{"id":6116,"date":"2010-06-11T07:07:59","date_gmt":"2010-06-11T12:07:59","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=6116"},"modified":"2010-06-15T06:18:41","modified_gmt":"2010-06-15T11:18:41","slug":"e-patients-and-doctors-both-wise-up-if-you-havent-already","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html","title":{"rendered":"e-Patients and doctors both, wise up. If you haven’t already."},"content":{"rendered":"

I’ve only been studying healthcare for two years – far less than most people on this blog – and I hesitate to be overly assertive. But I have, finally, reached the point where I feel confident in citing cases where people are simply being unscientific: ignoring evidence. That’s always hazardous, and it becomes insidious when it’s caused by a blind, unquestioning belief in our institutions.<\/p>\n

Case in point:<\/p>\n

Julie Thoren is an active practitioner of Participatory Medicine who’s seen first-hand the tremendous value informed e-patients share with each other. This morning she wrote to me about a post, How online patient communities make money from patient data,<\/a> on the blog of KevinMD, a neighbor of mine in Nashua NH.<\/p>\n

Kevin pointed out, correctly, that patients need to have their eyes open about what might be done with their data, etc. Commenter “Doc D” cited the chestnut “The plural of anecdote is not data,” and Julie responded about Participatory Medicine and the value she’s found in online communities.<\/p>\n

\"\"<\/a>Here’s my comment (with a few edits), reflecting on the realities I’ve personally seen and what others have written in JoPM (the Journal of Participatory Medicine<\/a>):<\/p>\n

_________________________<\/p>\n

This is a complex and multidimensional subject. I couldn\u2019t agree more with Kevin\u2019s basic assertion that patients need to be on guard.<\/p>\n

On the other hand, I know first-hand (and second-hand many times over) that Julie\u2019s got her facts straight that many many many patients have suffered at length because they presumed the right\/smart thing to do was whatever their physician told them, and who only learned of other options \u2013 sometimes life-altering \u2013 from an online patient community.<\/p>\n

Patients and caregivers (and, I\u2019d assert, physicians and insurers and policy people) simply need to wise up about the difficulty and skills and knowledge and risks that health and healthcare involve. In my view, only when someone realizes all of that, can they make truly informed decisions without blinders on or their head in the sand. JoPM editorial board member Trisha Torrey has written a well documented book<\/a> about this: You Bet Your Life: Ten Mistakes Every Patient Makes \/ How to fix them to get the health care you deserve.<\/em> Those are not imaginary stories \u2013 including her own, where the physicians, in whom she of course had faith, told her she had six months to live due to inoperable cancer, when in fact she didn\u2019t have cancer at all, and she only found it out through her own research.<\/p>\n

I couldn\u2019t agree more with Doc D that the plural of anecdote is not data. Any patient community that doesn\u2019t understand this is being unscientific. On the other hand, it\u2019s equally unscientific to think that our established channels are reliable sources of information \u2013 especially to think they\u2019re the only<\/em> reliable source. I won\u2019t take time here to go into that in depth, but I\u2019ll quote this from the Journal of Participatory Medicine<\/a>:<\/p>\n

\u201c…evidence on the upside of peer review is sparse, while evidence on the downside is abundant. We struggle to find convincing evidence of its benefit, but we know that it is slow, expensive, largely a lottery, poor at detecting error, ineffective at diagnosing fraud, biased, and prone to abuse \u2026 most of what appears in peer-reviewed journals is scientifically weak.\u201d<\/p><\/blockquote>\n

Was that said by an angry disillusioned patient, mad at publications like the British Medical Journal<\/em>? Why no, it was written by Richard Smith, after 25 years as editor<\/em> of the British Medical Journal<\/em>.<\/p>\n

Then we have the recent news<\/a> that the PatientsLikeMe community beat Lancet<\/em> to the punch, by a long shot, regarding lithium, after a peer reviewed journal had published a ludicrously inept paper (contradicted by both PLM and Lancet).<\/p>\n

No smart patient will unthinkingly trust a patient community (nor a physician), online or off. We all need to wise up and be smart consumers. And based on Smith\u2019s writing, I assert that no smart physician or consumer will unthinkingly trust evidence from medical journals.
\n_______________<\/p>\n

Thanks to Julie for bringing this stimulating topic to my attention. Kevin, I suspect I don’t see entirely eye-to-eye with\u00a0 you on this, but as I said, I think we share a common sense that people need to wise up.<\/p>\n

(Another “wise up” tool, btw, is Gary Schwitzer’s Health News Review<\/a> site, supported by the Foundation for Informed Medical Decision Making<\/a>.)<\/em><\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

