{"id":772,"date":"2008-11-24T23:23:16","date_gmt":"2008-11-25T04:23:16","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=772"},"modified":"2008-11-24T23:23:54","modified_gmt":"2008-11-25T04:23:54","slug":"illness-in-the-age-of-e-a-case-study-in-participatory-medicine","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2008\/11\/illness-in-the-age-of-e-a-case-study-in-participatory-medicine.html","title":{"rendered":"Illness in the Age of ‘e’: A case study in participatory medicine"},"content":{"rendered":"

Last month, the Connected Health Symposium<\/a> at Harvard Medical School saw a first: a full-length case study in participatory medicine, described concurrently by both the patient and his physician. The physician was our own Danny Sands MD, and the patient was our e-Patient Dave. It was “a remarkable story,” as Matthew Holt said<\/a> on The Health Care Blog:<\/p>\n

… a great session in which e-Patient Dave (Dave deBronkart) and his physician, Danny Sands described his use of listservs, the Internet, email and BIMDC\u2019s PatientSite and other tools in his (successful!) battle with renal cancer\u2014after being told median survival was 24 weeks. I won\u2019t tell the whole story as they\u2019re trying to get it published in an authoritative journal\u2014so that physicians will pay attention and promote this use of technology by patients.<\/p><\/blockquote>\n

The presentation was videotaped, and we present it here.
\n
\nThe audio is sharp and clear, but unfortunately the exposure was way off, so the original video was very dark. We’ve lightened it, so it’s somewhat better; we hope you’ll bear with us.<\/p>\n

The talk was 55 minutes long. There are six clips, because YouTube’s limit is 10 minutes per clip. At bottom are the slides, to augment the video.<\/p>\n\n\nPart 1: Reconnecting and Agenda Setting<\/b><\/p>\n

<\/object><\/p>\n\n\nPart 2: Discovery and Diagnosis<\/strong><\/p>\n

<\/object><\/p>\n\n\nPart 3: How We Used e-Tools<\/strong><\/p>\n

<\/object><\/p>\n\n\nPart 4: Outcome and Insights<\/strong><\/p>\n

<\/object><\/p>\n\n\nPart 5: Audience Discussion<\/strong><\/p>\n

<\/object><\/p>\n\n\nPart 6: The e-Patient Perspective<\/strong><\/p>\n

<\/object><\/p>\n\n\nHere are the slides, with some annotations. At bottom right, click the slide-screen icon to enlarge to full screen; click it again to restore view.<\/p>\n
Illness in the Age of \\'e\\'<\/a><\/object><\/p>\n
View SlideShare presentation<\/a> or Upload<\/a> your own.<\/div>\n<\/div>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

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