{"id":5655,"date":"2010-05-08T05:55:43","date_gmt":"2010-05-08T10:55:43","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=5655"},"modified":"2010-05-08T05:56:19","modified_gmt":"2010-05-08T10:56:19","slug":"%e2%80%9cgimme-my-damn-data%e2%80%9d-the-stage-is-being-set-to-enable-patient-driven-disruptive-innovation","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2010\/05\/%e2%80%9cgimme-my-damn-data%e2%80%9d-the-stage-is-being-set-to-enable-patient-driven-disruptive-innovation.html","title":{"rendered":"\u201cGimme my damn data!\u201d The stage is being set to enable patient-driven disruptive innovation."},"content":{"rendered":"

This is an essay I (mostly) wrote<\/a> April 28 on Vince Kuraitis’s e-Care Management Blog, part of his series with David Kibbe MD about the Federal EMR incentives, titled “Is HITECH Working?” The series is, in my opinion, the most useful update I’ve seen on this complex and vital aspect of the future of healthcare. Vince and David made important edits and added the great appendix at end.
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by Dave deBronkart (e-PatientDave<\/a>), Vince Kuraitis, and David C. Kibbe<\/p>\n

So far this series has looked at HITECH participation by hospitals (grumbling but in the game) and physicians (wary, on the sidelines), kudos for ONC\u2019s three major policy points, and how HITECH is already moving the needle on the vendor side. Today we\u2019re going to look at the reason the whole system exists: patients.<\/strong><\/p>\n

It\u2019s possible to look at the patients issue from a moral or ethical perspective, or from a business planner\u2019s ecosystem perspective. In this post we\u2019ll simply look at it pragmatically: is our approach going to work? It\u2019s our thesis that although you won\u2019t see it written anywhere, the stage is being set for a kind of disruption that\u2019s in no healthcare book: patient-driven disruptive innovation<\/strong>.<\/p>\n

We\u2019ll assert that in all our good thinking, we\u2019ve shined the flashlight at the wrong place<\/strong>. Sure, we all read the book (or parts), and we talk about disruption \u2013 within a dysfunctional system.<\/p>\n

If you believe a complex system\u2019s actual built-in goals are revealed by its actual behavior, then it\u2019s clear the consumer\u2019s not at the core of healthcare\u2019s feedback loops. What if they were?<\/p>\n

We assert that to disrupt within a non-working system is to bark up a pointless tree: even if you win, you haven\u2019t altered what matters. Business planners and policy people who do this will miss the mark. Here\u2019s what we see when we step back and look anew from the consumer\u2019s view:<\/p>\n

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  1. We\u2019ve been disrupting on the wrong channel.<\/li>\n
  2. It\u2019s about the consumer\u2019s appetite.<\/li>\n
  3. Patient as platform:\n