{"id":8952,"date":"2011-04-04T14:58:05","date_gmt":"2011-04-04T19:58:05","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=8952"},"modified":"2011-04-04T14:58:05","modified_gmt":"2011-04-04T19:58:05","slug":"peer-to-peer-healthcare-on-npr","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2011\/04\/peer-to-peer-healthcare-on-npr.html","title":{"rendered":"Peer-to-peer healthcare on NPR"},"content":{"rendered":"<p>To me, there are two types of breaking news in health care: the macro and the micro.<\/p>\n<p>Macro health news breaks when there is a natural disaster, a scientific breakthrough, or a new twist in a policy debate (see: &#8220;<a href=\"https:\/\/participatorymedicine.org\/epatients\/archives\/2011\/04\/accountable-care-organizations-and-patient-centeredness.html\" target=\"_blank\">ACOs<\/a>&#8220;). I read up on the facts and try to make sense of the latest turn of events, but usually from a comfortable distance.<\/p>\n<p>Micro health news breaks when a loved one gets a serious diagnosis. Then I follow the unfolding health care story with intensity and I care more about the outcome.<\/p>\n<p>Nancy Shute of NPR pulled off a nice trick this morning when she reported on how one online community swarmed to the rescue of a woman who was recently diagnosed with a rare condition. The story grabbed my attention with micro intensity but was able to make a macro point: &#8220;<a href=\"http:\/\/www.npr.org\/2011\/04\/04\/135106113\/patients-with-rare-diseases-connect-online\" target=\"_blank\">Web Communities Help Patients With Rare Diseases<\/a>.&#8221; By the end of it, it mattered to me that one woman&#8217;s kidney was saved thanks to a Facebook group. I bet it mattered to a lot of listeners, not just because it was a good story, but because it resonates with their own experiences. Pew Internet&#8217;s research shows that 1 in 4 internet users living with  chronic disease go online to find other people with similar health  concerns. The report <a href=\"http:\/\/www.pewinternet.org\/Reports\/2011\/P2PHealthcare.aspx\" target=\"_blank\">Peer-to-peer Healthcare<\/a> also chronicled how those connections can make all the difference in the world, especially among people living with rare disease.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>To me, there are two types of breaking news in health care: the macro and the micro. 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