{"id":6,"date":"2007-05-01T09:10:25","date_gmt":"2007-05-01T14:10:25","guid":{"rendered":"http:\/\/72.9.147.40\/archives\/2007\/05\/chemotherapy-fog-is-no-longer-ignored-as-illusion.html"},"modified":"2007-05-01T09:10:25","modified_gmt":"2007-05-01T14:10:25","slug":"chemotherapy-fog-is-no-longer-ignored-as-illusion","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2007\/05\/chemotherapy-fog-is-no-longer-ignored-as-illusion.html","title":{"rendered":"Chemotherapy Fog Is No Longer Ignored as Illusion"},"content":{"rendered":"<p>April 29&#8217;s New York Times featured a story about breast cancer survivors who meet online to talk about &#8220;chemo brain&#8221; and how to cope with it: &#8220;Chemotherapy Fog Is No Longer Ignored as Illusion&#8221; (<a href=\"http:\/\/www.nytimes.com\/2007\/04\/29\/health\/29chemo.html?em&#038;ex=1178164800&#038;en=8ddebc22187bd826&#038;ei=5087%0A\">http:\/\/www.nytimes.com\/2007\/04\/29\/health\/29chemo.html?em<br \/>&#038;ex=1178164800&#038;en=8ddebc22187bd826&#038;ei=5087%0A<\/a>).<\/p>\n<p>Here are some excerpts which reminded me of our ongoing discussions about e-patients:<br \/>\n&#8211; &#8220;<strong>Until recently<\/strong>, oncologists would discount it, trivialize, make patients feel it was all in their heads,&#8221; said Dr. Daniel Silverman, a cancer researcher at UCLA. (My question:  What forced the change? E-patients bringing in proof that they had compatriots all over the country? )<br \/>\n&#8211; &#8220;As researchers look for a cause, cancer survivors are trying to figure out how to get through the day by sharing their experiences [online] &#8230; There are &#8216;ask the experts&#8217; teleconferences&#8230; and fact sheets to download and show to a skeptical doctor.&#8221; (My question:  Did the two sites &#8211; <a href=\"http:\/\/www.breastcancer.org\/\">breastcancer.org <\/a>&#038; <a href=\"http:\/\/www.cancercare.org\/\">cancercare.org <\/a>&#8211; experience a traffic surge on Sunday and Monday?)<br \/>\n&#8211; &#8220;Dr. Fleishman and others were pressed as to why a poor woman, working several jobs to feed her children, navigating the health care system and battling insurance companies, would not also need mental dexterity. &#8216;Maybe we&#8217;re just not asking them,&#8217; Dr. Fleishman said.&#8221; (My comment: Kudos to the reporter, Jane Gross, for noticing that all the research focused on high-SES survivors. It reminded me, unfortunately, of a study released in 2002 which classified three types of respondents: \u201cyoung professionals,\u201d \u201cmature professionals,\u201d and the \u201cunskilled\u201d (that is, Latina working mothers who also care for older relatives, which I think requires quite a bit of skill). (see: &#8220;<a href=\"http:\/\/www.trpi.org\/update\/informationtechnology.html\">Tomas Rivera Latino Internet Content Study, 2002<\/a>&#8221;<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>April 29&#8217;s New York Times featured a story about breast cancer survivors who meet online to talk about &#8220;chemo brain&#8221; and how to cope with it: &#8220;Chemotherapy Fog Is No Longer Ignored as Illusion&#8221; (http:\/\/www.nytimes.com\/2007\/04\/29\/health\/29chemo.html?em&#038;ex=1178164800&#038;en=8ddebc22187bd826&#038;ei=5087%0A). Here are some excerpts which reminded me of our ongoing discussions about e-patients: &#8211; &#8220;Until recently, oncologists would discount it, [&hellip;]<\/p>\n","protected":false},"author":29,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false},"version":2}},"categories":[7],"tags":[9,10,8,11],"coauthors":[8266],"class_list":["post-6","post","type-post","status-publish","format-standard","hentry","category-positive-patterns","tag-cancer","tag-chemotherapy","tag-e-patients","tag-oncologists"],"jetpack_publicize_connections":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Chemotherapy Fog Is No Longer Ignored as Illusion - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2007\/05\/chemotherapy-fog-is-no-longer-ignored-as-illusion.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Chemotherapy Fog Is No Longer Ignored as Illusion - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"April 29&#8217;s New York Times featured a story about breast cancer survivors who meet online to talk about &#8220;chemo brain&#8221; and how to cope with it: &#8220;Chemotherapy Fog Is No Longer Ignored as Illusion&#8221; (http:\/\/www.nytimes.com\/2007\/04\/29\/health\/29chemo.html?em&#038;ex=1178164800&#038;en=8ddebc22187bd826&#038;ei=5087%0A). 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