I’ve only been studying healthcare for two years – far less than most people on this blog – and I hesitate to be overly assertive. But I have, finally, reached […]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[114,5,3586,226,2304],"tags":[],"coauthors":[8260],"class_list":["post-6116","post","type-post","status-publish","format-standard","hentry","category-hcs-problem-list","category-ptdoc-co-care","category-research-issues","category-understanding-statistics","category-why-pm"],"yoast_head":"\ne-Patients and doctors both, wise up. If you haven't already. - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"e-Patients and doctors both, wise up. If you haven't already. - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"I’ve only been studying healthcare for two years – far less than most people on this blog – and I hesitate to be overly assertive. But I have, finally, reached […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html\" \/>\n<meta property=\"og:site_name\" content=\"SPM Blog\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/participatorymedicine\" \/>\n<meta property=\"article:published_time\" content=\"2010-06-11T12:07:59+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2010-06-15T11:18:41+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2010\/06\/jopm-logo-trimmed.gif\" \/>\n\t<meta property=\"og:image:width\" content=\"1036\" \/>\n\t<meta property=\"og:image:height\" content=\"327\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/gif\" \/>\n<meta name=\"author\" content=\"e-Patient Dave\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@s4pm\" \/>\n<meta name=\"twitter:site\" content=\"@s4pm\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"e-Patient Dave\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2010\\\/06\\\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2010\\\/06\\\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html\"},\"author\":{\"name\":\"e-Patient Dave\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/person\\\/964cf120da8ac17067b46802eb561e5d\"},\"headline\":\"e-Patients and doctors both, wise up. If you haven’t already.\",\"datePublished\":\"2010-06-11T12:07:59+00:00\",\"dateModified\":\"2010-06-15T11:18:41+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2010\\\/06\\\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html\"},\"wordCount\":750,\"commentCount\":28,\"publisher\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2010\\\/06\\\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2010\\\/06\\\/jopm-logo-trimmed-300x94.gif\",\"articleSection\":[\"Healthcare Problems\",\"Patient\\\/Doctor Co-Care\",\"Research Issues\",\"Understanding Statistics\",\"Why PM\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2010\\\/06\\\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2010\\\/06\\\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2010\\\/06\\\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html\",\"name\":\"e-Patients and doctors both, wise up. If you haven't already. - SPM Blog\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2010\\\/06\\\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2010\\\/06\\\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2010\\\/06\\\/jopm-logo-trimmed-300x94.gif\",\"datePublished\":\"2010-06-11T12:07:59+00:00\",\"dateModified\":\"2010-06-15T11:18:41+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2010\\\/06\\\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2010\\\/06\\\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2010\\\/06\\\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#primaryimage\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2010\\\/06\\\/jopm-logo-trimmed.gif\",\"contentUrl\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2010\\\/06\\\/jopm-logo-trimmed.gif\",\"width\":\"1036\",\"height\":\"327\",\"caption\":\"JoPM logo\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/2010\\\/06\\\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"e-Patients and doctors both, wise up. If you haven’t already.\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#website\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/\",\"name\":\"SPM Blog\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#organization\",\"name\":\"Society for Participatory Medicine\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2017\\\/06\\\/spm-logo-13.png\",\"contentUrl\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/wp-content\\\/uploads\\\/sites\\\/3\\\/2017\\\/06\\\/spm-logo-13.png\",\"width\":971,\"height\":269,\"caption\":\"Society for Participatory Medicine\"},\"image\":{\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/www.facebook.com\\\/participatorymedicine\",\"https:\\\/\\\/x.com\\\/s4pm\"]},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/#\\\/schema\\\/person\\\/964cf120da8ac17067b46802eb561e5d\",\"name\":\"e-Patient Dave\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/9f667d29481aa21d5c3e8a0274e7dad18a783f7cc04d9c94c1771438fcdd4558?s=96&d=mm&r=gbe7701cd8f5d751958d0a428533b1190\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/9f667d29481aa21d5c3e8a0274e7dad18a783f7cc04d9c94c1771438fcdd4558?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/9f667d29481aa21d5c3e8a0274e7dad18a783f7cc04d9c94c1771438fcdd4558?s=96&d=mm&r=g\",\"caption\":\"e-Patient Dave\"},\"description\":\"\\\"e-Patient Dave\\\" deBronkart is a co-founder of our Society and past board chair. He survived a near-fatal kidney cancer by being an e-patient long before he'd heard the word. Today he evangelizes participatory medicine, patient empowerment, and patient data access as a keynote speaker and at epatientdave.com.