{"id":9495,"date":"2011-06-07T05:19:07","date_gmt":"2011-06-07T10:19:07","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=9495"},"modified":"2011-06-07T16:19:29","modified_gmt":"2011-06-07T21:19:29","slug":"peter-schmidt-the-virtue-of-participating-in-your-care-it-serves-others-too","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2011\/06\/peter-schmidt-the-virtue-of-participating-in-your-care-it-serves-others-too.html","title":{"rendered":"Peter Schmidt: The virtue of participating in your care – it serves others, too"},"content":{"rendered":"

This guest post by SPM member Peter Schmidt is long overdue. I asked him to write it months ago after discussion on our post Tips for Understanding Studies (Health News Review)<\/a>. Apologies for the delay.<\/em><\/p>\n

If you’d like to submit a guest post, see our guidelines<\/a>.<\/em><\/p>\n

\"Peter<\/a>I was speaking with a colleague the other day. He is one of the most pro-patient engagement physicians I know, and he had just given a talk where he discussed patient \u201ccompliance.\u201d I said to him, \u201cWhy were you discussing compliance instead of engagement?\u201d He responded, \u201cIn my practice, I seek engagable patients. I love to have engagable patients. However, some patients are just not up to it. Some patients can only be dealt with in the context of compliance. They are not smart enough or just don\u2019t care enough to be engaged.\u201d This post is not for those patients.<\/p>\n

This post is for patients who want to be engaged.<\/p>\n

In February a physician commented on a post here that most patients shouldn\u2019t read journal articles. This is true: most patients shouldn\u2019t read them. But if you are reading this, you are probably not most patients.<\/p>\n

Throughout history, patients have contributed meaningfully to medical research. While Edward Jenner, MD, is credited with the smallpox vaccine, Benjamin Jesty, a local farmer, used cowpox to protect his family from smallpox before Jenner started his work. Not all medical breakthroughs come from physicians, and, like Jesty, non-physicians are often inspired by a personal connection to a disease. This story is told in a 1998 article in the International Journal of Infectious Disease<\/em> written by two cancer doctors, Carry Gross and Kent Sepkowitz called, \u201cThe myth of the medical breakthrough.\u201d\u00a0The point of the article is that the \u201chero\u201d stories of medical discovery, propagated by institutions like the Nobel Committee are myths. Edward Jenner stood on the shoulders of giants.<\/p>\n

There\u2019s a subtext: the hero stories of physicians treating you are myths, too. There\u2019s a team of mentors, consultants, and support staff behind your physician or surgeon, and there are a lot of patients that came before you and with whom your doctor honed his or her skills. You are serving this role for the patients who come after you. If you participate in your care, you can serve this role better.<\/p>\n

Non-physicians like Andy Grove and Sergei Brin are adding a lot of sophistication to research in Parkinson\u2019s disease. Our system typically assumes that, for example, a dermatologist is better suited to understand a new therapy in, say, cancer than a physicist. In my experience, this is not a given: a friend of mine is a biophysicist, and understands biology pretty well, radiation extremely well, and what happens when the two mix better than just about anyone.<\/p>\n

Physicians are more engineers than scientists: like engineers, they have a set of tools they use to manage a set of problems. When an opportunity for science comes up, when a paradigm change occurs because of a new discovery, many physicians (but not all) struggle with the task of figuring out which articles are good and which are not. For example, all the information necessary to figure out that Vioxx was dangerous was in their FDA filings. Still, it took a team in Oregon lead by Mark Helfand, M.D., a professor and editor in chief of a journal called Medical Decision Making<\/a>, to figure out that Vioxx should be pulled from the market. This is hard stuff, and any help you can give your doctor can only help. If your doctor doesn\u2019t feel this way, find a new doctor.<\/p>\n

I put on a meeting recently where a patient in the audience asked a question that indicated that her physician was about 10 years behind on the research on the link between melanoma and Parkinson\u2019s. Anyone reading abstracts on PubMed could have set this doc straight, but none of his patients were. Patients shouldn\u2019t treat themselves, but they should be knowledgable participants in their care. This can be constructive, as it was in e-Patient Dave\u2019s case, or defensive [self-defense], as it was at my meeting.<\/p>\n

I am not one of \u201cthose patients,\u201d either. I have done a lot of stuff in medicine, and wound up with a condition that just happens to be outside of anything I\u2019ve studied. Despite being a health professional, I am just a patient for my own condition. However, I am an e-patient. I have a greater interest in my good outcomes than anyone else, and I am the head of my own health team.
\n_____<\/p>\n

Peter Schmidt, Ph.D. is the Vice President, Programs and Chief\u00a0Information Officer at the National Parkinson Foundation where he\u00a0oversees NPF\u2019s research, education, and outreach initiatives. \u00a0In this\u00a0role, Dr. Schmidt has helped lead NPF\u2019s Quality Improvement Initiative\u00a0and has collaborated in research on quality care, hospitalization, and\u00a0generic medications in Parkinson\u2019s disease. \u00a0Schmidt joined NPF from\u00a0Cronus Partners, where he was an investment banker focused on\u00a0innovation in healthcare. \u00a0During his tenure at Cronus, he served as\u00a0interim CEO of a company that developed information systems for\u00a0genetics laboratories. \u00a0Previously, Schmidt was the President of a\u00a0company that created software for chronic disease management and Chief\u00a0Operating Officer of a non-profit joint venture of Oxford, Stanford,\u00a0and Yale universities delivering on-line education. \u00a0Schmidt was\u00a0educated at Harvard and Cornell and had a post-doctoral fellowship at\u00a0New York\u2019s Hospital for Special Surgery where he studied biomedical\u00a0engineering. \u00a0Schmidt has a patent on a total knee replacement and has\u00a0written widely on topics ranging from healthcare technology to\u00a0corporate finance. \u00a0He led a successful advocacy effort to secure\u00a0funding for post-traumatic stress disorder care for veterans in 2005\u00a0and donated electronic medical records used to provide indigent care\u00a0in Louisiana after Hurricane Katrina.<\/em><\/sup><\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

This guest post by SPM member Peter Schmidt is long overdue. I asked him to write it months ago after discussion on our post Tips for Understanding Studies (Health News Review). Apologies for the delay. If you’d like to submit a guest post, see our guidelines. I was speaking with a colleague the other day. […]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false},"version":2}},"categories":[1,3586,2304],"tags":[],"coauthors":[],"class_list":["post-9495","post","type-post","status-publish","format-standard","hentry","category-general","category-research-issues","category-why-pm"],"jetpack_publicize_connections":[],"yoast_head":"\nPeter Schmidt: The virtue of participating in your care - it serves others, too - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2011\/06\/peter-schmidt-the-virtue-of-participating-in-your-care-it-serves-others-too.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Peter Schmidt: The virtue of participating in your care - it serves others, too - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"This guest post by SPM member Peter Schmidt is long overdue. 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