{"id":8,"date":"2007-05-10T13:33:47","date_gmt":"2007-05-10T18:33:47","guid":{"rendered":"http:\/\/72.9.147.40\/archives\/2007\/05\/patient-driven-content-at-medshelforg.html"},"modified":"2007-05-10T13:33:47","modified_gmt":"2007-05-10T18:33:47","slug":"patient-driven-content-at-medshelforg","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2007\/05\/patient-driven-content-at-medshelforg.html","title":{"rendered":"Patient-Driven Content at MedShelf.org"},"content":{"rendered":"

Derek Hansen, a fellow e-health researcher, wrote to me about his latest project and it fit so perfectly that I asked him to write it up for us — thanks, Derek!
\n——————-<\/p>\n

Online support groups have long been recognized as an important and unique source of medical information and social support for patients.<\/p>\n

Unfortunately, their knowledge is often buried in email list archives or bulletin board threads, making it difficult for newcomers and outsiders to benefit. Derek Hansen, Paul Resnick, and Sean Munson at the University of Michigan’s School of Information, are trying to change that by helping online support groups create community repositories using wiki software at http:\/\/medshelf.org<\/a>.<\/p>\n

Their research has provided a few insights concerning these community
\nrepositories:<\/p>\n

– Providing the wiki technology is only the start. The
\nchallenge is encouraging widespread participation and assuring that the wiki and email list play a complementary role (see http:\/\/default.medshelf.org\/Project:Getting_Started<\/a> for specific suggestions on how this can be done).
\n– Community repositories can help improve the quality of
\ninformation because, unlike archived email messages, they are continually reused and easily updated.
\n– They are particularly useful at aggregating information from
\ndifferent community members or from different websites scattered across the web. Many useful wiki pages have been collections of annotated pointers to other resources.
\n– They provide the key infrastructure for new forms of
\ncollaboration. They help communities become collaborative authors and editors of important information resources, rather than simply commentators.<\/p>\n

If you would like to know more about MedShelf.org or are part of an online support group that would like to participate in the project, feel free to contact Derek Hansen at shakmatt@umich.edu.<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Online support groups have long been recognized as an important and unique source of medical information and social support for patients. Derek Hansen, Paul Resnick, and Sean Munson at the University of Michigan’s School of Information, are trying to help online support groups create community repositories using wiki software at http:\/\/medshelf.org<\/a>.<\/p>\n","protected":false},"author":29,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[4],"tags":[18,16,8,17,19,13,20,7699,15,14],"coauthors":[8266],"class_list":["post-8","post","type-post","status-publish","format-standard","hentry","category-patient-networks","tag-bulletin-boards","tag-derek-hansen","tag-e-patients","tag-email-listserves","tag-health-information","tag-medshelf","tag-online-support-groups","tag-patient-networks","tag-university-of-michigan","tag-wiki"],"yoast_head":"\nPatient-Driven Content at MedShelf.org - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2007\/05\/patient-driven-content-at-medshelforg.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Patient-Driven Content at MedShelf.org - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"Online support groups have long been recognized as an important and unique source of medical information and social support for patients. 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