\",\"sameAs\":[\"http:\\\/\\\/www.epatientdave.com\"],\"url\":\"https:\\\/\\\/participatorymedicine.org\\\/epatients\\\/author\\\/dave-debronkart\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"e-Patients and doctors both, wise up. If you haven't already. - SPM Blog","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html","og_locale":"en_US","og_type":"article","og_title":"e-Patients and doctors both, wise up. If you haven't already. - SPM Blog","og_description":"I’ve only been studying healthcare for two years – far less than most people on this blog – and I hesitate to be overly assertive. But I have, finally, reached […]","og_url":"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html","og_site_name":"SPM Blog","article_publisher":"https:\/\/www.facebook.com\/participatorymedicine","article_published_time":"2010-06-11T12:07:59+00:00","article_modified_time":"2010-06-15T11:18:41+00:00","og_image":[{"width":1036,"height":327,"url":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2010\/06\/jopm-logo-trimmed.gif","type":"image\/gif"}],"author":"e-Patient Dave","twitter_card":"summary_large_image","twitter_creator":"@s4pm","twitter_site":"@s4pm","twitter_misc":{"Written by":"e-Patient Dave","Est. reading time":"4 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#article","isPartOf":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html"},"author":{"name":"e-Patient Dave","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/964cf120da8ac17067b46802eb561e5d"},"headline":"e-Patients and doctors both, wise up. If you haven’t already.","datePublished":"2010-06-11T12:07:59+00:00","dateModified":"2010-06-15T11:18:41+00:00","mainEntityOfPage":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html"},"wordCount":750,"commentCount":28,"publisher":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#organization"},"image":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#primaryimage"},"thumbnailUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2010\/06\/jopm-logo-trimmed-300x94.gif","articleSection":["Healthcare Problems","Patient\/Doctor Co-Care","Research Issues","Understanding Statistics","Why PM"],"inLanguage":"en-US","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#respond"]}]},{"@type":"WebPage","@id":"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html","url":"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html","name":"e-Patients and doctors both, wise up. If you haven't already. - SPM Blog","isPartOf":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#website"},"primaryImageOfPage":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#primaryimage"},"image":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#primaryimage"},"thumbnailUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2010\/06\/jopm-logo-trimmed-300x94.gif","datePublished":"2010-06-11T12:07:59+00:00","dateModified":"2010-06-15T11:18:41+00:00","breadcrumb":{"@id":"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#primaryimage","url":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2010\/06\/jopm-logo-trimmed.gif","contentUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2010\/06\/jopm-logo-trimmed.gif","width":"1036","height":"327","caption":"JoPM logo"},{"@type":"BreadcrumbList","@id":"https:\/\/participatorymedicine.org\/epatients\/2010\/06\/e-patients-and-doctors-both-wise-up-if-you-havent-already.html#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/participatorymedicine.org\/epatients\/"},{"@type":"ListItem","position":2,"name":"e-Patients and doctors both, wise up. If you haven’t already."}]},{"@type":"WebSite","@id":"https:\/\/participatorymedicine.org\/epatients\/#website","url":"https:\/\/participatorymedicine.org\/epatients\/","name":"SPM Blog","description":"","publisher":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/participatorymedicine.org\/epatients\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/participatorymedicine.org\/epatients\/#organization","name":"Society for Participatory Medicine","url":"https:\/\/participatorymedicine.org\/epatients\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/","url":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png","contentUrl":"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2017\/06\/spm-logo-13.png","width":971,"height":269,"caption":"Society for Participatory Medicine"},"image":{"@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/participatorymedicine","https:\/\/x.com\/s4pm"]},{"@type":"Person","@id":"https:\/\/participatorymedicine.org\/epatients\/#\/schema\/person\/964cf120da8ac17067b46802eb561e5d","name":"e-Patient Dave","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/secure.gravatar.com\/avatar\/9f667d29481aa21d5c3e8a0274e7dad18a783f7cc04d9c94c1771438fcdd4558?s=96&d=mm&r=gbe7701cd8f5d751958d0a428533b1190","url":"https:\/\/secure.gravatar.com\/avatar\/9f667d29481aa21d5c3e8a0274e7dad18a783f7cc04d9c94c1771438fcdd4558?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/9f667d29481aa21d5c3e8a0274e7dad18a783f7cc04d9c94c1771438fcdd4558?s=96&d=mm&r=g","caption":"e-Patient Dave"},"description":"\"e-Patient Dave\" deBronkart is a co-founder of our Society and past board chair. He survived a near-fatal kidney cancer by being an e-patient long before he'd heard the word. Today he evangelizes participatory medicine, patient empowerment, and patient data access as a keynote speaker and at epatientdave.com.","sameAs":["http:\/\/www.epatientdave.com"],"url":"https:\/\/participatorymedicine.org\/epatients\/author\/dave-debronkart"}]}},"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/p8S1TQ-1AE","jetpack-related-posts":[],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/6116","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/comments?post=6116"}],"version-history":[{"count":33,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/6116\/revisions"}],"predecessor-version":[{"id":6226,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/posts\/6116\/revisions\/6226"}],"wp:attachment":[{"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/media?parent=6116"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/categories?post=6116"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/tags?post=6116"},{"taxonomy":"author","embeddable":true,"href":"https:\/\/participatorymedicine.org\/epatients\/wp-json\/wp\/v2\/coauthors?post=6116"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}