{"id":5603,"date":"2010-05-11T10:10:24","date_gmt":"2010-05-11T15:10:24","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=5603"},"modified":"2010-05-11T10:10:24","modified_gmt":"2010-05-11T15:10:24","slug":"frequently-asked-but-unanswered-questions-about-e-patients","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2010\/05\/frequently-asked-but-unanswered-questions-about-e-patients.html","title":{"rendered":"Frequently Asked (But Unanswered) Questions About E-patients"},"content":{"rendered":"

As I’ve written before<\/a>, I love questions. It’s an honor to be handed someone’s nascent idea and to help them shape it (which is what I think a question really is). But this time I’m asking for YOUR<\/strong> input.<\/p>\n

These excellent questions were sent to me by Liav Hertsman and his colleagues at Tel Aviv University, who hoped that I had all the answers.<\/p>\n

If only.<\/strong><\/p>\n

I can tackle the first one on my own, but I need help with the others. If you have any tips to share — observations, journal articles, researchers interested in similar questions — please add them in the comments.<\/strong><\/p>\n

1. How would you describe the typical online active e-patient in terms of demographics?
\n2. In which stages of the diseases do e-patients usually need medical information the most? Why?
\n3. In which stages do they search for information about drugs?
\n4. How substantial is the e-patients’ drug search\u00a0in comparison with their overall search about health?
\n5. How dominant and reliable is user-generated content (UGC) information in the eyes of e-patients?
\n6. Do e-patients who are interested in UGC also tend to cross-check the information, using professional sites or do they tend to rely solely on the UGC? Why?
\n7. What do the e-patients value more, specific information or general information? Is it treatment stage related?
\n8. In your opinion, should a health site offer diverse information or focus only on one area of expertise? Why?
\n9. What tools are important to have on a health site (i.e. communities, experts’ reviews, doctors’ ratings, drugs’ ratings, etc.)? Should a health site offer several tools? Why?
\n10. Do e-patients prefer a one-stop-shop site, where they can find every information related to health and every tool they need, or do they prefer to gather information from several sites, each with a specific specialization?
\n11. What causes an e-patient to return to a specific health site?<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

As I’ve written before, I love questions. It’s an honor to be handed someone’s nascent idea and to help them shape it (which is what I think a question really is). But this time I’m asking for YOUR input. These excellent questions were sent to me by Liav Hertsman and his colleagues at Tel Aviv […]<\/p>\n","protected":false},"author":29,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false}}},"categories":[40,3586],"tags":[3999,7701,3997,3998,868,3536,3623,142],"coauthors":[],"jetpack_publicize_connections":[],"yoast_head":"\nFrequently Asked (But Unanswered) Questions About E-patients - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2010\/05\/frequently-asked-but-unanswered-questions-about-e-patients.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Frequently Asked (But Unanswered) Questions About E-patients - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"As I’ve written before, I love questions. 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