered":"<p>&#8220;The internet was created to connect people and groups. The  first step is to share stories. The next step is to share  quantitative observations.&#8221;<\/p>\n<p>&#8220;Health  care has been locked up in regulatory amber. HIPAA was passed in 1996, almost perfectly timed to cut off health care  from the internet. But there is a loophole: to demand our  information.&#8221;<\/p>\n<p>&#8220;When people take a participatory role in their health, we see improved  outcomes.&#8221;<\/p>\n<p>These are just\u00a0 a few of the insights you&#8217;ll hear if you listen to the full audio track of my conversation with <a href=\"http:\/\/twitter.com\/tgoetz\" target=\"_blank\">Thomas Goetz<\/a>, author of <a href=\"http:\/\/thedecisiontree.com\/blog\/\" target=\"_blank\">The Decision Tree<\/a>:<\/p>\n<div id=\"__ss_3907488\" style=\"width: 425px;\"><strong style=\"display: block; margin: 12px 0 4px;\"><a title=\"A conversation with Susannah Fox and Thomas Goetz\" href=\"http:\/\/www.slideshare.net\/PewInternet\/a-conversation-with-susannah-fox-and-thomas-goetz\">A conversation with Susannah Fox and Thomas Goetz<\/a><\/strong><object id=\"__sse3907488\" classid=\"clsid:d27cdb6e-ae6d-11cf-96b8-444553540000\" width=\"425\" height=\"355\" codebase=\"https:\/\/download.macromedia.com\/pub\/shockwave\/cabs\/flash\/swflash.cab#version=6,0,40,0\"><param name=\"allowFullScreen\" value=\"true\" \/><param name=\"allowScriptAccess\" value=\"always\" \/><param name=\"src\" value=\"http:\/\/static.slidesharecdn.com\/swf\/ssplayer2.swf?doc=decisiontree-100429171643-phpapp01&amp;stripped_title=a-conversation-with-susannah-fox-and-thomas-goetz\" \/><param name=\"name\" value=\"__sse3907488\" \/><param name=\"allowfullscreen\" value=\"true\" \/><\/object><\/p>\n<div style=\"padding: 5px 0 12px;\">View more presentations from <a href=\"http:\/\/www.slideshare.net\/PewInternet\">Pew Research Center\u2019s Internet &amp; American Life Project<\/a>.<\/div>\n<\/div>\n<p>However, if you can&#8217;t spare the whole hour and 15 minutes, you can just dip in to the #decisiontree stream:<!--more--><\/p>\n<p><a href=\"http:\/\/twitter.com\/TechnicalJones\" target=\"_blank\">Leroy Jones<\/a> captured the<a href=\"http:\/\/www.technicaljones.com\/2010\/04\/wiredpew-health-decisions-event---my-question\/\" target=\"_blank\"> audio<\/a> for our exchange about family history, genetics, disparities, and how wireless access is transforming our understanding of the &#8220;digital divide.&#8221;<\/p>\n<p><a href=\"http:\/\/twitter.com\/ekivemark\" target=\"_blank\">Mark Scrimshire<\/a> wrote a very good, short <a href=\"http:\/\/ekive.blogspot.com\/2010\/04\/decisiontree-tgoetz-talking-about-his.html\" target=\"_blank\">summary<\/a> of the event as well as a follow-up post, <a href=\"http:\/\/ekive.blogspot.com\/2010\/04\/should-patients-have-access-to-their.html\" target=\"_blank\">Should patients have access to their data?<\/a><\/p>\n<p><a href=\"http:\/\/twitter.com\/fletcherprince\" target=\"_blank\">Mary Fletcher Jones<\/a> created a video excerpt, in which Thomas commiserates with me about how depressing data about chronic disease can be, but how, on the flip side, it is inspiring the see the possibilities of open sharing such as on <a href=\"http:\/\/www.curetogether.com\/\" target=\"_blank\">CureTogether <\/a>and <a href=\"http:\/\/www.patientslikeme.com\/\" target=\"_blank\">PatientsLikeMe<\/a>:<br \/>\n<object classid=\"clsid:d27cdb6e-ae6d-11cf-96b8-444553540000\" width=\"640\" height=\"385\" codebase=\"https:\/\/download.macromedia.com\/pub\/shockwave\/cabs\/flash\/swflash.cab#version=6,0,40,0\"><param name=\"allowFullScreen\" value=\"true\" \/><param name=\"allowscriptaccess\" value=\"always\" \/><param name=\"src\" value=\"https:\/\/www.youtube.com\/v\/jah3eFVARPE&amp;hl=en_US&amp;fs=1&amp;\" \/><param name=\"allowfullscreen\" value=\"true\" \/><\/object><\/p>\n<p>I loved seeing all the tweets during and after the event, including one from Alan Viars affirming Thomas&#8217;s assertion that <a href=\"http:\/\/twitter.com\/aviars\/status\/12832894990\" target=\"_blank\">pregnant women are natural Quantified Selfers<\/a> &#8212; he had no idea that his own wife has been keeping a symptom-tracking spreadsheet!<\/p>\n<p>For those who were there, or tracking the tweets, what has stuck with you?\u00a0 What other questions do you have for Thomas or for me?<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>&#8220;The internet was created to connect people and groups. 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The next step is to share quantitative observations.&#8221; &#8220;Health care has been locked up [&hellip;]<\/p>\n","protected":false},"author":29,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[4,59,7],"tags":[3989,110,3988,3468,97,3983,3990,417,879,202,852,124,2379],"coauthors":[],"class_list":["post-5567","post","type-post","status-publish","format-standard","hentry","category-patient-networks","category-policy-issues","category-positive-patterns","tag-23andme","tag-chronic-disease","tag-curetogether","tag-decision-tree","tag-digital-divide","tag-genetics","tag-getupandmove","tag-health-data","tag-hipaa","tag-patientslikeme","tag-pew-research-center","tag-susannah-fox","tag-thomas-goetz"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>The Decision Tree: How Better Health Can Scale - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2010\/05\/the-decision-tree-how-better-health-can-scale.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The Decision Tree: How Better Health Can Scale - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"&#8220;The internet was created to connect people and groups. 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