{"id":8750,"date":"2011-03-16T14:02:27","date_gmt":"2011-03-16T19:02:27","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=8750"},"modified":"2011-03-16T14:18:37","modified_gmt":"2011-03-16T19:18:37","slug":"i-am-iron-man","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2011\/03\/i-am-iron-man.html","title":{"rendered":"“I Am Iron Man”"},"content":{"rendered":"

Guest post by SPM member Regina Holliday.<\/em><\/p>\n

\"\"<\/a>

Captured from Marvel.com<\/p><\/div>\n

Perhaps because my world-view is shaped by the escapades and explanations of active little boys, I often speak of super-heroes in relation to health care.\u00a0 I listen daily to tales of poisonous spider bites, DNA mutations and dangerous levels of exposure to radiation.\u00a0 And unlike the conversations I have with my medical advocate friends, these stories end relatively well.\u00a0 These people, so afflicted, do not die or become gravely ill, instead, they become super-heroes.<\/p>\n

Yes, these characters get to live, but they often must deal with anguish and regret.\u00a0 Within their memories they relive again and again the moments that led to their fates.\u00a0\u00a0 They fight crime and evildoers in their Super-hero personas, even as they hide secretly among us with regular jobs, as photographers, industrialists and doctors.\u00a0 We never know who are the Super-heroes among us.<\/p>\n

<\/p>\n

Not long ago I had the honor of meeting many real-life Super-heroes at the IHI (Institute for Healthcare Improvement) Forum in Florida.\u00a0 On December 4, 2010 IHI invited 50 patient advocates to Orlando, Florida to attend a pre-conference meet-up and candle light vigil prior to the Patient Summit on Sunday December 5.\u00a0 That day we were nameless.\u00a0 We sat in a circle and spoke of the love and loss inside a room in the Gaylord Resort.\u00a0 We soon left that room and followed Dale Ann Micalizzi outside to light four candles in memory of those we had lost.<\/p>\n

Do you know Dale Ann Micalizzi?\u00a0 Her son Justin died suddenly after a surgery to drain an ankle infection.\u00a0 She created the foundation Justin\u2019s Hope in an attempt to create patient centered care and better communication with families.\u00a0 She goes out every day and fights injustice.\u00a0 She spreads awareness about the dangers of infection.\u00a0 She helped bring us together in person at IHI and on the Internet through the open Facebook group IHI Patient Activists<\/a>.<\/p>\n

She recently told us some really good news. She will be one of the co-chairs of the IHI forum this year.\u00a0 I am so glad that IHI is taking patient centered care so seriously.\u00a0 Dale is not only invited to the table, she is placing the table settings.\u00a0 She is helping create a \u201cjustice league\u201d of empowered healthcare activists.<\/p>\n

So due to the work of folks like Dale Ann Micalizzi, the Super-heroes are losing their secret identities.<\/p>\n

\"17<\/a>

Regina Holliday's painting, "Give Us Our Dammed Data" (Photo by Cindy Throop)<\/p><\/div>\n

When I painted the piece \u201cGive Us Our Dammed Data<\/a>\u201d [referring to how our health data is dammed up], I had to ask Helen Haskell for a potential list of patient advocate authors.\u00a0 There wasn\u2019t an IHI Patient Activist Facebook group.\u00a0 We did not know about each other and what each advocate had done to create change.\u00a0 \u00a0We were spread throughout the world, and our identities were unknown.<\/p>\n

Recently, I had the pleasure of watching the 2008 film Iron Man<\/a>.\u00a0 I was especially intrigued by the portrayal of the character Tony Stark.\u00a0 After being captured and injured by the people that used the weapons systems he had created, Stark\u2019s character takes a 180.\u00a0 He decides to fight the bad guys anyway he can, and does so in an iron suit with a literally \u201cbroken heart.\u201d<\/p>\n

I am a Marvel Comics fan from way back, but this character didn\u2019t really interest me until I watched this movie.\u00a0 You see, I was rather bothered by his moniker \u201cIron Man.\u201d\u00a0 Really? Iron is so brittle, how can that ever compare to, say, the man of steel?<\/p>\n

Can we have brittle super-heroes that have electronic hearts?\u00a0 Yes, we can.\u00a0 Can patients who have been injured and are bitter create a world with patient centered care? Yes, they can.<\/p>\n

I was most impressed at the end of the film.\u00a0 Tony is considering reading a prepared statement explaining away the elements of the battle and excusing the antics of this fellow in the Iron suit.\u00a0 In front of a crowd of reporters, Tony abandon\u2019s the contrived remarks and exclaims, \u201cI am Iron Man.\u201d<\/p>\n

With this statement he has abandoned a secret identity.\u00a0 He is a person and a super-hero.\u00a0\u00a0 Tony Stark was just like all of the wonderful people at IHI who stood proudly before us wearing badges that said their name and affixed to a blue ribbon stating \u201cPatient Activist.\u201d<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

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