{"id":8974,"date":"2011-04-10T01:54:12","date_gmt":"2011-04-10T06:54:12","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=8974"},"modified":"2011-04-10T01:54:12","modified_gmt":"2011-04-10T06:54:12","slug":"spm-on-the-air-peoples-pharmacy-npr","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2011\/04\/spm-on-the-air-peoples-pharmacy-npr.html","title":{"rendered":"SPM on the Air: People&#8217;s Pharmacy (NPR)"},"content":{"rendered":"<p><a href=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2011\/04\/Joe-Terry-Graedon1.jpg\" data-rel=\"lightbox-image-0\" data-rl_title=\"\" data-rl_caption=\"\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-full wp-image-8976\" title=\"\" src=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2011\/04\/Joe-Terry-Graedon1.jpg\" alt=\"\" width=\"150\" height=\"150\" srcset=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2011\/04\/Joe-Terry-Graedon1.jpg 340w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2011\/04\/Joe-Terry-Graedon1-150x150.jpg 150w, https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2011\/04\/Joe-Terry-Graedon1-300x300.jpg 300w\" sizes=\"auto, (max-width: 150px) 100vw, 150px\" \/><\/a>Joe and Terry Graedon, long-time friends of &#8220;Doc Tom&#8221; Ferguson,\u00a0produce <a href=\"http:\/\/peoplespharmacy.com\" target=\"_blank\">The People&#8217;s Pharmacy<\/a>, a website and radio program on NPR. Last Saturday&#8217;s program was about the Society for Participatory Medicine, which they helped to found in 2009. (They were also among Doc Tom&#8217;s advisors on the e-patient white paper.)<\/p>\n<p>The <a href=\"http:\/\/www.peoplespharmacy.com\/2011\/04\/09\/809-participatory-medicine\/\" target=\"_blank\">full program<\/a> (one hour) is available on their site through May 21. Participants:<\/p>\n<ul>\n<li>Pediatrician and SPM co-chair Alan Greene, MD, of DrGreene.com, speaks about how he changed his practice (and went online) in the 1990s to provide better care in the face of a changing insurance environment. His site has had 75 million visits. His wife Cheryl runs the site and is also an SPM founder.<\/li>\n<li>SPM president Dr. Danny Sands and I describe my case, and how participatory medicine empowers both healthcare provider as well as the patient.<\/li>\n<\/ul>\n<p><strong>Finding a patient community:<!--more--><br \/>\n<\/strong><\/p>\n<p><strong>ACOR: <\/strong>The program mentions ACOR.org, the nextwork of cancer patient communities that Dr. Sands recommended I join. The bad news is that the ACOR website is currently down. The good news is that you don&#8217;t actually <em>need <\/em>the website &#8211; you only need the mailing addresses for its individual cancer mailing lists.<\/p>\n<p>Here is <a href=\"http:\/\/www.lsoft.com\/scripts\/wl.exe?XH=LISTSERV.ACOR.ORG\" target=\"_blank\">the full list<\/a> of ACOR mailing lists. Click the one you want and you&#8217;ll get a page with instructions for joining the list. (ACOR is not a website, it&#8217;s a set of mailing lists. \u00a0You simply send an email to the list you want, as explained on those pages.)<\/p>\n<p><strong>Other communities: <\/strong>I&#8217;ve long thought that one of the best things the Society for Participatory Medicine could do is maintain a list of patient communities, searchable by disease. Who wants to work on that? \u00a0Help:<\/p>\n<ul>\n<li>Join the society: www.participatorymedicine.org\/join-us<\/li>\n<li>To volunteer, write to volunteer at participatorymedicine.org<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Joe and Terry Graedon, long-time friends of &#8220;Doc Tom&#8221; Ferguson,\u00a0produce The People&#8217;s Pharmacy, a website and radio program on NPR. 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