{"id":7964,"date":"2010-12-06T13:29:10","date_gmt":"2010-12-06T17:29:10","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=7964"},"modified":"2010-12-06T13:49:27","modified_gmt":"2010-12-06T17:49:27","slug":"consent-to-hoard-and-other-news-from-ihi","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2010\/12\/consent-to-hoard-and-other-news-from-ihi.html","title":{"rendered":"&#8220;Consent to Hoard&#8221; and other news from #IHI"},"content":{"rendered":"<p><a href=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2010\/12\/IHI-Whose-Care-Is-It-class-12-6-10.jpg\" data-rel=\"lightbox-image-0\" data-rl_title=\"\" data-rl_caption=\"\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-large wp-image-7971\" title=\"\" src=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2010\/12\/IHI-Whose-Care-Is-It-class-12-6-10-1024x575.jpg\" alt=\"\" width=\"195\" height=\"109\" srcset=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2010\/12\/IHI-Whose-Care-Is-It-class-12-6-10-1024x575.jpg 1024w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2010\/12\/IHI-Whose-Care-Is-It-class-12-6-10-300x168.jpg 300w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2010\/12\/IHI-Whose-Care-Is-It-class-12-6-10-800x449.jpg 800w\" sizes=\"auto, (max-width: 195px) 100vw, 195px\" \/><\/a>I&#8217;m at the annual IHI Forum in Orlando, in an all-day workshop (<em>class photo at left<\/em>) titled &#8220;Whose Care Is It, Anyway &#8230; and Can Health IT Help?&#8221;  Laura Adams of the Rhode Island Quality Institute was just talking about the social obstacles to data mobility &#8211; doctors who don&#8217;t want to share their records with other providers. She cited something a patient told her:<\/p>\n<blockquote><p><span>You make me sign a consent form to SHARE my data; you oughta ask my consent for you to HOARD it.<\/span><\/p><\/blockquote>\n<p>____________<\/p>\n<p>A lot of great stuff is happening here at IHI. Medical muralist Regina Holliday created a great painting (see photo above; I hope it will be auctioned), and at my table I found Abington Memorial Hospital, who wrote a report function for their EMR system so they can hand the patient <a href=\"http:\/\/epatientdave.com\/2010\/12\/06\/abington-memorial-already-has-a-shared-care-plan\/\" target=\"_blank\">a daily care plan<\/a> every day, so they can help manage care!<\/p>\n<p>Regina is one of about 50 patients who were flown in for a<strong> Patient Advocate Summit<\/strong> yesterday. All the patients were given scholarships to attend the whole conference. <em>But<\/em>, they have to donate their time &#8211; more about this in a moment &#8211; so Regina and others were unable to stay for the whole event. Regina also has substantial babysitter expenses.<\/p>\n<p>Primary sponsor for patient participation is the <a href=\"http:\/\/www.cautiouspatient.org\/\" target=\"blank\">Cautious Patient Foundation<\/a>, with twenty others providing support. Thank you!<\/p>\n<p>It will be great to have patients in the IHI conference sessions. Note, though, that <em>they still have to donate their time.<\/em> As I <a href=\"https:\/\/participatorymedicine.org\/epatients\/archives\/2010\/01\/patient-in-chief.html\">said in January<\/a>, I bet this is one of the key reasons our health policies haven&#8217;t solved healthcare: everyone BUT the consumer\/patient gets paid to be there, and we patients have to take time off work.<\/p>\n<p>How many EMR or hospital employees would attend those meetings if they had to take time off work?<\/p>\n<p>And that, ladies &amp; gents, is part of why our policies <em>allow<\/em> doctors to hoard our records. Without our consent.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>I&#8217;m at the annual IHI Forum in Orlando, in an all-day workshop (class photo at left) titled &#8220;Whose Care Is It, Anyway &#8230; and Can Health IT Help?&#8221; Laura Adams [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[367,59,2304],"tags":[],"coauthors":[],"class_list":["post-7964","post","type-post","status-publish","format-standard","hentry","category-medical-records","category-policy-issues","category-why-pm"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>&quot;Consent to Hoard&quot; 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